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Cyclosporine Treatment Report

Category: Prescription Drugs

Most Popular Types: Neoral, Gengraf, Sandimmune

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Generic Name: Cyclosporine

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14 patient evaluations for Cyclosporine

Purposes: Prevent organ rejection and Transplant rejection prevention (Started Mar 06, 2002)
Date Dosage Prevent organ rejection Perceived effectiveness Transplant rejection prevention Perceived effectiveness Side Effects Adherence Burden
Mar 04, 2012 200 mg Daily Led_efficacy_2Led_efficacy_2Led_defaultLed_defaultSlight Led_efficacy_2Led_efficacy_2Led_defaultLed_defaultSlight MildMildMildMildMild UsuallyUsuallyUsuallyUsuallyUsually A littleA littleA littleA littleA little
May 05, 2010 200 mg Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major MildMildMildMildMild AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
Side effects:
Hair growth
Date
Mar 04, 2012
Advice & Tips
I started working full-time (70 hours a week!) and I was not as compliant as I had always been. I wasn't taking care of myself and would miss doses due to my hectic schedule. It really caught up with me and now I'm paying the price. Please don't make the same mistake I did; you can't take care of anyone else if you don't take care of yourself first!
Cost
< $25 monthly
Date
May 05, 2010
Advice & Tips
I have been very blessed that I haven't had alot of issues with the meds like some (gum overgrowth for example). I did have alot of cosmetic side-effects in the beginning like acne and hair growth where I didn't want it!
Cost
< $25 monthly
  • Icon_thumb_off 0 helpful marks
Purpose: AIHA (Autoimmune Hemolytic Anemia) (Started Jun 01, 2011)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Mar 03, 2012 150 mg Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major ModerateModerateModerateModerateModerate UsuallyUsuallyUsuallyUsuallyUsually SomewhatSomewhatSomewhatSomewhatSomewhat
Oct 11, 2011 350 mg Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major ModerateModerateModerateModerateModerate UsuallyUsuallyUsuallyUsuallyUsually VeryVeryVeryVeryVery
Date
Oct 11, 2011
Advice & Tips
It is hard to take it every single day, twice a day, at the exact same time. I don't like it.
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Purpose: Prevent organ rejection (Started Aug 22, 2007)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Feb 05, 2012 400 mg Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Date
Feb 05, 2012
Advice & Tips
in four and a half years I only remember two or three times when I was less than A in rejection so obviously it is working.
Cost
< $25 monthly
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  • mooka
    Data Quality: 3 stars
    • Sex: F
    • Age: 66y
    • Organ: Liver/Kidney
    Quality of Life:
    • Mental: None
    • Physical: None
    1. Liver : 8y Transplanted
    2. Kidney : 7y Transplanted
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  • by mooka
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Purpose: Prevent organ rejection (Started Jan 15, 2005)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Jan 11, 2012 200 mg Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major MildMildMildMildMild UsuallyUsuallyUsuallyUsuallyUsually Not at allNot at allNot at allNot at allNot at all
Date
Jan 11, 2012
Advice & Tips
thicker hair
Cost
< $25 monthly
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Purpose: Prevent organ rejection (Started Dec 31, 2005)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Aug 26, 2011 150 mg Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
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Purpose: Prevent organ rejection (Started Mar 12, 2011)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Aug 19, 2011 300 mg Daily Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Side effects:
Depressed mood, Seizures (grand mal or tonic-clonic)
Date
Aug 19, 2011
Advice & Tips
May have been cause of seizures.
Cost
$25-49 monthly
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Purpose: Transplant rejection prevention (Started Jul 07, 1998)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Jul 14, 2010 125 mg Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Side effects:
Tingling of tongue, finger tips and toes, Facial hair excessive, Diarrhea chronic
Date
Jul 14, 2010
Advice & Tips
When I was preparing my body for my transplant, I was taking a large dose of Neoral that gave me migraine headaches, after my transplant, they lowered the dose, that stopped the headaches, but brought on the excessive hair on my face, neck, arms...unbelieveable hair, had to have it waxed off...But as they lowered my dosage more to 150 mg a day the hair went back to normal...another side affect of a large dose was cold water feeling hot on my hands, my fingers tingling, diarrhea , feet numb, tongue numb and wanting chocolate but hating the way it taste...When I lose weight these same (above)symtons will happen and the doctors have to lower my dosage. The Rapamune has helped not reject, but it has a bad side affect of not allowing your body to heal from surgery...I've had 8 hernia surgeries in 10 yrs and I now have 3 new hernias that need repairing, I'm in pain, can't pick up anything over 10 lbs, I can't bend much with out tearing or hurting my abdomin area...it's frustrating, but I don't want to go off it due to rejection possibilities. It doesn't help that I still have my large polyscystic kidneys still in my petite frame along with my healthy large kidney that my sister gave me...I'm too small to have such big kidney pushing on my muscles all the time... Benifit...I'm alive and I'm not on Predisone...
Cost
$200+ monthly
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Purpose: Transplant rejection prevention (Started Jun 21, 2009)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Mar 06, 2010 200 mg Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Date
Mar 06, 2010
Advice & Tips
This medication has caused me to grow more hair and faster. I have more arm hair and my leg hair grows faster and underarm hair. I've gotten some hair on my face, but luckily it's blonde so it's not all that noticeable. I need to get my eyebrows and lip waxed more often.
Cost
< $25 monthly
  • Icon_thumb_off 0 helpful marks
  • rezdoc
    Data Quality: 2 stars
    • Sex: Female
    • Age: 63y
    Condition: Polycystic Kidney 3 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: Good
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  • by rezdoc
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Purpose: Transplant rejection prevention (Started Aug 01, 1995)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Feb 01, 2009 25 mg Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Side effects:
Fluid retention weight gain
Date
Feb 01, 2009
Advice & Tips
1. commit to taking the medicine. The task looks daunting but you can control it. 2. have a system for organizing meds on a daily basis. For example, I have a box with 7 compartments, each of which is divided into four sections. I distribute my meds weekly. No need to rummage through pill bottles. 3. have a mini-system for traveling. 4. Keep abreast of when you will need a refill and make sure you order on time. 5. consider using a mail-order pharmacy. Some meds are less costly and the system is efficient. 6. even if you rely on mail order pharmacy, develop a positive relationship with a local community pharmacist. Some pharmacies now give antibiotics cost-free. I have found that my pharmacist pal will help me out in tight situations. Further, many of them are well-educated and yearn for a chance to inform and assist a patient with multiple medical issues. 7. commit to taking the medicine, no matter what, no matter where. It is the single most important thing that will keep your transplant running. It's the gas in the transplant engine!
Cost
$200+ monthly
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Purpose: FSGS (Started Jan 16, 2008)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Nov 16, 2008 300 mg Daily Led_efficacy_2Led_efficacy_2Led_defaultLed_defaultSlight ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
Side effects:
Shakiness
  • Icon_thumb_off 0 helpful marks
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