Evaluations from Patients who take Oxcarbazepine

Rebelor

Data Quality: 2 stars
- Sex: F
- Age: 56y
- Duration: 5 yrs
PRO survey: PRO 3
Quality of Life:
- Social: Moderate
- Mental: Mild
- Physical: None
4 seizures

4 weeks ago
by Rebelor
See Rebelor's full Oxcarbazepine history

**Purpose:** Epilepsy *(Started Nov 03, 2010)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Dec 15, 2010	150 mg Daily	None	Severe	Sometimes	Somewhat
Dec 13, 2010	150 mg Daily	?Can't tell	Moderate	Sometimes	Very
Dec 05, 2010	150 mg Daily	Moderate	Mild	Always	Somewhat

Side effects:: Depressed mood, Weight gain, Depressed mood, Weight gain

Date: Dec 15, 2010
Advice & Tips: This was added to my Lamictal to try to control my seizures. I was never able to increase the dose beyond 75 mg twice a day. It caused me to retain fluid, elevate my blood pressure and made me extremely fatigued. Ended up being admitted through the ER with a blood pressure of 203/109. No other cause was found. I have now started titrating Lyrica and hope that will work.
Cost: < $25 monthly

Date: Dec 13, 2010
Advice & Tips: I was unable to take the prescribed dosage of 150 MG twice daily. It made me very lethargic and flat. I had no interest in getting off the couch. The sedation is intolerable. I have been on 75 mg twice daily for a month. That isn't stopping the small seizures.
Cost: < $25 monthly

Date: Dec 05, 2010
Advice & Tips: Sedation and memory problems when titrating. Couldn't increase to 150mg twice daily because of severe effect of increased dosage
Cost: < $25 monthly

1 helpful mark

carriejean_2001

Data Quality: 1 star
- Sex: F
- Age: 29y
- Duration: 12 yrs
PRO survey: PRO 0
Quality of Life:
- Social: Mild
- Mental: Mild
- Physical: Mild
Surgery type: Vagus Nerve Stimulation (VNS)

5 seizures

65 weeks ago
by carriejean_2001
See carriejean_2001's full Oxcarbazepine history

**Purposes:** Seizures (complex partial) and Epilepsy *(Started Aug 22, 2009)*
Date	Dosage	Seizures (complex partial) Perceived effectiveness	Epilepsy Perceived effectiveness	Side Effects	Adherence	Burden
Dec 15, 2011	900 mg Daily	Slight	Slight	Moderate	Always	Not at all
Oct 14, 2010	900 mg Daily	Slight		Moderate	Always	Not at all

Date: Oct 14, 2010
Advice & Tips: Unless I take this on a very full stomach it makes me very sleepy so I recommend eating a very large breakfast before taking it in the mornings. However, I take twice as much at night and cannot sleep, I don't understand that. Either way if you are taking this medication in the morning there is a good chance it is going to make you want to go back to bed.
Cost: < $25 monthly

1 helpful mark

dhaniboi

Data Quality: 1 star
- Sex: M
- Age: 42y
- Duration: 39 yrs
PRO survey: PRO 3
Quality of Life:
- Social: Mild
- Mental: None
- Physical: Mild
Surgery type: Vagus Nerve Stimulation (VNS)

6 seizures

50 weeks ago
by dhaniboi
See dhaniboi's full Oxcarbazepine history

**Purpose:** Epilepsy *(Started May 01, 1998)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Jun 02, 2012	1200 mg Daily	Moderate	Moderate	Always	Not at all
Feb 21, 2011	1200 mg Daily	Moderate	None	Always	Not at all
Jan 02, 2011	1200 mg Daily	Moderate	None	Always	Not at all
May 25, 2010	1200 mg Daily	Major	Mild	Always	Not at all
Mar 12, 2010	1200 mg Daily	Moderate	Moderate	Always	Not at all

Side effects:: Lightheadedness, Drunk feeling, Feeling strange, Dizziness

Date: May 25, 2010
Advice & Tips: if taken any closer than 12 hours apart I get a groggy, dizzy, drunk feeling.
Cost: $50-99 monthly

Date: Mar 12, 2010
Advice & Tips: I feel groggy and drunk feeling when I take my doses closer than 12 hours apart.
Cost: $50-99 monthly

1 helpful mark

cmawally

Data Quality: 2 stars
- Sex: F
- Age: 55y
- Duration: 46 yrs
PRO survey: PRO 3
Quality of Life:
- Social: None
- Mental: None
- Physical: None
0 seizures

3 weeks ago
by cmawally
See cmawally's full Oxcarbazepine history

**Purpose:** Seizures (complex partial) *(Started Sep 04, 2004)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Jul 18, 2010	300 mg/5 mL Daily	Moderate	Moderate	Always	Not at all

Date: Jul 18, 2010
Advice & Tips: Caused low sodium even with fluid restrictive diet .Increased edema to lower extremities.I also experienced more shortness of air.Frequent irregular. heartbeat PVC's & PAC's.Felt upper abdominal fullness and weight gain even with exercise and diet.Craved carbs on this medicine.Felt brain fog much of time.It also made me feel pretty "so who cares!" about many things.This is just not the normal me.Needed more frequent inhaler and nebulizer treatments on this medicine.
Cost: $50-99 monthly

