34 patient evaluations for Oxcarbazepine

cmawally
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cmawally
Data Quality: 2 stars
  • Sex: F
  • Age: 56y
  • Duration: 48 yrs
PRO survey: PRO 3
Quality of Life:
  • Mental: None
  • Physical: None
1 seizure
5 weeks ago
I am: g
I have:
Epilepsy

See cmawally's full Oxcarbazepine history

Jul 18, 2010 (Started Sep 04, 2004)

  • Perceived effectiveness for Seizures (complex partial): Moderate
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Not at all
Dosage: 300 mg/5 mL Daily
Advice & Tips: Caused low sodium even with fluid restrictive diet .Increased edema to lower extremities.I also experienced more shortness of air.Frequent irregular. heartbeat PVC's & PAC's.Felt upper abdominal fullness and weight gain even with exercise and diet.Craved carbs on this medicine.Felt brain fog much of time.It also made me feel pretty "so who cares!" about many things.This is just not the normal me.Needed more frequent inhaler and nebulizer treatments on this medicine.
Cost: $50-99 monthly

  • 1 helpful mark
Rebelor
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Rebelor
Data Quality: 3 stars
  • Sex: F
  • Age: 58y
  • Duration: 6 yrs
PRO survey: PRO 3
Quality of Life:
  • Mental: Mild
  • Physical: None
0 seizures
this week
I am: vb
I have:
Epilepsy

See Rebelor's full Oxcarbazepine history

Dec 15, 2010 (Started Nov 03, 2010)

  • Perceived effectiveness for Epilepsy: None
  • Side Effects: Severe
  • Adherence: Sometimes
  • Burden: Somewhat
Dosage: 150 mg Daily
Advice & Tips: This was added to my Lamictal to try to control my seizures. I was never able to increase the dose beyond 75 mg twice a day. It caused me to retain fluid, elevate my blood pressure and made me extremely fatigued. Ended up being admitted through the ER with a blood pressure of 203/109. No other cause was found. I have now started titrating Lyrica and hope that will work.
Cost: < $25 monthly
Side effects: Depressed mood, Weight gain, Depressed mood, Weight gain

Dec 13, 2010 (Started Nov 03, 2010)

  • Perceived effectiveness for Epilepsy: Can’t tell
  • Side Effects: Moderate
  • Adherence: Sometimes
  • Burden: Very
Dosage: 150 mg Daily
Advice & Tips: I was unable to take the prescribed dosage of 150 MG twice daily. It made me very lethargic and flat. I had no interest in getting off the couch. The sedation is intolerable. I have been on 75 mg twice daily for a month. That isn't stopping the small seizures.
Cost: < $25 monthly
Side effects: Depressed mood, Weight gain, Depressed mood, Weight gain

Dec 5, 2010 (Started Nov 03, 2010)

  • Perceived effectiveness for Epilepsy: Moderate
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Somewhat
Dosage: 150 mg Daily
Advice & Tips: Sedation and memory problems when titrating. Couldn't increase to 150mg twice daily because of severe effect of increased dosage
Cost: < $25 monthly
Side effects: Depressed mood, Weight gain, Depressed mood, Weight gain

  • 1 helpful mark
Seizure Boy
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Seizure Boy
Data Quality: 2 stars
  • Sex: M
  • Age: 56y
  • Duration: 7 yrs
PRO survey: PRO 3
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
0 seizures
78 weeks ago
I am: b
I have:
Epilepsy

See Seizure Boy's full Oxcarbazepine history

Jan 5, 2011 (Started Nov 17, 2006)

  • Perceived effectiveness for Seizures (grand mal or tonic-clonic): Major
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Not at all
Dosage: 1800 mg Daily
Advice & Tips: Had very bad vertigo attack that lasted for over 1 week. Dr. prescribed additional dosage of meclizine which helped.
Cost: $100-199 monthly
Side effects: Vertigo

Oct 20, 2010 (Started Nov 17, 2006)

  • Perceived effectiveness for Seizures (grand mal or tonic-clonic): Major
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Not at all
Dosage: 1800 mg Daily
Advice & Tips: Stick too it - it works
Cost: $100-199 monthly
Side effects: Vertigo

