103 patient evaluations for Natalizumab

mislissa1029
14556-thumb
mislissa1029
Sex: F
Data Quality: 1 star
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: mild
Swallowing: mild
Upper limb: moderate
Walking: moderate
I am: n
I have:
MS

See mislissa1029's full Natalizumab history

Apr 1, 2011 (Started Mar 09, 2009)

  • Perceived effectiveness for Multiple Sclerosis: Major
  • Side Effects: Mild
  • Adherence: Usually
  • Burden: Very
Dosage: 300 mg/15 mL every 4 weeks
Cost: < $25 monthly

Oct 10, 2009 (Started Mar 09, 2009)

  • Perceived effectiveness for Multiple Sclerosis: Slight
  • Side Effects: None
  • Adherence: Sometimes
  • Burden: Very
Dosage: 300 mg/15 mL every 4 weeks
Advice & Tips: I'd love to experience the fullness of this MS med since I have had only 3 monthly treatments since March '09. <------ Going on 7 months w/ only 3 administered infusion therapies. **rolls eyes/shakes head** {Medicaid is willing to pay its share of $18. But only after Medicare stops giving my doctor's office & myself a hard time & pay the balance. Now the pharmaceutical company is stepping in b/c they know MS meds need to be consistent.}
Cost: < $25 monthly

  • 0 helpful marks
yizbit
Portrait_default_thumb
yizbit
Sex: F
Data Quality: 0 stars
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: moderate
Swallowing: mild
Upper limb: moderate
Walking: moderate
I am: n
I have:
MS

See yizbit's full Natalizumab history

Mar 30, 2011 (Started Mar 17, 2011)

  • Perceived effectiveness for Multiple Sclerosis: Major
  • Side Effects: None
  • Adherence: Never
  • Burden: Very
Dosage: 300 mg/15 mL every 4 weeks
Cost: < $25 monthly
Side effects: Headaches

  • 0 helpful marks
a-non-mouse
17881-thumb
a-non-mouse
Sex: M
Data Quality: 2 stars
Sensation: Moderate
Overall: Mild
Cognition: mild
Vision: none
Speech: none
Swallowing: none
Upper limb: mild
Walking: severe
I am: g
I have:
MS

See a-non-mouse's full Natalizumab history

Mar 22, 2011 (Started Aug 29, 2007)

  • Perceived effectiveness for Multiple Sclerosis: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 300 mg/15 mL every 4 weeks
Cost: $200+ monthly

Feb 27, 2010 (Started Aug 29, 2007)

  • Perceived effectiveness for Multiple Sclerosis: Major
  • Side Effects: Mild
  • Adherence: Always
  • Burden: A little
Dosage: 300 mg/15 mL every 4 weeks
Cost: $200+ monthly

  • 1 helpful mark
DebbieBren
49481-thumb
DebbieBren
Sex: F
Data Quality: 2 stars
Relapse: Moderate
Sensation: Moderate
Overall: Mild
Cognition: moderate
Vision: none
Speech: mild
Swallowing: none
Upper limb: moderate
Walking: moderate
I am: g
I have:
MS

See DebbieBren's full Natalizumab history

Mar 15, 2011 (Started Jan 15, 2008)

  • Perceived effectiveness for Multiple Sclerosis: Major
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Not at all
Advice & Tips: Tysabri was wonderful for my MS for two years, then I had a major reaction and neuro. suggested I stop the treatment.
Cost: < $25 monthly

Feb 1, 2011 (Started Jan 15, 2008)

  • Perceived effectiveness for Multiple Sclerosis: Slight
  • Side Effects: Severe
  • Adherence: Usually
  • Burden: A little
Dosage: Monthly

  • 0 helpful marks
life well lived
3422-thumb
life well lived
Sex: M
Data Quality: 3 stars
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: moderate
Swallowing: moderate
Upper limb: moderate
Walking: mild
I am: g
I have:
MS

See life well lived's full Natalizumab history

Jan 21, 2011 (Started Jun 01, 2007)