1 helpful mark

Seizure Boy

Data Quality: 1 star
- Sex: M
- Age: 54y
- Duration: 5 yrs
PRO survey: PRO 3
Quality of Life:
- Social: Severe
- Mental: Mild
- Physical: Moderate
2 seizures

149 weeks ago
by Seizure Boy
See Seizure Boy's full Oxcarbazepine history

**Purpose:** Seizures (grand mal or tonic-clonic) *(Started Nov 17, 2006)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Jan 05, 2011	1800 mg Daily	Major	Moderate	Always	Not at all
Oct 20, 2010	1800 mg Daily	Major	Moderate	Always	Not at all

Side effects:: Vertigo

Date: Jan 05, 2011
Advice & Tips: Had very bad vertigo attack that lasted for over 1 week. Dr. prescribed additional dosage of meclizine which helped.
Cost: $100-199 monthly

Date: Oct 20, 2010
Advice & Tips: Stick too it - it works
Cost: $100-199 monthly

1 helpful mark

myfitnessinfits

Data Quality: 0 stars
- Sex: M
- Age: 35y
- Duration: ? yrs
PRO survey: PRO 0
Quality of Life:
- Social: Moderate
- Mental: Moderate
- Physical: Mild
4 seizures

40 weeks ago
by myfitnessinfits
See myfitnessinfits's full Oxcarbazepine history

**Purpose:** Epilepsy *(Started Mar 08, 2000)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Aug 14, 2012	600 mg Daily	?Can't tell	Mild	Always	Not at all

0 helpful marks

God's Worshipper

Sex: M

Data Quality: 3 stars

Schizoaffective Disorder

Depression: 1

Mania: 0

Emotional: 0

Anxiety: 1

Compulsion: 1

External Stress: Low

Rx Therapy

55 M

Function: Moderate

Distress: Low
by God's Worshipper
See God's Worshipper's full Oxcarbazepine history

**Purpose:** Mood swings *(Started Feb 06, 2012)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Aug 20, 2012	2 x 300 mg/5 mL Daily	?Can't tell	None	Never	Not at all

0 helpful marks

iidert

Sex: M

Data Quality: 2 stars

MS: 17 yrs

Type: Secondary Progressive

Relapse: Severe

Sensation: Severe

Overall: Moderate

Cognition: moderate

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: severe
by iidert
See iidert's full Oxcarbazepine history

**Purpose:** Nerve pain (neuralgia) *(Started Sep 15, 2012)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Dec 22, 2012	1500 mg Daily	Moderate	Severe	Always	Not at all
Nov 18, 2012	900 mg Daily	Moderate	Severe	Always	Not at all

0 helpful marks

Nylrad

Data Quality: 1 star
- Sex: F
- Age: 56y
- Duration: 31 yrs
PRO survey: PRO 3
Quality of Life:
- Social: Mild
- Mental: None
- Physical: None
Surgery type: Left Temporal Lobectomy, Left Temporal Lobectomy

0 seizures

131 weeks ago
by Nylrad
See Nylrad's full Oxcarbazepine history

**Purpose:** Epilepsy *(Started Feb 04, 2006)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Oct 20, 2008		?Can't tell	Severe	Never	Very
Oct 18, 2008	600 mg Daily	?Can't tell	Severe	Always	Very

Side effects:: Frustration, Exhaustion, Fatigue

Date: Oct 20, 2008
Advice & Tips: NOTE: Prior to my surgery (left temporal lobectomy) I did NOT have a problem with Trileptal (at least not that I know of). But shortly after surgery (October 14, 2008) I had a major problem that put me back in the hospital for a week. Somehow the Trileptal was making my body need salt really bad. I was sooooooo out of it. Tired, sick; very scary. But the doctors figured it out and took me off of Trileptal and I fairly quickly got better. Had to keep having my blood tested at least a couple times a week for many weeks.
Cost: < $25 monthly

Date: Oct 18, 2008
Advice & Tips: After my left temporal lobectomy I became negatively affected by Trileptal. It affected my salt level in my blood and I went back into the hospital for about a week.
Cost: < $25 monthly

0 helpful marks

dtiller

Data Quality: 1 star
- Sex: F
- Age: 41y
- Duration: 12 yrs
PRO survey: PRO 0
Quality of Life:
- Social: Moderate
- Mental: Mild
- Physical: Mild
0 seizures

119 weeks ago
by dtiller
See dtiller's full Oxcarbazepine history

**Purpose:** Seizures (complex partial) *(Started Jan 01, 2005)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Nov 18, 2010	300 mg/5 mL Daily	Slight	Mild	Always	Not at all

Side effects:: Wake up feeling just as tired as before nap, Sensitivity to sudden loud noises, Sensitivity to sudden loud noises

Date: Nov 18, 2010
Advice & Tips: i remember taking all my meds by putting them all in a am pm weekly pill box. it helps me greatly. I am a forgetful person due to brain surgery. question # 2 and 3 are answered by taking all my meds together i take 4 meds that work together to keep my siezures under control.

0 helpful marks