  • 1 helpful mark
carriejean_2001
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carriejean_2001
Data Quality: 1 star
  • Sex: F
  • Age: 31y
  • Duration: 13 yrs
Quality of Life:
  • Mental: Mild
  • Physical: Mild
Surgery type: Vagus Nerve Stimulation (VNS)
5 seizures
143 weeks ago
I am: g
I have:
Epilepsy

See carriejean_2001's full Oxcarbazepine history

Dec 15, 2011 (Started Aug 22, 2009)

  • Perceived effectiveness for Seizures (complex partial): Slight
  • Perceived effectiveness for Epilepsy: Slight
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Not at all
Dosage: 900 mg Daily
Cost: < $25 monthly

Oct 14, 2010 (Started Aug 22, 2009)

  • Perceived effectiveness for Seizures (complex partial): Slight
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Not at all
Dosage: 900 mg Daily
Advice & Tips: Unless I take this on a very full stomach it makes me very sleepy so I recommend eating a very large breakfast before taking it in the mornings. However, I take twice as much at night and cannot sleep, I don't understand that. Either way if you are taking this medication in the morning there is a good chance it is going to make you want to go back to bed.
Cost: < $25 monthly

  • 1 helpful mark
dhaniboi
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dhaniboi
Data Quality: 3 stars
  • Sex: M
  • Age: 44y
  • Duration: 40 yrs
PRO survey: PRO 3
Quality of Life:
  • Mental: None
  • Physical: Mild
Surgery type: Vagus Nerve Stimulation (VNS)
20 seizures
this week
I am: g
I have:
Epilepsy

See dhaniboi's full Oxcarbazepine history

Nov 18, 2014 (Started May 01, 1998)

  • Perceived effectiveness for Epilepsy: Moderate
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 1200 mg Daily
Cost: $50-99 monthly
Side effects: Lightheadedness, Drunk feeling, Feeling strange, Dizziness

Nov 3, 2014 (Started May 01, 1998)

  • Perceived effectiveness for Epilepsy: Moderate
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 1200 mg Daily
Cost: $50-99 monthly
Side effects: Lightheadedness, Drunk feeling, Feeling strange, Dizziness

Oct 24, 2014 (Started May 01, 1998)

  • Perceived effectiveness for Epilepsy: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 1200 mg Daily
Cost: $50-99 monthly
Side effects: Lightheadedness, Drunk feeling, Feeling strange, Dizziness

Oct 21, 2014 (Started May 01, 1998)

  • Perceived effectiveness for Epilepsy: Moderate
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 1200 mg Daily
Cost: $50-99 monthly
Side effects: Lightheadedness, Drunk feeling, Feeling strange, Dizziness

Oct 17, 2014 (Started May 01, 1998)

  • Perceived effectiveness for Epilepsy: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 1200 mg Daily
Cost: $50-99 monthly
Side effects: Lightheadedness, Drunk feeling, Feeling strange, Dizziness

Oct 9, 2014 (Started May 01, 1998)

  • Perceived effectiveness for Epilepsy: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 1200 mg Daily
Cost: $50-99 monthly
Side effects: Lightheadedness, Drunk feeling, Feeling strange, Dizziness

Sep 25, 2014 (Started May 01, 1998)

  • Perceived effectiveness for Epilepsy: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 1200 mg Daily
Advice & Tips: Dr. Labiner tried to cut this by 1/2 a pill for 2 weeks. Seizures increased by approx. 30-40 a week. So I increased this one back and cut Keppra two a day 2 1/2 a day without seeing additional seizures.
Cost: $50-99 monthly
Side effects: Lightheadedness, Drunk feeling, Feeling strange, Dizziness

Sep 18, 2014 (Started May 01, 1998)

  • Perceived effectiveness for Epilepsy: Moderate
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 1200 mg Daily
Cost: $50-99 monthly
Side effects: Lightheadedness, Drunk feeling, Feeling strange, Dizziness

Sep 17, 2014 (Started May 01, 1998)

  • Perceived effectiveness for Epilepsy: Moderate
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 1200 mg Daily
Advice & Tips: pills are 1.07 each
Cost: $50-99 monthly
Side effects: Lightheadedness, Drunk feeling, Feeling strange, Dizziness

Sep 16, 2014 (Started May 01, 1998)

  • Perceived effectiveness for Epilepsy: Moderate
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 1200 mg Daily
Cost: < $25 monthly
Side effects: Lightheadedness, Drunk feeling, Feeling strange, Dizziness

