106 patient evaluations for Topiramate

catchmeifyacan
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catchmeifyacan
Sex: F
Data Quality: 0 stars
Pain: Some
Fatigue: All
Sleep: All
Stiffness: Most
function: Some
external_stress: Most
Stickman: most
Description:F46y
FM:6y Dx
I have:
Fibromyalgia

See catchmeifyacan's full Topiramate history

Apr 8, 2009 (Started Mar 04, 2009)

  • Perceived effectiveness for Fibromyalgia: None
  • Perceived effectiveness for Nerve pain (neuralgia): None
  • Perceived effectiveness for Migraine headaches: Slight
  • Side Effects: Moderate
  • Adherence: Usually
  • Burden: Very
Dosage: 75 mg Daily
Advice & Tips: I will ask to quit this because for me it hasn't prevented the migraines enough....ended up at doctor's office yesterday for a shot for one.....and the side effects lost me a month of activity.
Cost: $25-49 monthly
Side effects: Feet Tingling, Hands Tingling, Tremor in hands, Nausea, Brain fog, Sleepiness

  • 4 helpful marks
NewportNews
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NewportNews
Data Quality: 0 stars
  • Sex: F
  • Age: 50y
  • Duration: 28 yrs
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
0 seizures
218 weeks ago
I have:
Epilepsy

See NewportNews's full Topiramate history

Oct 27, 2010 (Started Jan 01, 2004)

  • Perceived effectiveness for Epilepsy: Moderate
  • Side Effects: Severe
  • Adherence: Always
  • Burden: Not at all
Dosage: 400 mg Daily
Advice & Tips: Hearing loss is becoming more obvious, vision problems are rapidly becoming a problem also. itching of my larger skin areas is an unusual and new problem that could maybe be due to Topamax or the antidepressant Prozac, unsure about this. I have had terrible crying jags and depression over inappropriate issues in the last year or so that was assumed to be due to my aging process, but was recently debunked by a hormonal test. I therefore believe that the Topamax is a more likely suspect.
Cost: < $25 monthly
Side effects: Weight loss, Blurry vision, Hearing problems, Unexplained itching, Unexplained itching

Feb 15, 2010 (Started Jan 01, 2004)

  • Perceived effectiveness for Epilepsy: Major
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Not at all
Dosage: 400 mg Daily
Advice & Tips: The side effects of Topamax are really tough, but not as tough as others, and certainly not as tough as beating the heck out of yourself and frying your brain during a seizure. I never miss a dose, if I do, I could really end up hurting myself. I take it as exactly to the minute as I can, I do the same with all my meds, and for the last several years since I have been doing this, my seizures have been much less invasive into my life. I also NEVER NEVER take generic epilepsy medication. It must be brand always! Generic is NOT the same, no matter who insists that it is. I can take generic on other medication, but generic Topamax allowed me to have 3 months of severe cluster seizures last year.
Cost: < $25 monthly
Side effects: Weight loss, Blurry vision, Hearing problems, Unexplained itching, Unexplained itching

  • 2 helpful marks
dsseak
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dsseak
Sex: F
Data Quality: 1 star
Pain: Most
Fatigue: Most
Sleep: Little
Stiffness: All
function: Little
external_stress: Some
Stickman: most
Description:F46y
CFS:5y Dx
FM:5y Dx
I am: b
I have:
Fibromyalgia

See dsseak's full Topiramate history

Mar 1, 2010 (Started Jul 30, 2009)

  • Perceived effectiveness for Fibromyalgia: None
  • Side Effects: Severe
  • Adherence: Always
  • Burden: Not at all
Dosage: 200 mg Daily
Advice & Tips: Made me very tired and gave me diarrhea.
Cost: < $25 monthly

  • 2 helpful marks
pjoy17
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pjoy17
Data Quality: 0 stars
  • Sex: F
  • Age: 56y
  • Duration: 52 yrs
Quality of Life:
  • Mental: None
  • Physical: None
6 seizures
201 weeks ago
I am: g
I have:
Epilepsy

