Sirolimus Treatment Report

• CCheguis

  Data Quality: 1 star

  • Sex: F
  • Age: 25y
  • Organ: Heart/Lung

  Quality of Life:

  • Social: Moderate
  • Mental: Moderate
  • Physical: Mild

  1. Heart : 2y Transplanted
  2. Lung : 2y Transplanted

• 
• by CCheguis
• See CCheguis's full Sirolimus history

Purpose: Prevent organ rejection (Started Jul 18, 2011)

Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Jun 17, 2012	0.5 mg Daily	?Can't tell	Moderate	Usually	Somewhat

Side effects:

Fluid retention in lower extremities

• 0 helpful marks

• Ginannie

  Data Quality: 1 star

  • Sex: F
  • Age: 59y
  • Organ: Kidney

  Quality of Life:

  • Social: Moderate
  • Mental: Moderate
  • Physical: Mild

  1. Kidney : 14y Transplanted

• 
• by Ginannie
• See Ginannie's full Sirolimus history

Purpose: Transplant rejection prevention (Started Jul 21, 1998)

Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Jul 14, 2010	2 mg Daily	Major	Severe	Always	Not at all

Side effects:

Recurrent hernias

Date

Jul 14, 2010

Advice & Tips

This drug does cause hernias anywhere you have previously been operated on...except of course your knee or foot... I don't mind taking this drug in fact I feel I need it so I won't reject my sisters kidney, since we only shared 1 antigen out of 6...I'm taking care of this kidney and if this is the drug I need to keep it, then I 'll just continue to have my hernias repaired...I've had 8 hernia surgeries to my abdomine and kidney sight in the last 10 yrs...it's been painful and I now have 3 new hernias...I can't lift anything over 10lbs, or bend excessively with out tearing myself...I constantly have to ask friends and neighbors to help me around the house, even carrying in the groceries...I'm sure one of the reasons my ex hubby found a younger woman was so he could scuba dive with her...I can't carry the tanks...and I'm sure he got sick of the surgeries and helping me as well...oh well, win some and lose some...

Cost

$200+ monthly

• 0 helpful marks

• Dee Lorberbaum

  Data Quality: 1 star

  • Sex: F
  • Age: 68y
  • Organ: Heart

  Quality of Life:

  • Social: None
  • Mental: Mild
  • Physical: None

  1. Heart : 9y Transplanted

• 
• by Dee Lorberbaum
• See Dee Lorberbaum's full Sirolimus history

Purpose: Transplant rejection prevention (Started Dec 17, 2003)

Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Mar 17, 2010	1 mg Daily	Major	Moderate	Always	Not at all

Side effects:

Swollen feet

Date

Mar 17, 2010

Advice & Tips

It was a replacement drug for Prograf which I could not tolerate.

• 0 helpful marks

25 additional evaluations for Sirolimus are not currently shared publicly.