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Gilenya Treatment Report

Category: Prescription Drugs

Generic Name: Fingolimod

See patients taking Gilenya

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18 patient evaluations for Gilenya with a adherence rating of Always Always Always Always Always

JesswithMS

Sex: F

Data Quality: 3 stars

MS: 15 yrs

Type: Relapsing-Remitting

Sensation: Moderate

Overall: Moderate

Cognition: moderate

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate
by JesswithMS
See JesswithMS's full Gilenya history

**Purpose:** MS (Multiple Sclerosis) *(Started Sep 30, 2010)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Jun 18, 2013	0.5 mg Daily	Major	Mild	Always	Not at all
Oct 14, 2010	0.5 mg Daily	Slight	Moderate	Always	Not at all

Date: Jun 18, 2013
Advice & Tips: Reduced my relapses by more than 70%; which in turn, helped me regain strength and mobility.
Cost: $200+ monthly

9 helpful marks

TickledPink

Sex: F

Data Quality: 2 stars

MS: 14 yrs

Type: Relapsing-Remitting

Sensation: Mild

Overall: None

Cognition: mild

Vision: none

Speech: none

Swallowing: none

Upper limb: none

Walking: moderate
by TickledPink
See TickledPink's full Gilenya history

**Purpose:** MS (Multiple Sclerosis) *(Started Sep 21, 2010)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Jun 18, 2013	0.5 mg Daily	Major	None	Always	Not at all
Oct 20, 2010	0.5 mg Daily	Major	Mild	Always	Not at all

Side effects:: Upper respiratory infection, UTI symptoms

Date: Oct 20, 2010
Advice & Tips: I had great improvement in all my MS symptoms, there were very few side effects. I was in the clinical trial for 3 years and continue for 1 more year in the extension phase. This drug has given me back my life. Minimal side effects, no hassle to take, have not yet had a relapse in over 3 years and was relapsing every 3 months prior to joining the trial.
Cost: < $25 monthly

32 helpful marks

IlliniMS

Sex: F

Data Quality: 3 stars

MS: 11 yrs

Type: Relapsing-Remitting

Relapse: Moderate

Sensation: Mild

Overall: Mild

Cognition: mild

Vision: mild

Speech: mild

Swallowing: mild

Upper limb: mild

Walking: mild
by IlliniMS
See IlliniMS's full Gilenya history

**Purpose:** MS (Multiple Sclerosis) *(Started Jan 09, 2013)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Mar 04, 2013	0.5 cap(s) Daily	?Can't tell	Severe	Always	Not at all

Date: Mar 04, 2013
Advice & Tips: At this point I am seeing no benefit to the medication, other than it is my only option for treatment. I feel very bad all of the time.

0 helpful marks

Mikhali

Sex: M

Data Quality: 2 stars

MS: 4 yrs

Type: Relapsing-Remitting

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: mild

Swallowing: mild

Upper limb: mild

Walking: moderate
by Mikhali
See Mikhali's full Gilenya history

**Purpose:** MS (Multiple Sclerosis) *(Started Aug 02, 2012)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Aug 14, 2012	500 intl units Daily	None	None	Always	Not at all

Date: Aug 14, 2012
Advice & Tips: Only seemed to make my relapse worse. Probably bad timing.
Cost: < $25 monthly

1 helpful mark

hjkl;'

Sex: F

Data Quality: 0 stars

MS: 13 yrs

Type: Relapsing-Remitting

Sensation: Unreported

Overall: Unreported

Cognition: unreported

Vision: unreported

Speech: unreported

Swallowing: unreported

Upper limb: unreported

Walking: unreported
by hjkl;'
See hjkl;''s full Gilenya history

**Purpose:** MS (Multiple Sclerosis) *(Started Apr 15, 2012)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Jul 15, 2012	0.5 mg Daily	None	Severe	Always	Not at all

Date: Jul 15, 2012
Advice & Tips: I took Gilenya for 16 weeks and took 4 rounds of antibiotics for 3 different problems with infections which started immediately upon starting Gilenya. Also had a flare up which required hospital stay with IV steroids. Gilenya & I did not play nicely with each other, but it may work wonders for you. I myself am going back to Tysabri.
Cost: < $25 monthly