See pjoy17's full Topiramate history

Jun 24, 2010 (Started Jan 19, 2010)

  • Perceived effectiveness for Epilepsy: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 200 mg Daily
Advice & Tips: I am sleeping so much better than I have ever slept in my life ! I workout better getting better muscle tone, am happier!
Cost: $200+ monthly

  • 1 helpful mark
NanaBurr
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NanaBurr
Sex: F
Data Quality: 0 stars
Pain: Most
Fatigue: Most
Sleep: Most
Stiffness: Some
function: Some
external_stress: Some
Stickman: most
Description:F43y
FM:6y Dx
I am: b
I have:
Fibromyalgia

See NanaBurr's full Topiramate history

May 21, 2010 (Started May 19, 2010)

  • Perceived effectiveness for Fibromyalgia: Slight
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Not at all
Dosage: 50 mg Daily
Advice & Tips: I did a lot of research before starting this medication, so none of the side effects came as as suprise. They are not pleasant, but I am already noting a slight decrese in pain on day 3 and it is my understanding that the side effects will subiside.
Cost: $200+ monthly
Side effects: Nightmares, Fingers Tingling, Numbness in feet, Nausea, Numbness in knee, Balance problems, Brain fog

  • 1 helpful mark
cantsleep
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cantsleep
Sex: F
Data Quality: 2 stars
Pain: All
Fatigue: All
Sleep: All
Stiffness: All
function: Little
external_stress: Most
Stickman: all
Description:F50y
FM:13y Dx
CFS:12y Dx
I am: b
I have:
Fibromyalgia

See cantsleep's full Topiramate history

Mar 1, 2010 (Started Jan 05, 2010)

  • Perceived effectiveness for Fibromyalgia: Slight
  • Perceived effectiveness for Depressed mood: Slight
  • Side Effects: Severe
  • Adherence: Always
  • Burden: Not at all
Dosage: 25 mg Daily
Advice & Tips: it caused severe dry mouth, I now have a hard time making my own saliva. And it ruined my teeth because of the dry mouth.

  • 1 helpful mark
shell052169
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shell052169
Data Quality: 2 stars
  • Sex: M
  • Age: 44y
  • Duration: 33 yrs
PRO survey: PRO 3
Quality of Life:
  • Mental: Moderate
  • Physical: Mild
Surgery type: Vagus Nerve Stimulation (VNS)
0 seizures
2 weeks ago
I am: g
I have:
Epilepsy

See shell052169's full Topiramate history

Jun 17, 2012 (Started Mar 07, 2007)

  • Perceived effectiveness for Epilepsy: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 200 mg Daily
Cost: < $25 monthly

Aug 25, 2010 (Started Mar 07, 2007)

  • Perceived effectiveness for Epilepsy: Can’t tell
  • Side Effects: None
  • Adherence: Always
  • Burden: Somewhat
Dosage: 200 mg Daily
Cost: < $25 monthly

  • 1 helpful mark
Kaessa
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Kaessa
Sex: F
Data Quality: 3 stars
Pain: All
Fatigue: All
Sleep: All
Stiffness: All
function: None
external_stress: Some
Stickman: all
Description:F49y
CFS:4y Dx
FM:5y Dx
I am: b
I have:
Fibromyalgia

See Kaessa's full Topiramate history

Mar 12, 2012 (Started Nov 10, 2010)

  • Perceived effectiveness for Fibromyalgia: Moderate
  • Side Effects: Severe
  • Adherence: Always
  • Burden: Not at all
Dosage: 25 mg Daily
Cost: < $25 monthly
Side effects: Hair loss, Balance problems, Numbness and Tingling with Pins and Needles

Feb 28, 2012 (Started Nov 10, 2010)

