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Carbamazepine Treatment Report

Category: Prescription Drugs

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Generic Name: Carbamazepine

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71 patient evaluations for Carbamazepine

  • philkatie
    Sex: F
    Data Quality: 0 stars
    MS: 30 yrs
    Type: Relapsing-Remitting
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
  • 42660-thumb
  • by philkatie
  • See philkatie's full Carbamazepine history
Purpose: Trigeminal Neuralgia (Started Jun 20, 2006)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Jun 10, 2006   Led_efficacy_1Led_defaultLed_defaultLed_defaultNone SevereSevereSevereSevereSevere AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
  • Icon_thumb_off 0 helpful marks
  • Ramilla
    Sex: M
    Data Quality: 2 stars
    MS: 10 yrs
    Type: Relapsing-Remitting
    Sensation: None
    Overall: None
    Cognition: moderate
    Vision: mild
    Speech: none
    Swallowing: none
    Upper limb: none
    Walking: none
  • 17457-thumb
  • by Ramilla
  • See Ramilla's full Carbamazepine history
Purpose: Muscle spasms (Started Oct 03, 2005)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Nov 10, 2005 50 mg Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major ModerateModerateModerateModerateModerate SometimesSometimesSometimesSometimesSometimes SomewhatSomewhatSomewhatSomewhatSomewhat
Side effects:
Brain fog
Date
Nov 10, 2005
Advice & Tips
I started taking this as a treatment for Muscle Spazms on the whole right side of my body during my second MS attack. It worked almost with the first dose, within a week I was no longer having Muscle Spazms at all, and within 3 weeks I was able to wean the dose down to half tab a day, then I discontinued completely. I now keep a bottle handy in case I have another attack, but so far I have not needed it.
Cost
$25-49 monthly
  • Icon_thumb_off 0 helpful marks
  • tootse
    Data Quality: 0 stars
    • Sex: F
    • Age: 47y
    • Duration: 32 yrs
    PRO survey: PRO 0
    Quality of Life:
    • Mental: Unreported
    • Physical: Unreported
    Surgery type: Vagus Nerve Stimulation (VNS)
    5 seizures
    41 weeks ago
  • Portrait_default_thumb
  • by tootse
  • See tootse's full Carbamazepine history
Purpose: Epilepsy (Started Jul 29, 1999)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
May 14, 2005 600 mg Daily Led_efficacy_2Led_efficacy_2Led_defaultLed_defaultSlight SevereSevereSevereSevereSevere AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
  • Icon_thumb_off 0 helpful marks
  • JesswithMS
    Sex: F
    Data Quality: 2 stars
    MS: 15 yrs
    Type: Relapsing-Remitting
    Sensation: Moderate
    Overall: Mild
    Cognition: mild
    Vision: moderate
    Speech: mild
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
  • 995-thumb
  • by JesswithMS
  • See JesswithMS's full Carbamazepine history
Purpose: Nerve pain (neuralgia) (Started Feb 02, 2002)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Apr 30, 2003 800 mg Daily Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Side effects:
Increased appetite, Mood swings, Dizziness
Date
Apr 30, 2003
Advice & Tips
Take medication as prescribed. If you need to stop medication make sure you wean yourself off of the drug according to your doctor due to causing very severe side effects including seizures.
Cost
< $25 monthly
  • Icon_thumb_off 0 helpful marks
Purposes: Epilepsy, Seizures (grand mal or tonic-clonic), and Seizures (complex partial) (Started Apr 01, 1994)
Date Dosage Epilepsy Perceived effectiveness Seizures (grand mal or tonic-clonic) Perceived effectiveness Seizures (complex partial) Perceived effectiveness Side Effects Adherence Burden
Jan 01, 2003 400 mg Daily Led_efficacy_1Led_defaultLed_defaultLed_default Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_default Led_efficacy_1Led_defaultLed_defaultLed_default NoneNoneNoneNone AlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at all
Date
Jan 01, 2003
Advice & Tips