  • Perceived effectiveness for Multiple Sclerosis: Moderate
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Somewhat
Dosage: 300 mg/15 mL Monthly
Advice & Tips: After I started taking this drug, I actually regained some function. I have been able to work myself back upto running 10k's. It has been a blessing. For more than a year, the day after the infussion was a great MS day. It was when I would feel my best. By the end of the cycle, I felt the withdrawl. Years later, the energy no longer really noticably spikes or dips. For the last few months, I have had increasing pains in my lower arms to my fingers with most recent pains in my fingers. Odd. Looking at list of possible side effects, I see joint pain listed. I can't say with any certainty the Tysabri causes the joint pain. It is but a guess...still, it is a concern I have that years of use may have a cumulative effect.
Cost: $50-99 monthly
Side effects: Pain in hands

  • 0 helpful marks
Mary Beth
767-thumb
Mary Beth
Sex: F
Data Quality: 2 stars
Sensation: Moderate
Overall: Mild
Cognition: mild
Vision: mild
Speech: mild
Swallowing: mild
Upper limb: mild
Walking: severe
I am: n
I have:
MS

See Mary Beth's full Natalizumab history

Jan 15, 2011 (Started Jan 18, 2010)

  • Perceived effectiveness for Multiple Sclerosis: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 300 mg/15 mL every 4 weeks
Cost: < $25 monthly

  • 0 helpful marks
Oneida
11088-thumb
Oneida
Sex: M
Data Quality: 2 stars
Sensation: None
Overall: None
Cognition: mild
Vision: none
Speech: none
Swallowing: none
Upper limb: none
Walking: moderate
I am: n
I have:
MS

See Oneida's full Natalizumab history

Nov 11, 2010 (Started May 26, 2009)

  • Perceived effectiveness for Multiple Sclerosis: Slight
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: A little
Dosage: 300 mg/15 mL every 4 weeks
Advice & Tips: clicking noise in ears was very bothersome for my sleep
Cost: $50-99 monthly
Side effects: Myoclonus

May 13, 2010 (Started May 26, 2009)

  • Perceived effectiveness for Multiple Sclerosis: Can’t tell
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 300 mg/15 mL every 4 weeks
Cost: $50-99 monthly
Side effects: Myoclonus

  • 0 helpful marks
Buddy'sMom
16188-thumb
Buddy'sMom
Sex: F
Data Quality: 2 stars
Sensation: Moderate
Overall: Mild
Cognition: mild
Vision: mild
Speech: mild
Swallowing: none
Upper limb: moderate
Walking: severe
I am: g
I have:
MS

See Buddy'sMom's full Natalizumab history

Nov 2, 2010 (Started Jun 01, 2007)

  • Perceived effectiveness for Multiple Sclerosis: Moderate
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 300 mg/15 mL every 4 weeks
Advice & Tips: recommend - follow up with jcv tests
Cost: $25-49 monthly

  • 0 helpful marks
ylem
3873-thumb
ylem
Sex: F
Data Quality: 2 stars
Sensation: Moderate
Overall: Mild
Cognition: mild
Vision: mild
Speech: none
Swallowing: none
Upper limb: mild
Walking: moderate
I am: b
I have:
MS

See ylem's full Natalizumab history

Oct 20, 2010 (Started Jul 23, 2008)

  • Perceived effectiveness for Multiple Sclerosis: Slight
  • Side Effects: None
  • Adherence: Always
  • Burden: Very
Dosage: Monthly

Sep 28, 2008 (Started Jul 23, 2008)

  • Perceived effectiveness for Multiple Sclerosis: Slight
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: Monthly

  • 0 helpful marks
KwazyKelli
22827-thumb
KwazyKelli
Sex: F
Data Quality: 0 stars
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: mild
Speech: mild
Swallowing: moderate
Upper limb: moderate
Walking: severe
I am: b
I have:
MS

See KwazyKelli's full Natalizumab history

Sep 21, 2010 (Started Aug 19, 2009)

  • Perceived effectiveness for Multiple Sclerosis: Moderate
  • Side Effects: Severe
  • Adherence: Always
  • Burden: Not at all
Dosage: 300 mg/15 mL every 4 weeks
Advice & Tips: became much more disabled while on it. Tested for PML, antibodies,new lesions,active lesions. All tests came back "normal". Was getting much better from a relapse before starting tysabri. once tysabri was in system,worsening disability started and progressed throughout the year of being on it.
Cost: < $25 monthly
Side effects: Weakness in hip, Weakness in left leg, Weakness in legs, Weakness in legs

  • 0 helpful marks
Last updated:
Showing 10 of 103 patient evaluations for Natalizumab