Sep 15, 2014 (Started May 01, 1998)

  • Perceived effectiveness for Epilepsy: Moderate
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 1200 mg Daily
Cost: < $25 monthly
Side effects: Lightheadedness, Drunk feeling, Feeling strange, Dizziness

Sep 10, 2014 (Started May 01, 1998)

  • Perceived effectiveness for Epilepsy: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 1200 mg Daily
Cost: < $25 monthly
Side effects: Lightheadedness, Drunk feeling, Feeling strange, Dizziness

Sep 6, 2014 (Started May 01, 1998)

  • Perceived effectiveness for Epilepsy: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 1200 mg Daily
Cost: < $25 monthly
Side effects: Lightheadedness, Drunk feeling, Feeling strange, Dizziness

Sep 4, 2014 (Started May 01, 1998)

  • Perceived effectiveness for Epilepsy: Moderate
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 1200 mg Daily
Cost: < $25 monthly
Side effects: Lightheadedness, Drunk feeling, Feeling strange, Dizziness

Aug 25, 2014 (Started May 01, 1998)

  • Perceived effectiveness for Epilepsy: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: A little
Dosage: 1200 mg Daily
Advice & Tips: tried lowering the dosage but seizures increase by an extra 30 a week.
Cost: $50-99 monthly
Side effects: Lightheadedness, Drunk feeling, Feeling strange, Dizziness

Jun 2, 2012 (Started May 01, 1998)

  • Perceived effectiveness for Epilepsy: Moderate
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Not at all
Dosage: 1200 mg Daily
Cost: $50-99 monthly
Side effects: Lightheadedness, Drunk feeling, Feeling strange, Dizziness

Feb 21, 2011 (Started May 01, 1998)

  • Perceived effectiveness for Epilepsy: Moderate
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 1200 mg Daily
Cost: < $25 monthly
Side effects: Lightheadedness, Drunk feeling, Feeling strange, Dizziness

Jan 2, 2011 (Started May 01, 1998)

  • Perceived effectiveness for Epilepsy: Moderate
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 1200 mg Daily
Cost: < $25 monthly
Side effects: Lightheadedness, Drunk feeling, Feeling strange, Dizziness

May 25, 2010 (Started May 01, 1998)

  • Perceived effectiveness for Epilepsy: Major
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: 1200 mg Daily
Advice & Tips: if taken any closer than 12 hours apart I get a groggy, dizzy, drunk feeling.
Cost: $50-99 monthly
Side effects: Lightheadedness, Drunk feeling, Feeling strange, Dizziness

Mar 12, 2010 (Started May 01, 1998)

  • Perceived effectiveness for Epilepsy: Moderate
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Not at all
Dosage: 1200 mg Daily
Advice & Tips: I feel groggy and drunk feeling when I take my doses closer than 12 hours apart.
Cost: $50-99 monthly
Side effects: Lightheadedness, Drunk feeling, Feeling strange, Dizziness

  • 1 helpful mark
manyfaces
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manyfaces
Data Quality: 0 stars
  • Sex: F
  • Age: 33
Condition: 5 additional condition(s)
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
I am: g

See manyfaces's full Oxcarbazepine history

Dec 6, 2008 (Started Aug 23, 2008)

  • Perceived effectiveness for Treat my mood condition(s): Slight
  • Side Effects: Moderate
  • Adherence: Usually
  • Burden: Not at all
Dosage: 150 mg Daily
Cost: < $25 monthly
Side effects: Mania, Lack of concentration, Dry mouth (xerostomia), Unsteady gait, Increased energy

  • 0 helpful marks
ProfessorBeeker
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ProfessorBeeker
Sex: M
Data Quality: 0 stars
Depression: 1
Mania: 0
Emotional: 1
Anxiety: 1
Compulsion: 0
External Stress: Moderate
34 M
Function: High
Distress: Low
I am: g
I have:
Major Depressive Disorder

See ProfessorBeeker's full Oxcarbazepine history

Dec 14, 2008 (Started May 17, 2006)

  • Perceived effectiveness for Treat my mood condition(s): Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 600 mg Daily
Cost: $100-199 monthly
Side effects: Lack of concentration, Excessive daytime sleepiness (somnolence), Tremor(s), Headaches, Headaches

