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Natalizumab Treatment Report

Category: Prescription Drugs

Most Popular Types: Tysabri, Antegren

Generic Name: Natalizumab

See patients taking Natalizumab

Sort by: Helpfulness | Most Recent

98 patient evaluations for Natalizumab

jhartless

Sex: F

Data Quality: 1 star

MS: 18 yrs

Type: Secondary Progressive

Sensation: Moderate

Overall: Mild

Cognition: mild

Vision: mild

Speech: mild

Swallowing: mild

Upper limb: mild

Walking: moderate
by jhartless
See jhartless's full Natalizumab history

**Purpose:** MS (Multiple Sclerosis) *(Started Jun 04, 2009)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Jun 01, 2010	300 mg/15 mL Monthly	Moderate	Mild	Always	Not at all

Side effects:: Vaginal inflammation (vaginitis)

Date: Jun 01, 2010
Advice & Tips: My experience has been not nearly as much mind-numbing fatigue or fuzzy-headedness. The only side effect has been minor vaginitis (a known possible side effect) which has been very easily managed. It only seems to occur for a week or so after my monthly infusion.

2 helpful marks

redthings

Sex: F

Data Quality: 0 stars

MS: ? yrs

Type: Secondary Progressive

Sensation: Moderate

Overall: Moderate

Cognition: moderate

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate
by redthings
See redthings's full Natalizumab history

**Purpose:** MS (Multiple Sclerosis) *(Started Jul 10, 2009)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Jun 01, 2010	300 mg/15 mL every 4 weeks	None	None	Always	Not at all

Side effects:: Elevated liver enzymes

Date: Jun 01, 2010
Advice & Tips: Due to my age and progression, I was not a perfect candidate. I'am 58 and my ms is progressing very rapidly.

0 helpful marks

Mom-o-Four

Sex: F

Data Quality: 1 star

MS: 12 yrs

Type: Relapsing-Remitting

Sensation: Mild

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: none

Swallowing: none

Upper limb: none

Walking: moderate
by Mom-o-Four
See Mom-o-Four's full Natalizumab history

**Purpose:** MS (Multiple Sclerosis) *(Started Mar 05, 2009)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Jun 01, 2010	300 mg/15 mL every 4 weeks	None	Mild	Always	Somewhat

Side effects:: Headaches, Generalized muscle aches, Nausea, Blurry vision, Acid reflux, Cognitive impairment, Heartburn, Fatigue, Fatigue

Date: Jun 01, 2010
Advice & Tips: I had no new lesions while on the medication, but I developed some frightening new symptoms during the last months...similar to PML. An MRI scan apparantly looks fine, and my docs want me to resume Tysabri, but I am resistant. They cannot answer why my vision is blurring at night, the numbness on my left side or the on-and-off feeling that the ground is tilting.
Cost: < $25 monthly

1 helpful mark

Mom-o-Four

Sex: F

Data Quality: 1 star

MS: 12 yrs

Type: Relapsing-Remitting

Sensation: Mild

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: none

Swallowing: none

Upper limb: none

Walking: moderate
by Mom-o-Four
See Mom-o-Four's full Natalizumab history

**Purpose:** MS (Multiple Sclerosis) *(Started Mar 30, 2009)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Jun 01, 2010	300 mg/15 mL Monthly	None	Mild	Always	Somewhat

Date: Jun 01, 2010
Advice & Tips: I developed heartburn and acid reflux while taking Natalizumab. I didn't know what is what at first, but antacids help. I also felt sore, heavy, sluggish and cognitively impairded for a few days following infusions, but my CNP presribed 10 mg Prednisone to be taken following the infusion and one more 10 mg pill two days after the infusion. It pretty much took care of the problem. The greatest impact on my life was the time it took out of my day during the infusion because I had to arrange my work around the infusion. The fear of PML has also plagued me through all 16 infusions. There has been no improvement in my symptoms, although the most recent MRIs showed no new lesions.
Cost: < $25 monthly

