119 patient evaluations for Carbidopa-Levodopa

archaeologist
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archaeologist
Sex: M
Data Quality: 3 stars
On
Mouth/throat: none
Arms: mild
Chest: none
Legs: mild
I am: g
I have:
Parkinson's

See archaeologist's full Carbidopa-Levodopa history

Dec 19, 2014 (Started May 15, 2013)

  • Perceived effectiveness for Parkinson's Disease: Major
  • Side Effects: None
  • Adherence: Usually
  • Burden: Somewhat
Dosage: 3 x 25 mg-100 mg Daily
Cost: $25-49 monthly

Oct 17, 2014 (Started May 15, 2013)

  • Perceived effectiveness for Parkinson's Disease: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Somewhat
Dosage: 3 x 25 mg-100 mg Daily
Advice & Tips: Timing is important, I is taking them every 8 hours and that is bad. Now I'm taking them about every six hours during the day and I don't get tired and have cramps in the evening. I still wake up OK. I use a pill box, 7x3 to help remember.
Cost: $25-49 monthly

  • 0 helpful marks
reikihh
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reikihh
Sex: F
Data Quality: 3 stars
On
Mouth/throat: mild
Arms: mild
Chest: mild
Legs: mild
I am: b
I have:
Parkinson's

See reikihh's full Carbidopa-Levodopa history

Nov 10, 2014 (Started Jun 30, 2004)

  • Perceived effectiveness for Parkinson's Disease: Moderate
  • Side Effects: None
  • Adherence: Usually
  • Burden: A little
Dosage: 25 mg-100 mg Three times daily
Advice & Tips: This formula (immediate release) was given so I can see if I can get more carb/levo into me for better symptom control, but the problem with this formula is that I have a hard time remembering the noon dose. I am having an easier time remembering it now that I am retired, but I still forget sometimes. So far I MAY have experienced improvement in symptoms: I occasionally get relief from my back pain. I think the pain is caused by the postural changes with PD & anything I do to correct posture relieves the pain. This 1/2 pill taken 3x a day gives me more levo than I was getting with the CR 50/200 1/2 daily. Just that small amt more seems to have helped me stand up better which relieves the pain.
Cost: < $25 monthly

  • 0 helpful marks
Tulabee
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Tulabee
Sex: F
Data Quality: 3 stars
On
Mouth/throat: mild
Arms: mild
Chest: mild
Legs: mild
I am: n
I have:
Parkinson's

See Tulabee's full Carbidopa-Levodopa history

Nov 8, 2014 (Started Jul 27, 2011)

  • Perceived effectiveness for Parkinson's Disease: Moderate
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: A little
Dosage: As needed
Advice & Tips: It's the fall/winter season, and I made a med change. IT coincides with the daylight getting shorter. About mid-to late Sept I increase the Cymbalta(depression) from 60mg to 120mg. This seems to affect how the L-dopa is metabolized. For a few weeks I was taking 1 whole tablet (100/25), every 5-6 hrs. The 0.75 dose wasn't doing its work. I also start on modafinil for alertness. Due to Rx screw up I wasn't able to start in Oct, but had to start in Nov. I was maintaining, but now I feel better with the modafinil. Like someone turning up the TV brightness switch just a little bit. But now I think I am very sensitive to the amount of L-dopa. I will work it out.
Cost: < $25 monthly
Side effects: Dyskinesia

Apr 18, 2013 (Started Jul 27, 2011)

  • Perceived effectiveness for Parkinson's Disease: Moderate
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Somewhat
Dosage: As needed
Advice & Tips: This survey doesn't account for the way i take L-dopa. I started out at 1 tablet every 6 hours. Now I am at 0.75 tablet every 4 hours. So this means i am taking a smaller dose at more frequent intervals as Parkinson's progresses. If I take more than needed, the dyskinesia starts. If I go too long without a dose (usually sitting at work or computer), forget to take it, hand tremor starts.
Cost: < $25 monthly
Side effects: Dyskinesia

