3 patient evaluations for Sirolimus

CCheguis
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CCheguis
Data Quality: 1 star
  • Sex: F
  • Age: 27y
  • Organ: Heart/Lung
Quality of Life:
  • Mental: Mild
  • Physical: Mild
  1. Heart : 4y Transplanted
  2. Lung : 4y Transplanted
I have:
Lung Transplant

See CCheguis's full Sirolimus history

Jun 17, 2012 (Started Jul 18, 2011)

  • Perceived effectiveness for Prevent organ rejection: Can’t tell
  • Side Effects: Moderate
  • Adherence: Usually
  • Burden: Somewhat
Dosage: 0.5 mg Daily
Side effects: Fluid retention in lower extremities

  • 0 helpful marks
Ginannie
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Ginannie
Data Quality: 1 star
  • Sex: F
  • Age: 60y
  • Organ: Kidney
Quality of Life:
  • Mental: Moderate
  • Physical: Mild
  1. Kidney : 16y Transplanted
I have:
Kidney Transplant

See Ginannie's full Sirolimus history

Jul 14, 2010 (Started Jul 21, 1998)

  • Perceived effectiveness for Transplant rejection prevention: Major
  • Side Effects: Severe
  • Adherence: Always
  • Burden: Not at all
Dosage: 2 mg Daily
Advice & Tips: This drug does cause hernias anywhere you have previously been operated on...except of course your knee or foot... I don't mind taking this drug in fact I feel I need it so I won't reject my sisters kidney, since we only shared 1 antigen out of 6...I'm taking care of this kidney and if this is the drug I need to keep it, then I 'll just continue to have my hernias repaired...I've had 8 hernia surgeries to my abdomine and kidney sight in the last 10 yrs...it's been painful and I now have 3 new hernias...I can't lift anything over 10lbs, or bend excessively with out tearing myself...I constantly have to ask friends and neighbors to help me around the house, even carrying in the groceries...I'm sure one of the reasons my ex hubby found a younger woman was so he could scuba dive with her...I can't carry the tanks...and I'm sure he got sick of the surgeries and helping me as well...oh well, win some and lose some...
Cost: $200+ monthly
Side effects: Recurrent hernias

  • 0 helpful marks
Dee Lorberbaum
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Dee Lorberbaum
Data Quality: 1 star
  • Sex: F
  • Age: 70y
  • Organ: Heart
Quality of Life:
  • Mental: Mild
  • Physical: None
  1. Heart : 11y Transplanted
I have:
Heart Transplant

See Dee Lorberbaum's full Sirolimus history

Mar 17, 2010 (Started Dec 17, 2003)

  • Perceived effectiveness for Transplant rejection prevention: Major
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Not at all
Dosage: 1 mg Daily
Advice & Tips: It was a replacement drug for Prograf which I could not tolerate.
Side effects: Swollen feet

  • 0 helpful marks
Last updated:
Showing 3 of 3 patient evaluations for Sirolimus