1 helpful mark

oknowwhat

Sex: F

Data Quality: 2 stars

MS: 14 yrs

Mentor

Type: Secondary Progressive

Sensation: None

Overall: Mild

Cognition: mild

Vision: mild

Speech: none

Swallowing: none

Upper limb: moderate

Walking: moderate
by oknowwhat
See oknowwhat's full Natalizumab history

**Purpose:** MS (Multiple Sclerosis) *(Started Aug 02, 2009)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
May 26, 2010	300 mg/15 mL every 4 weeks	Major	None	Always	Not at all

1 helpful mark

Tilt

Sex: M

Data Quality: 2 stars

MS: 8 yrs

Type: Relapsing-Remitting

Sensation: Moderate

Overall: Moderate

Cognition: moderate

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate
by Tilt
See Tilt's full Natalizumab history

**Purpose:** MS (Multiple Sclerosis) *(Started Jan 14, 2010)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
May 11, 2010	300 mg/15 mL every 4 weeks	Slight	Moderate	Always	Not at all

Date: May 11, 2010
Advice & Tips: Stiffness and soreness in joints is horrible
Cost: $50-99 monthly

0 helpful marks

gilless10

Sex: F

Data Quality: 2 stars

MS: 9 yrs

Type: Secondary Progressive

Sensation: Moderate

Overall: Moderate

Cognition: moderate

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate
by gilless10
See gilless10's full Natalizumab history

**Purposes:** Fatigue, Walking problems, and Visual aura *(Started Jan 04, 2010)*
Date	Dosage	Fatigue Perceived effectiveness	Walking problems Perceived effectiveness	Visual aura Perceived effectiveness	Side Effects	Adherence	Burden
Apr 16, 2010	300 mg/15 mL every 4 weeks

Date: Apr 16, 2010
Advice & Tips: Taking medication is very simple. No visable side effects. I do not see any improvement in my symtoms. No impact on my daily living.
Cost: < $25 monthly

1 helpful mark

nutsylori

Sex: F

Data Quality: 1 star

MS: 18 yrs

Type: Relapsing-Remitting

Relapse: Mild

Sensation: Moderate

Overall: Moderate

Cognition: moderate

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate
by nutsylori
See nutsylori's full Natalizumab history

**Purpose:** MS (Multiple Sclerosis) *(Started Aug 07, 2008)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Apr 15, 2010	300 mg/15 mL Monthly	Slight	None	Always	Not at all

Date: Apr 15, 2010
Advice & Tips: i started into the 2nd yr of taking this med, when all the reports of pml started becoming more frequently, it was decided by myself and dr to discontinue till further notice of med.

0 helpful marks

ldykss

Sex: F

Data Quality: 0 stars

MS: 15 yrs

Type: Secondary Progressive

Sensation: Mild

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: mild

Swallowing: moderate

Upper limb: mild

Walking: moderate
by ldykss
See ldykss's full Natalizumab history

**Purpose:** MS (Multiple Sclerosis) *(Started Apr 02, 2007)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Apr 12, 2010	300 mg/15 mL Monthly	?Can't tell	None	Always	A little

Date: Apr 12, 2010
Advice & Tips: I take this monthly. I really have not noticed any change in my symptoms but last MRI had I was stable.

2 helpful marks

et3nick

Sex: M

Data Quality: 2 stars

MS: 7 yrs

Type: Relapsing-Remitting

Sensation: None

Overall: None

Cognition: mild

Vision: none

Speech: none

Swallowing: none

Upper limb: none

Walking: mild
by et3nick
See et3nick's full Natalizumab history

**Purpose:** MS (Multiple Sclerosis) *(Started Nov 04, 2009)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Mar 28, 2010	300 mg/15 mL every 4 weeks	Major	None	Always	A little

Date: Mar 28, 2010
Advice & Tips: I have had no problems taking this medicine. the only annoyance is the one hour drive once a month to receive my injection. Any annoyance from the drive is negated by the outstanding effect this medicine has had for me. as of March 2010 (5 shots) I am no longer taking any of my other medicines. I have not has any single MS symptom and have actually felt more like what I felt like prior to MS. I just wish it would last forever so I will not have to be Dependant on medications again.
Cost: < $25 monthly

2 helpful marks

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