  • 0 helpful marks
dixie pixie
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dixie pixie
Sex: F
Data Quality: 2 stars
On
Mouth/throat: mild
Arms: mild
Chest: mild
Legs: mild
I am: g
I have:
Parkinson's

See dixie pixie's full Carbidopa-Levodopa history

Jul 30, 2014 (Started Jun 10, 2008)

  • Perceived effectiveness for Parkinson's Disease: Moderate
  • Side Effects: None
  • Adherence: Usually
  • Burden: Not at all
Dosage: 2 x 25 mg-250 mg Daily
Cost: < $25 monthly

  • 0 helpful marks
mahendra
50102 thumb
mahendra
Sex: M
Data Quality: 1 star
On
Mouth/throat: mild
Arms: mild
Chest: mild
Legs: mild
I am: g
I have:
Parkinson's

See mahendra's full Carbidopa-Levodopa history

Jul 10, 2014 (Started Jul 10, 1995)

  • Perceived effectiveness for Parkinson's Disease: Major
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: A little
Dosage: 5 x 25 mg-100 mg Daily
Advice & Tips: do not start this treatment early if you are diaognise for pd.================
Cost: $50-99 monthly

  • 0 helpful marks
holmesa
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holmesa
Sex: F
Data Quality: 1 star
On
Mouth/throat: none
Arms: mild
Chest: mild
Legs: mild
I am: b
I have:
Parkinson's

See holmesa's full Carbidopa-Levodopa history

Jun 30, 2014 (Started Sep 16, 2011)

  • Perceived effectiveness for Parkinson's Disease: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 100 mg Daily
Advice & Tips: Working with PD nurse & consultant over time dosage has changed to better manage symptoms. I now take 3x 25/100, 2x half Sinemet cr & 3x 12.5/50 to chew as a rescue remedy as needed.
Cost: < $25 monthly

Feb 26, 2013 (Started Sep 16, 2011)

  • Perceived effectiveness for Parkinson's Disease: Moderate
  • Side Effects: Mild
  • Adherence: Always
  • Burden: A little
Dosage: 75 mg Daily
Cost: < $25 monthly

Sep 23, 2012 (Started Sep 16, 2011)

  • Perceived effectiveness for Parkinson's Disease: Moderate
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: A little
Dosage: 75 mg Daily
Advice & Tips: Timing is important as wearing off can impact on a whole day's activities. I very gradually add a little more time between doses so that I can quickly revert to previous timing. I seem to have more frequent, pronounced & longer lasting tremor. I have also started 'feezing' during walkng as well as at the start & during turning. I am slowing right down, stiff & sore joints & consequent fatigue.
Cost: < $25 monthly

Mar 22, 2012 (Started Sep 16, 2011)

  • Perceived effectiveness for Parkinson's Disease: Moderate
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: 75 mg Daily
Cost: < $25 monthly

Dec 10, 2011 (Started Sep 16, 2011)

  • Perceived effectiveness for Parkinson's Disease: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 75 mg Daily
Cost: < $25 monthly

Nov 22, 2011 (Started Sep 16, 2011)

  • Perceived effectiveness for Parkinson's Disease: Moderate
  • Side Effects: Mild
  • Adherence: Always
  • Burden: A little
Dosage: 75 mg Daily
Cost: < $25 monthly

Nov 4, 2011 (Started Sep 16, 2011)

  • Perceived effectiveness for Parkinson's Disease: Moderate
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: A little
Dosage: 75 mg Daily
Cost: < $25 monthly

  • 0 helpful marks
palecarl
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palecarl
Sex: F
Data Quality: 2 stars
On
Mouth/throat: none
Arms: mild
Chest: none
Legs: mild
I am: g
I have:
Parkinson's

See palecarl's full Carbidopa-Levodopa history

Jun 19, 2014 (Started May 15, 2012)

  • Perceived effectiveness for Parkinson's Disease: Moderate
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Not at all
Dosage: 3 mg Daily

  • 0 helpful marks
ProfGumbySan
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ProfGumbySan
Sex: M
Data Quality: 3 stars
On
Mouth/throat: mild
Arms: mild
Chest: mild
Legs: mild
I am: g
I have:
Parkinson's

