14 patient evaluations for Cyclosporine

southern_muslimah
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southern_muslimah
Data Quality: 1 star
  • Sex: F
  • Age: 42y
  • Organ: Kidney
Quality of Life:
  • Mental: Mild
  • Physical: Moderate
  1. Kidney : 12y Transplanted
I have:
Kidney Transplant

See southern_muslimah's full Cyclosporine history

Mar 4, 2012 (Started Mar 06, 2002)

  • Perceived effectiveness for Prevent organ rejection: Slight
  • Perceived effectiveness for Transplant rejection prevention: Slight
  • Side Effects: Mild
  • Adherence: Usually
  • Burden: A little
Dosage: 200 mg Daily
Advice & Tips: I started working full-time (70 hours a week!) and I was not as compliant as I had always been. I wasn't taking care of myself and would miss doses due to my hectic schedule. It really caught up with me and now I'm paying the price. Please don't make the same mistake I did; you can't take care of anyone else if you don't take care of yourself first!
Cost: < $25 monthly
Side effects: Hair growth

May 5, 2010 (Started Mar 06, 2002)

  • Perceived effectiveness for Transplant rejection prevention: Major
  • Side Effects: Mild
  • Adherence: Always
  • Burden: A little
Dosage: 200 mg Daily
Advice & Tips: I have been very blessed that I haven't had alot of issues with the meds like some (gum overgrowth for example). I did have alot of cosmetic side-effects in the beginning like acne and hair growth where I didn't want it!
Cost: < $25 monthly
Side effects: Hair growth

  • 0 helpful marks
sickgirl2011
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sickgirl2011
Data Quality: 1 star
  • Sex: F
  • Age: 20
Condition: AIH Anemia
Quality of Life:
  • Mental: Moderate
  • Physical: None
I am: b
I have:
AIH Anemia

See sickgirl2011's full Cyclosporine history

Mar 3, 2012 (Started Jun 01, 2011)

  • Perceived effectiveness for AIHA (Autoimmune Hemolytic Anemia): Major
  • Side Effects: Moderate
  • Adherence: Usually
  • Burden: Somewhat
Dosage: 150 mg Daily
Cost: < $25 monthly

Oct 11, 2011 (Started Jun 01, 2011)

  • Perceived effectiveness for AIHA (Autoimmune Hemolytic Anemia): Major
  • Side Effects: Moderate
  • Adherence: Usually
  • Burden: Very
Dosage: 350 mg Daily
Advice & Tips: It is hard to take it every single day, twice a day, at the exact same time. I don't like it.

  • 0 helpful marks
bobaronson
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bobaronson
Data Quality: 1 star
  • Sex: M
  • Age: 75y
  • Organ: Heart
Quality of Life:
  • Mental: None
  • Physical: Mild
  1. Heart : 7y Transplanted
I have:
Heart Transplant

See bobaronson's full Cyclosporine history

Feb 5, 2012 (Started Aug 22, 2007)

  • Perceived effectiveness for Prevent organ rejection: Major
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Not at all
Dosage: 400 mg Daily
Advice & Tips: in four and a half years I only remember two or three times when I was less than A in rejection so obviously it is working.
Cost: < $25 monthly

  • 0 helpful marks
mooka
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mooka
Data Quality: 1 star
  • Sex: F
  • Age: 67y
  • Organ: Liver/Kidney
Quality of Life:
  • Mental: None
  • Physical: Mild
  1. Liver : 9y Transplanted
  2. Kidney : 8y Transplanted
I have:
Kidney Transplant

See mooka's full Cyclosporine history

Jan 11, 2012 (Started Jan 15, 2005)

  • Perceived effectiveness for Prevent organ rejection: Major
  • Side Effects: Mild
  • Adherence: Usually
  • Burden: Not at all
Dosage: 200 mg Daily
Advice & Tips: thicker hair
Cost: < $25 monthly

  • 0 helpful marks
Debbar
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Debbar
Data Quality: 1 star
  • Sex: M
  • Age: 74y
  • Organ: Heart
Quality of Life:
  • Mental: None
  • Physical: None
  1. Heart : 8y Transplanted
I have:
Heart Transplant

See Debbar's full Cyclosporine history

Aug 26, 2011 (Started Dec 31, 2005)

  • Perceived effectiveness for Prevent organ rejection: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 150 mg Daily
Cost: < $25 monthly

  • 0 helpful marks
josearamirez
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josearamirez
Data Quality: 1 star
  • Sex: M
  • Age: 49y
  • Organ: Heart
Quality of Life:
  • Mental: Mild
  • Physical: None
  1. Heart : 3y Transplanted
I have:
Heart Transplant

See josearamirez's full Cyclosporine history

Aug 19, 2011 (Started Mar 12, 2011)