  • Perceived effectiveness for Fibromyalgia: Moderate
  • Side Effects: Severe
  • Adherence: Always
  • Burden: Not at all
Dosage: 100 mg Daily
Advice & Tips: This medication worked relatively well for my fibro pain, but after about a year or so it started affecting my cognitive functions. I have had difficulty completing sentences and remembering words, and have been unable to drive for the past few weeks. After visiting a neurologist, I am discontinuing this medication on his advice.
Cost: < $25 monthly
Side effects: Hair loss, Balance problems, Numbness and Tingling with Pins and Needles

May 8, 2011 (Started Nov 10, 2010)

  • Perceived effectiveness for Fibromyalgia: Moderate
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Not at all
Dosage: 100 mg Daily
Cost: < $25 monthly
Side effects: Hair loss, Balance problems, Numbness and Tingling with Pins and Needles

  • 1 helpful mark
Itsalwayssomething
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Itsalwayssomething
Data Quality: 2 stars
  • Sex: F
  • Age: 55
Condition: Chronic Pain Syndrome 22 additional condition(s)
Quality of Life:
  • Mental: Moderate
  • Physical: Moderate
I am: b
I have:
Chronic Pain Syndrome

See Itsalwayssomething's full Topiramate history

Mar 15, 2013 (Started Jun 01, 2011)

  • Perceived effectiveness for Migraine headaches: Slight
  • Side Effects: Mild
  • Adherence: Sometimes
  • Burden: A little
Dosage: 100 mg Daily
Advice & Tips: I started taking as needed then, realized that it could be contributing to what I believe (self-diagnosed) was Serotonin Syndrome which, combined with everything else I was taking. If you find your condition (of any type) suddenly worse (within minutes or hours), start by asking your doctor about this first. It's taken me a year worth of specialists (who found nothing), psych tests (which proved I wasn't 'making it up'), and SELF RESEARCH to realize my problem. Miraculously, at least the symptoms that have been plaguing me since EXACTLY April of 2012 have gotten about 75% better within about 4 days. It happened so fast, I thought I had had a stroke or was going insane. Don't let this happen to you.
Cost: < $25 monthly

Jul 21, 2012 (Started Jun 01, 2011)

  • Perceived effectiveness for Prevent migraine: Major
  • Perceived effectiveness for Migraine headaches: Major
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: 100 mg Daily
Advice & Tips: Helps when taken. My prescription ran out a few days ago and I haven't gone into the drugstore yet. Will be starting dose again soon. 8/2/12 Pharmacy informs me I haven't refilled since May. Oops!
Cost: < $25 monthly

Jun 30, 2012 (Started Jun 01, 2011)

  • Perceived effectiveness for Prevent migraine: Major
  • Perceived effectiveness for Migraine headaches: Major
  • Side Effects: None
  • Adherence: Usually
  • Burden: Not at all
Dosage: 100 mg Daily
Cost: < $25 monthly

  • 1 helpful mark
literature lover
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literature lover
Data Quality: 0 stars
  • Sex: F
  • Age: 43y
  • Duration: 7 yrs
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
0 seizures
215 weeks ago
I have:
Epilepsy

See literature lover's full Topiramate history

Feb 19, 2010 (Started Sep 20, 2006)

  • Perceived effectiveness for Epilepsy: Major
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: A little
Dosage: 200 mg Daily
Advice & Tips: I have been taking Topamax since 2007 and I noticed many side effects that I was told about by my Neurologist. First was the tingling in my hands, feet and face. These symptoms went away after I took the medication for over a year. I also noticed a decrease in my number of seizures a year. I also had a decrease in tiredness. With this med you need to get proper sleep, and watch your diet. You can not over exert yourself. Especially in warm weather.. I have had a lot of success on this med and am very happy. I will continue to stay on it as long as I can..
Cost: < $25 monthly
Side effects: Memory Loss

  • 1 helpful mark
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Showing 10 of 106 patient evaluations for Topiramate