2 helpful marks

Tigertroll

Sex: F

Data Quality: 2 stars

MS: 8 yrs

Type: Relapsing-Remitting

Sensation: Moderate

Overall: Mild

Cognition: none

Vision: none

Speech: none

Swallowing: mild

Upper limb: moderate

Walking: moderate
by Tigertroll
See Tigertroll's full Gilenya history

**Purpose:** MS (Multiple Sclerosis) *(Started Oct 15, 2011)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Jul 10, 2012	0.5 mg Daily	Major	None	Always	Not at all

Date: Jul 10, 2012
Advice & Tips: I've had just one flare-up that lasted more than a week (felt like spiders crawling on me) in over a year on Gilenya. This is a HUGE improvement for me! Historically, I have had a new episode every 8-12 weeks, and was on a steroid regimen to calm it down at least twice a year.

2 helpful marks

arthurj

Sex: M

Data Quality: 2 stars

MS: 37 yrs

Type: Relapsing-Remitting

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: none

Swallowing: none

Upper limb: moderate

Walking: moderate
by arthurj
See arthurj's full Gilenya history

**Purpose:** MS (Multiple Sclerosis) *(Started Apr 14, 2011)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Jul 09, 2012	0.5 mg Daily	?Can't tell	None	Always	Not at all

0 helpful marks

moogie16

Sex: F

Data Quality: 2 stars

MS: 51 yrs

Type: Relapsing-Remitting

Sensation: Moderate

Overall: Moderate

Cognition: moderate

Vision: moderate

Speech: moderate

Swallowing: mild

Upper limb: moderate

Walking: moderate
by moogie16
See moogie16's full Gilenya history

**Purposes:** MS (Multiple Sclerosis) and to slow down progression *(Started Mar 14, 2012)*
Date	Dosage	MS (Multiple Sclerosis) Perceived effectiveness	to slow down progression Perceived effectiveness	Side Effects	Adherence	Burden
May 24, 2012		Moderate	Moderate	Severe	Always	Not at all
May 11, 2012	0.5 mg Daily	Slight	None	Moderate	Always	Not at all

Date: May 24, 2012
Advice & Tips: I am able to walk better, have better gait, less spasicity in my legs. I believe the problem is drug interaction with Synthroid. We'll soon find out.
Cost: < $25 monthly

Date: May 11, 2012
Advice & Tips: I'm not as emotional as I was on Tysabri
Cost: < $25 monthly

1 helpful mark

Rick N

Sex: M

Data Quality: 3 stars

MS: 24 yrs

Mentor

Type: Primary Progressive

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: mild

Swallowing: none

Upper limb: none

Walking: severe
by Rick N
See Rick N's full Gilenya history

**Purposes:** MS (Multiple Sclerosis) and to slow down progression *(Started Nov 11, 2011)*
Date	Dosage	MS (Multiple Sclerosis) Perceived effectiveness	to slow down progression Perceived effectiveness	Side Effects	Adherence	Burden
Apr 07, 2012	0.5 mg Daily	Major	Major	None	Always	Not at all
Feb 06, 2012	0.5 mg Daily		?Can't tell	None	Always	Not at all
Jan 17, 2012	0.5 mg Daily		?Can't tell	None	Always	Not at all

Date: Apr 07, 2012
Advice & Tips: I hare found that Gilenya is convenient to adhere to and I have not side effects whatsoever. Ii have heard stories about sudden death from this treatment. Who knows why the deaths occured but 1000's of people are in this treatment. I tend to believe it is safe. One condition has been higher than normal colds and flu, Possibly dur to redused white cell / immunity
Cost: $25-49 monthly

Date: Feb 06, 2012
Advice & Tips: I like this treatment as opposed to daily shots.
Cost: $25-49 monthly

1 helpful mark

Buddy'sMom

Sex: F

Data Quality: 2 stars

MS: 28 yrs

Mentor

Type: Secondary Progressive

Sensation: Moderate

Overall: Mild

Cognition: mild

Vision: mild

Speech: mild

Swallowing: none

Upper limb: moderate

Walking: severe
by Buddy'sMom
See Buddy'sMom's full Gilenya history

**Purpose:** MS (Multiple Sclerosis) *(Started Apr 04, 2011)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Feb 15, 2012	0.5 mg Daily	Slight	Moderate	Always	Not at all

0 helpful marks

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