I've had major problems w/high sodium levels from this. Passed out and was hospitalized for 3 weeks. But, it helps a lot with my leg, butt, low back pain. Had to gradually get used to lower dose; still wish I could take more.
Cost:
$50-99 monthly
0 helpful marks
neuroplasticity
Data Quality: 2 stars
Sex:
M
Age:
52y
Diagnosis:
ENOS
Duration:
38 yrs
PRO survey:
PRO 3
Quality of Life:
Social:
Moderate
Mental:
Mild
Physical:
Mild
Surgery type:
Right Temporal Lobectomy, Selective Amygdalohippocampectomy, Vagus Nerve Stimulation (VNS), Extratemporal Resection
Depressed mood, Weight gain, Depressed mood, Weight gain
Date
Dec 15, 2010
Advice & Tips
This was added to my Lamictal to try to control my seizures. I was never able to increase the dose beyond 75 mg twice a day. It caused me to retain fluid, elevate my blood pressure and made me extremely fatigued. Ended up being admitted through the ER with a blood pressure of 203/109. No other cause was found. I have now started titrating Lyrica and hope that will work.
Cost:
< $25 monthly
Date
Dec 13, 2010
Advice & Tips
I was unable to take the prescribed dosage of 150 MG twice daily. It made me very lethargic and flat. I had no interest in getting off the couch. The sedation is intolerable. I have been on 75 mg twice daily for a month. That isn't stopping the small seizures.
Cost:
< $25 monthly
Date
Dec 05, 2010
Advice & Tips
Sedation and memory problems when titrating. Couldn't increase to 150mg twice daily because of severe effect of increased dosage
For the week I took this medication, admittedly immediately after stopping 100 mg Lamictal abruptly, I experienced a drugged feel, significant tiredness, and brain fog/an inability to think clearly. I started at 300 mg twice a day and was supposed to add another 300 mg in the morning, but given how I felt my doctor advised me to stop taking the medication altogether.
Hmmm, I wonder what I get to try next?
Taking this completely changed my life. For years my depression had been misdiagnosed as chemical when it was actually the result of a head injury when I was 5. A psychiatrist who actually bothered to take a detailed history decided to try giving me an anti-convulsant to treat the organic injury rather than just treat the symptoms. Within a week it had almost completely changed my mood and got rid of the PTSD-like thoughts that had dominated my life for decades. That doctor changed my life. Thank you.
Purpose:Seizures (complex partial)(Started Jan 01, 2005)
Date
Dosage
Efficacy
Side Effects
Adherence
Burden
Nov 18, 2010
300 mg/5 mL
Daily
Slight
Mild
Always
Not at all
Side effects:
Wake up feeling just as tired as before nap, Sensitivity to sudden loud noises, Sensitivity to sudden loud noises
Date
Nov 18, 2010
Advice & Tips
i remember taking all my meds by putting them all in a am pm weekly pill box. it helps me greatly. I am a forgetful person due to brain surgery. question # 2 and 3 are answered by taking all my meds together i take 4 meds that work together to keep my siezures under control.
Purpose:Seizures (complex partial)(Started Aug 22, 2009)
Date
Dosage
Efficacy
Side Effects
Adherence
Burden
Oct 14, 2010
900 mg
Daily
Slight
Moderate
Always
Not at all
Date
Oct 14, 2010
Advice & Tips
Unless I take this on a very full stomach it makes me very sleepy so I recommend eating a very large breakfast before taking it in the mornings. However, I take twice as much at night and cannot sleep, I don't understand that. Either way if you are taking this medication in the morning there is a good chance it is going to make you want to go back to bed.
Moderate
0 helpful marks
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