Dec 5, 2008 (Started May 17, 2006)

  • Perceived effectiveness for Treat my mood condition(s): Slight
  • Side Effects: Severe
  • Adherence: Always
  • Burden: Very
Dosage: 1800 mg Daily
Advice & Tips: The dosage needs to be reduced
Cost: $100-199 monthly
Side effects: Lack of concentration, Excessive daytime sleepiness (somnolence), Tremor(s), Headaches, Headaches

Nov 29, 2008 (Started May 17, 2006)

  • Perceived effectiveness for Treat my mood condition(s): Moderate
  • Side Effects: Severe
  • Adherence: Always
  • Burden: Very
Dosage: 1800 mg Daily
Cost: $100-199 monthly
Side effects: Lack of concentration, Excessive daytime sleepiness (somnolence), Tremor(s), Headaches, Headaches

Sep 16, 2008 (Started May 17, 2006)

  • Perceived effectiveness for Treat my mood condition(s): Moderate
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 900 mg Daily
Cost: < $25 monthly
Side effects: Lack of concentration, Excessive daytime sleepiness (somnolence), Tremor(s), Headaches, Headaches

  • 0 helpful marks
Bleeding_Butterflies
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Bleeding_Butterflies
Sex: F
Data Quality: 0 stars
Depression: 2
Mania: 1
Emotional: 4
Anxiety: 3
Compulsion: 2
External Stress: Moderate
23 F
Function: Low
Distress: Moderate
I am: g
I have:
PTSD

See Bleeding_Butterflies's full Oxcarbazepine history

Oct 5, 2009 (Started Jul 29, 2009)

  • Perceived effectiveness for Increase effect of another treatment: Can’t tell
  • Side Effects: Moderate
  • Adherence: Usually
  • Burden: A little
Dosage: 300 mg Daily
Cost: < $25 monthly
Side effects: Lack of concentration, Excessive daytime sleepiness (somnolence)

  • 0 helpful marks
Nylrad
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Nylrad
Data Quality: 2 stars
  • Sex: F
  • Age: 57y
  • Duration: 33 yrs
PRO survey: PRO 3
Quality of Life:
  • Mental: None
  • Physical: None
Surgery type: Left Temporal Lobectomy, Left Temporal Lobectomy
0 seizures
209 weeks ago
I am: vg
I have:
Epilepsy

See Nylrad's full Oxcarbazepine history

Oct 20, 2008 (Started Feb 04, 2006)

  • Perceived effectiveness for Epilepsy: Can’t tell
  • Side Effects: Severe
  • Adherence: Never
  • Burden: Very
Advice & Tips: NOTE: Prior to my surgery (left temporal lobectomy) I did NOT have a problem with Trileptal (at least not that I know of). But shortly after surgery (October 14, 2008) I had a major problem that put me back in the hospital for a week. Somehow the Trileptal was making my body need salt really bad. I was sooooooo out of it. Tired, sick; very scary. But the doctors figured it out and took me off of Trileptal and I fairly quickly got better. Had to keep having my blood tested at least a couple times a week for many weeks.
Cost: < $25 monthly
Side effects: Frustration, Exhaustion, Fatigue

Oct 18, 2008 (Started Feb 04, 2006)

  • Perceived effectiveness for Epilepsy: Can’t tell
  • Side Effects: Severe
  • Adherence: Always
  • Burden: Very
Dosage: 600 mg Daily
Advice & Tips: After my left temporal lobectomy I became negatively affected by Trileptal. It affected my salt level in my blood and I went back into the hospital for about a week.
Cost: < $25 monthly
Side effects: Frustration, Exhaustion, Fatigue

  • 0 helpful marks
SarahW
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SarahW
Data Quality: 1 star
  • Sex: F
  • Age: 34y
  • Duration: 18 yrs
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
Surgery type: Vagus Nerve Stimulation (VNS), Vagus Nerve Stimulation (VNS)
2 seizures
228 weeks ago
I am: b
I have:
Epilepsy

See SarahW's full Oxcarbazepine history

Mar 17, 2010 (Started Mar 01, 2009)

  • Perceived effectiveness for Epilepsy: Can’t tell
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: 1200 mg Daily
Cost: < $25 monthly

  • 0 helpful marks
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Showing 10 of 34 patient evaluations for Oxcarbazepine