74 patient evaluations for CoQ10 (CoEnzyme Q10)

NotFinished
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NotFinished
Sex: M
Data Quality: 2 stars
Bulbar: mild
Arms: mild
Chest: mild
Legs: moderate
I am: n
I have:
ALS

See NotFinished's full CoQ10 (CoEnzyme Q10) history

Oct 19, 2009 (Started Feb 01, 2009)

  • Perceived effectiveness for Support heart health: Can’t tell
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 50 mg Daily
Advice & Tips: Originally prescribed by my neurologist, after a muscle biopsy diagnosis of myofibrillar myopathy, I continue to take it for heart health. It seems to be safe and has no apparent side-effects. I have since been diagnosed with MND/Suspected ALS.
Cost: < $25 monthly

  • 1 helpful mark
Russ Conley
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Russ Conley
Sex: M
Data Quality: 1 star
Bulbar: moderate
Arms: moderate
Chest: moderate
Legs: moderate
I have:
PLS

See Russ Conley's full CoQ10 (CoEnzyme Q10) history

Oct 1, 2009 (Started Dec 01, 2007)

  • Perceived effectiveness for Other: None
  • Side Effects: None
  • Adherence: Always
  • Burden: A little
Advice & Tips: stopped because of cost
Cost: $25-49 monthly

  • 0 helpful marks
froginmadison
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froginmadison
Sex: M
Data Quality: 1 star
Bulbar: severe
Arms: severe
Chest: moderate
Legs: severe
I am: n
I have:
ALS

See froginmadison's full CoQ10 (CoEnzyme Q10) history

Sep 23, 2009 (Started Jan 04, 2009)

  • Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): Can’t tell
  • Side Effects: None
  • Adherence: Usually
  • Burden: Somewhat
Dosage: 600 mg Daily

  • 0 helpful marks
eleftherp
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eleftherp
Sex: M
Data Quality: 2 stars
Bulbar: moderate
Arms: moderate
Chest: mild
Legs: moderate
I am: g
I have:
ALS

See eleftherp's full CoQ10 (CoEnzyme Q10) history

Sep 1, 2009 (Started Aug 31, 2007)

  • Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): Slight
  • Side Effects: Mild
  • Adherence: Usually
  • Burden: Not at all
Dosage: 1000 mg Daily
Advice & Tips: φυσικοθεραπεια, ηπατικα ενζυμα, ατροφιες, αναπνευστικη ανεπαρκεια
Cost: $200+ monthly

  • 0 helpful marks
raymoreConnie
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raymoreConnie
Sex: F
Data Quality: 2 stars
Bulbar: none
Arms: moderate
Chest: moderate
Legs: severe
I have:
ALS

See raymoreConnie's full CoQ10 (CoEnzyme Q10) history

Jul 14, 2009 (Started Nov 01, 2006)

  • Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): None
  • Side Effects: None
  • Adherence: Never
  • Burden: Not at all

Oct 14, 2008 (Started Nov 01, 2006)

  • Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): Can’t tell
  • Side Effects: None
  • Adherence: Sometimes
  • Burden: A little
Dosage: 100 mg Daily

  • 0 helpful marks
junkman
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junkman
Sex: M
Data Quality: 1 star
Bulbar: none
Arms: severe
Chest: none
Legs: mild
I have:
ALS

See junkman's full CoQ10 (CoEnzyme Q10) history

Jul 1, 2009 (Started Feb 03, 2008)

  • Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): None
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Not at all
Dosage: 300 mg Daily
Advice & Tips: might be of benifit to someone else
Cost: $25-49 monthly
Side effects: Fear, Loneliness, Crash, Nervousness, Jittery feeling

  • 0 helpful marks
Rudan49
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Rudan49
Sex: M
Data Quality: 0 stars
Off
Mouth/throat: moderate
Arms: mild
Chest: mild
Legs: moderate
I have:
Parkinson's

See Rudan49's full CoQ10 (CoEnzyme Q10) history

Jun 18, 2009 (Started May 09, 2004)

  • Perceived effectiveness for General health: Can’t tell
  • Side Effects: None
  • Adherence: Usually
  • Burden: Somewhat
Dosage: 1200 mg Daily
Advice & Tips: I believe it's been proven effective in 3-4 clinical trials in slowing down the effcts of PD. Not conclusive enough by government's short sighted views. I don't want to get too political here , but we have been deprived of eight years of research by our last governing body. At that time I was strongly advised to take the 1200 mg. of Co-Q10.. My doctor is pretty encouraged by my relatively slow progression. But the clock is ticking.
Cost: $100-199 monthly

  • 4 helpful marks
AcesHigh
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AcesHigh
Sex: M
Data Quality: 2 stars
Bulbar: mild
Arms: moderate
Chest: none
Legs: moderate
I have:
ALS

See AcesHigh's full CoQ10 (CoEnzyme Q10) history

Feb 12, 2009 (Started Jan 26, 2009)

  • Perceived effectiveness for General health: Can’t tell
  • Side Effects: None
  • Adherence: Usually
  • Burden: Not at all
Dosage: 150 mg Daily
Cost: < $25 monthly

  • 0 helpful marks
pepper12
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pepper12
Sex: F
Data Quality: 0 stars
Bulbar: none
Arms: none
Chest: mild
Legs: moderate
I have:
ALS

See pepper12's full CoQ10 (CoEnzyme Q10) history

Jan 11, 2009 (Started Mar 05, 2007)

  • Perceived effectiveness for Fatigue: Can’t tell
  • Side Effects: None
  • Adherence: Usually
  • Burden: Not at all
Dosage: 450 mg Daily
Advice & Tips: I am not sure this has done anything for me. I can't see any difference.
Cost: $25-49 monthly

  • 0 helpful marks
Porky
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Porky
Sex: F
Data Quality: 0 stars
Bulbar: severe
Arms: mild
Chest: none
Legs: moderate
I have:
ALS

See Porky's full CoQ10 (CoEnzyme Q10) history

Jan 10, 2009 (Started Mar 16, 2007)

  • Perceived effectiveness for General health: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Advice & Tips: I have had to stop taking this as I cannot get the liquid form. I cannot swallow so pills are out of the question. The only one I have found was £26 a bottle and it lasted one week. I cannot afford this, I am trying to get it on prescription STILL HAVING PROLEMS GETTING THIS ON PRESCRIPTION SO I AM NOT TAKING IT ANYMORE
Cost: $200+ monthly

  • 0 helpful marks
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