227 patient evaluations for Baclofen

shocked
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shocked
Sex: M
Data Quality: 0 stars
Bulbar: none
Arms: moderate
Chest: moderate
Legs: moderate
I am: vb
I have:
ALS

See shocked's full Baclofen history

Mar 10, 2011 (Started Jan 03, 2011)

  • Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): Moderate
  • Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): Moderate
  • Perceived effectiveness for Fasciculations: Moderate
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 20 mg Daily
Advice & Tips: I'm not sure how to evaluate because a couple meds were tweaked and I have more alertness and a slight increase in appetite but I'm not sure which drug helped. I actually take this one for spasms and I don't have them anymore, but that wasn't one of the choices I was given.

  • 0 helpful marks
old goat
5823 thumb
old goat
Sex: M
Data Quality: 2 stars
Bulbar: moderate
Arms: severe
Chest: moderate
Legs: severe
I am: g
I have:
ALS

See old goat's full Baclofen history

Mar 1, 2011 (Started Nov 12, 2003)

  • Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): Major
  • Perceived effectiveness for Stiffness/Spasticity: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 50 mg Daily
Cost: < $25 monthly
Side effects: Sleepiness, Fatigue

Dec 13, 2009 (Started Nov 12, 2003)

  • Perceived effectiveness for Stiffness/Spasticity: Major
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: 30 mg Daily
Advice & Tips: Makes me a little tired and causes me to have more saliva.
Cost: < $25 monthly
Side effects: Sleepiness, Fatigue

Sep 16, 2008 (Started Nov 12, 2003)

  • Perceived effectiveness for Stiffness/Spasticity: Moderate
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Not at all
Dosage: 30 mg Daily
Cost: < $25 monthly
Side effects: Sleepiness, Fatigue

  • 0 helpful marks
strapples
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strapples
Data Quality: 1 star
  • Sex: M
  • Age: 23
Condition: Rett Syndrome 4 additional condition(s)
Quality of Life:
  • Mental: None
  • Physical: Moderate
I am: g
I have:
Rett Syndrome

See strapples's full Baclofen history

Feb 20, 2011 (Started Jan 25, 2008)

  • Perceived effectiveness for Stiffness/Spasticity: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 40 mg Daily

  • 0 helpful marks
Xicana
46552 thumb
Xicana
Sex: F
Data Quality: 3 stars
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: moderate
Swallowing: moderate
Upper limb: mild
Walking: mild
I am: n
I have:
MS

See Xicana's full Baclofen history

Feb 20, 2011 (Started Jan 02, 2005)

  • Perceived effectiveness for Spasticity: Moderate
  • Side Effects: None
  • Adherence: Usually
  • Burden: Not at all
Dosage: Daily

  • 0 helpful marks
Loula120
26380 thumb
Loula120
Sex: F
Data Quality: 2 stars
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: severe
Speech: moderate
Swallowing: moderate
Upper limb: moderate
Walking: severe
I am: n
I have:
MS

See Loula120's full Baclofen history

Feb 19, 2011 (Started Oct 09, 2010)

  • Perceived effectiveness for Stiffness/Spasticity: None
  • Side Effects: None
  • Adherence: Usually
  • Burden: Very
Advice & Tips: It made me feel worse, very unsteady and not myself at all. I have stopped taking it as a result

Nov 15, 2010 (Started Oct 09, 2010)

  • Perceived effectiveness for Stiffness/Spasticity: None
  • Side Effects: Severe
  • Adherence: Always
  • Burden: Somewhat
Advice & Tips: Made me feel much worse and affected my mobiliy very badly so stopped taking it and am now considering alternativers

  • 1 helpful mark
AnninSC
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AnninSC
Sex: F
Data Quality: 2 stars
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: moderate
Swallowing: moderate
Upper limb: moderate
Walking: moderate
I am: g
I have:
MS

See AnninSC's full Baclofen history

Feb 16, 2011 (Started Jul 05, 2010)

  • Perceived effectiveness for Muscle spasms: Major
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: 0.05 mg Daily