In doing personal research, I found this medication to be exacerbating my condition and I consulted a new physician. I was told I was correct. I was admitted to an EMU an told I was now having hundreds of seizures per day as a result of having been on the medication for 10 years. This caused me to have to drop out of medical school and leave life long dreams and friends behind.
  • Icon_thumb_off 0 helpful marks
Purpose: Epilepsy (Started Nov 15, 2001)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Jun 15, 2002 400 mg Daily Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate SevereSevereSevereSevereSevere AlwaysAlwaysAlwaysAlwaysAlways VeryVeryVeryVeryVery
  • Icon_thumb_off 0 helpful marks
Purpose: Epilepsy (Started Jan 01, 1982)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
May 10, 2001   Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Date
May 10, 2001
Advice & Tips
It worked very well for a long time. At my request, under my doctor's care, I stopped taking it to see if I could do without medicine for my epilepsy. I could not. He put me back on the tegretol, but I became toxic on it at any dose.
Cost
< $25 monthly
  • Icon_thumb_off 0 helpful marks
  • TomR
    Sex: M
    Data Quality: 3 stars
    MS: 25 yrs
    Type: Secondary Progressive
    Sensation: Moderate
    Overall: Mild
    Cognition: mild
    Vision: moderate
    Speech: mild
    Swallowing: mild
    Upper limb: mild
    Walking: moderate
  • 18887-thumb
  • by TomR
  • See TomR's full Carbamazepine history
Purpose: Other (Started Apr 01, 1994)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Feb 01, 1999   Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate ModerateModerateModerateModerateModerate UsuallyUsuallyUsuallyUsuallyUsually A littleA littleA littleA littleA little
Mar 01, 1994   Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate ModerateModerateModerateModerateModerate SometimesSometimesSometimesSometimesSometimes Not at allNot at allNot at allNot at allNot at all
Side effects:
Hiccups (hiccoughs)
  • Icon_thumb_off 0 helpful marks
  • JJWJ
    Data Quality: 1 star
    • Sex: M
    • Age: 56y
    • Duration: 47 yrs
    PRO survey: PRO 3
    Quality of Life:
    • Mental: Mild
    • Physical: None
    2 seizures
    91 weeks ago
  • Portrait_default_thumb
  • by JJWJ
  • See JJWJ's full Carbamazepine history
Purpose: Epilepsy (Started Apr 16, 1992)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Oct 04, 1996 1200 mg Daily ?Can't tell SevereSevereSevereSevereSevere AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
Side effects:
Difficulty thinking
Date
Oct 04, 1996
Advice & Tips
1) If you request a surgical evaluation and the doctor (in my case, Robert Gumnit, M.D.) refuses to let you out of the hospital forcing you to take more medication, get off of it if you can still think. If you cannot think another person will have to get you off of it and file a lawsuit in less than two years for you to have a chance to have a regular life again. 2) Over twenty percent of mothers I have talked with believe that "doctors know everything" and will not help their children survive. (And about 7000 deaths each year in the 1990s were due to a doctor killing a patient.) Make sure the person watching over you when you try a new medication will take action and not leave you a "zombie" (a nurse who told me I was within two days of death and my Dilantin count was up to 36.6 while getting off of Tegretol following the doctor's orders. 3) When I used over 500 mg/day of Tegretol, I could not think at all. When I got under 200 mg/day, then I regained control of my life. It was three years after my right hip shattered that I learned the Tegretol did that.
  • Icon_thumb_off 0 helpful marks
Purpose: MS (Multiple Sclerosis) (Started Dec 01, 1989)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Dec 29, 1989 100 mg Daily ?Can't tell SevereSevereSevereSevereSevere AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
Date
Dec 29, 1989
Advice & Tips
severe allergic reaction. blisters under the skin on every part of my body. needed i.v. steroids to recover
  • Icon_thumb_off 0 helpful marks
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