  • Perceived effectiveness for Prevent organ rejection: Moderate
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Not at all
Dosage: 300 mg Daily
Advice & Tips: May have been cause of seizures.
Cost: $25-49 monthly
Side effects: Depressed mood, Seizures (grand mal or tonic-clonic)

  • 0 helpful marks
Ginannie
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Ginannie
Data Quality: 1 star
  • Sex: F
  • Age: 60y
  • Organ: Kidney
Quality of Life:
  • Mental: Moderate
  • Physical: Mild
  1. Kidney : 16y Transplanted
I have:
Kidney Transplant

See Ginannie's full Cyclosporine history

Jul 14, 2010 (Started Jul 07, 1998)

  • Perceived effectiveness for Transplant rejection prevention: Major
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Not at all
Dosage: 125 mg Daily
Advice & Tips: When I was preparing my body for my transplant, I was taking a large dose of Neoral that gave me migraine headaches, after my transplant, they lowered the dose, that stopped the headaches, but brought on the excessive hair on my face, neck, arms...unbelieveable hair, had to have it waxed off...But as they lowered my dosage more to 150 mg a day the hair went back to normal...another side affect of a large dose was cold water feeling hot on my hands, my fingers tingling, diarrhea , feet numb, tongue numb and wanting chocolate but hating the way it taste...When I lose weight these same (above)symtons will happen and the doctors have to lower my dosage. The Rapamune has helped not reject, but it has a bad side affect of not allowing your body to heal from surgery...I've had 8 hernia surgeries in 10 yrs and I now have 3 new hernias that need repairing, I'm in pain, can't pick up anything over 10 lbs, I can't bend much with out tearing or hurting my abdomin area...it's frustrating, but I don't want to go off it due to rejection possibilities. It doesn't help that I still have my large polyscystic kidneys still in my petite frame along with my healthy large kidney that my sister gave me...I'm too small to have such big kidney pushing on my muscles all the time... Benifit...I'm alive and I'm not on Predisone...
Cost: $200+ monthly
Side effects: Tingling of tongue, finger tips and toes, Facial hair excessive, Diarrhea chronic

  • 0 helpful marks
meggymegos
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meggymegos
Data Quality: 1 star
  • Sex: F
  • Age: 34y
  • Organ: Lung
Quality of Life:
  • Mental: Mild
  • Physical: None
  1. Lung : 5y Transplanted
I have:
Lung Transplant

See meggymegos's full Cyclosporine history

Mar 6, 2010 (Started Jun 21, 2009)

  • Perceived effectiveness for Transplant rejection prevention: Major
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Not at all
Dosage: 200 mg Daily
Advice & Tips: This medication has caused me to grow more hair and faster. I have more arm hair and my leg hair grows faster and underarm hair. I've gotten some hair on my face, but luckily it's blonde so it's not all that noticeable. I need to get my eyebrows and lip waxed more often.
Cost: < $25 monthly

  • 0 helpful marks
rezdoc
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rezdoc
Data Quality: 1 star
  • Sex: F
  • Age: 65
Condition: Polycystic Kidney 3 additional condition(s)
Quality of Life:
  • Mental: Moderate
  • Physical: Moderate
I am: g
I have:
Polycystic Kidney

See rezdoc's full Cyclosporine history

Feb 1, 2009 (Started Aug 01, 1995)

  • Perceived effectiveness for Transplant rejection prevention: Major
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Not at all
Dosage: 25 mg Daily
Advice & Tips: 1. commit to taking the medicine. The task looks daunting but you can control it. 2. have a system for organizing meds on a daily basis. For example, I have a box with 7 compartments, each of which is divided into four sections. I distribute my meds weekly. No need to rummage through pill bottles. 3. have a mini-system for traveling. 4. Keep abreast of when you will need a refill and make sure you order on time. 5. consider using a mail-order pharmacy. Some meds are less costly and the system is efficient. 6. even if you rely on mail order pharmacy, develop a positive relationship with a local community pharmacist. Some pharmacies now give antibiotics cost-free. I have found that my pharmacist pal will help me out in tight situations. Further, many of them are well-educated and yearn for a chance to inform and assist a patient with multiple medical issues. 7. commit to taking the medicine, no matter what, no matter where. It is the single most important thing that will keep your transplant running. It's the gas in the transplant engine!
Cost: $200+ monthly
Side effects: Fluid retention weight gain

  • 0 helpful marks
renalpenguin
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renalpenguin
Data Quality: 0 stars
  • Sex: F
  • Age: 23y
  • Organ: Kidney
Quality of Life:
  • Mental: Mild
  • Physical: None
  1. Kidney : 4y Transplanted
I have:
Kidney Transplant

See renalpenguin's full Cyclosporine history

Nov 16, 2008 (Started Jan 16, 2008)

  • Perceived effectiveness for FSGS: Slight
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: A little
Dosage: 300 mg Daily
Side effects: Shakiness

  • 0 helpful marks
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Showing 10 of 14 patient evaluations for Cyclosporine