  • 0 helpful marks
snwbnny
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snwbnny
Sex: F
Data Quality: 1 star
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: moderate
Swallowing: none
Upper limb: moderate
Walking: moderate
I am: b
I have:
MS

See snwbnny's full Baclofen history

Feb 7, 2011 (Started Jan 17, 2010)

  • Perceived effectiveness for Stiffness/Spasticity: Moderate
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: 30 mg Daily
Advice & Tips: makes me very sleepy, be careful with upping dosage
Side effects: Increased sleepiness

  • 0 helpful marks
wysiwyg
8623 thumb
wysiwyg
Sex: F
Data Quality: 2 stars
Sensation: Moderate
Overall: Mild
Cognition: moderate
Vision: moderate
Speech: mild
Swallowing: mild
Upper limb: mild
Walking: moderate
I am: n
I have:
MS

See wysiwyg's full Baclofen history

Feb 5, 2011 (Started Sep 01, 2008)

  • Perceived effectiveness for Stiffness/Spasticity: Slight
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 20 mg Daily
Advice & Tips: I only take one at night and one in the morning...but the time I notice most spasticity is when I first get out of bed in the morning...so I feel that it really does not benefit me much. I suppose I could set the alarm for a few hours before I get up and take one in advance?!?!? Whatever.
Cost: < $25 monthly
Side effects: Sleepiness, Muscle weakness, Staggering walk

Jun 25, 2010 (Started Sep 01, 2008)

  • Perceived effectiveness for Stiffness/Spasticity: Can’t tell
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 20 mg Daily
Advice & Tips: Don't really notice any difference from before I started taking this drug.
Cost: < $25 monthly
Side effects: Sleepiness, Muscle weakness, Staggering walk

Jan 12, 2009 (Started Sep 01, 2008)

  • Perceived effectiveness for Stiffness/Spasticity: Slight
  • Side Effects: Mild
  • Adherence: Sometimes
  • Burden: A little
Dosage: 30 mg Daily
Advice & Tips: I'm still not sure this is doing much for my spasticity/stiffness. I do know that if I take it too often it makes me really sleepy. I have not really experienced any other side effects that I can think of.
Side effects: Sleepiness, Muscle weakness, Staggering walk

  • 2 helpful marks
burrwarren
693 thumb
burrwarren
Sex: F
Data Quality: 2 stars
Relapse: Moderate
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: severe
Speech: moderate
Swallowing: mild
Upper limb: moderate
Walking: moderate
I am: g
I have:
MS

See burrwarren's full Baclofen history

Feb 1, 2011 (Started Sep 04, 2006)

  • Perceived effectiveness for Improve mobility: Slight
  • Side Effects: Severe
  • Adherence: Always
  • Burden: Not at all
Dosage: 40 mg Daily
Advice & Tips: I had been on baclofen for years and in the past year I had to keep going up on the dose to the max of 80mg and still did not seem to work. It took me 2 months to wean off this drug and started a new muscle relaxent.
Cost: $25-49 monthly

  • 0 helpful marks
grumpy40
28122 thumb
grumpy40
Sex: M
Data Quality: 2 stars
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: moderate
Swallowing: moderate
Upper limb: moderate
Walking: moderate
I am: b
I have:
MS

See grumpy40's full Baclofen history

Jan 31, 2011 (Started Jan 27, 2004)

  • Perceived effectiveness for Stiffness/Spasticity: Moderate
  • Side Effects: Mild
  • Adherence: Usually
  • Burden: A little
Dosage: 80 mg Daily
Cost: < $25 monthly
Side effects: Problems with coordination, Staggering walk, Fatigue, Cramps in feet

Feb 7, 2009 (Started Jan 27, 2004)

  • Perceived effectiveness for Stiffness/Spasticity: Major
  • Side Effects: Mild
  • Adherence: Always
  • Burden: A little
Dosage: 80 mg Daily
Cost: < $25 monthly
Side effects: Problems with coordination, Staggering walk, Fatigue, Cramps in feet

  • 0 helpful marks
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