See ProfGumbySan's full Carbidopa-Levodopa history

Jun 1, 2014 (Started Aug 11, 2011)

  • Perceived effectiveness for Parkinson's Disease: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: A little
Dosage: 7 x 25 mg-250 mg Daily
Cost: < $25 monthly

Nov 6, 2011 (Started Aug 11, 2011)

  • Perceived effectiveness for Parkinson's Disease: Major
  • Side Effects: None
  • Adherence: Usually
  • Burden: Somewhat
Dosage: 6 x 25 mg-250 mg Daily
Cost: < $25 monthly

  • 0 helpful marks
StrkL
16679 thumb
StrkL
Sex: M
Data Quality: 3 stars
Off
Mouth/throat: mild
Arms: none
Chest: none
Legs: mild
I am: g
I have:
Parkinson's

See StrkL's full Carbidopa-Levodopa history

May 11, 2014 (Started Jun 12, 2007)

  • Perceived effectiveness for Parkinson's Disease: Major
  • Side Effects: Mild
  • Adherence: Always
  • Burden: A little
Dosage: 6 x 25 mg-100 mg Daily
Advice & Tips: As of today, I am still taking six sinemet daily, two pills at a time. Even when I am off, I can write and type almost as well as ever. And even when off, I have no tremor (unless I try to walk, then my right hand shakes.) And when I am on, my walking is generally normal. (I sometimes have problems with freezing when on.) My balance is also much better when I'm on. When off, I have difficulty standing on one leg, but I can do so for a minute or more when on.
Cost: < $25 monthly
Side effects: Dyskinesia, Drowsiness

Sep 19, 2010 (Started Jun 12, 2007)

  • Perceived effectiveness for Parkinson's Disease: Major
  • Side Effects: Mild
  • Adherence: Always
  • Burden: A little
Dosage: 6 x 25 mg-100 mg Daily
Advice & Tips: At my most recent neurologist visit, she told me I had dyskinesias. My wife has also noticed them. I'm not sure how long I"ve had them, probably a few months. At my previous visit, three months ago (when I saw the Nurse Practitioner, not the neurologist), the Nurse did not mention them. They are quite mild - at least mild enough that I don't notice. My neurologist has suggested I take more Amantadine to see if this reduces them.
Cost: < $25 monthly
Side effects: Dyskinesia, Drowsiness

Mar 29, 2009 (Started Jun 12, 2007)

  • Perceived effectiveness for Parkinson's Disease: Major
  • Side Effects: Mild
  • Adherence: Always
  • Burden: A little
Dosage: 6 x 25 mg-100 mg Daily
Advice & Tips: The first neurologist I saw, in March 2006, had me try a couple of sinemet per day. They had absolutely no effect. The second neurologist I saw, in April 2007, had me take a half tablet per day for the first week, one tablet daily the second, one and a half daily the third, and so on until I was taking four daily after eight weeks. It had no effect until the fifth week, when I started taking two and a half tablets daily. At that time, it improved my eating, dressing, and showering, but did not improve my writing or typing or walking. Later in 2007 I went to five sinemet daily, with little change. During the summer of 2008 I went to six, and my writing and typing essentially became normal. Even when off I’m able to write and type almost as well as ever. And I have no tremor. My walking improved dramatically as well – I could walk a mile or more first thing in the morning after taking my medication. But I would be off a substantial part of the day. I was taking one pill at 5 AM, 9 AM, noon, 3 PM, 6 PM, and 9 PM. In the fall of 2008 I went to taking two pills at 5 AM, 8 AM, and 1 PM. This improved my walking considerably.
Cost: < $25 monthly
Side effects: Dyskinesia, Drowsiness

  • 0 helpful marks
princess adventurous
Portrait default thumb
princess adventurous
Sex: F
Data Quality: 0 stars
On
Mouth/throat: mild
Arms: mild
Chest: mild
Legs: mild
I am: g
I have:
Parkinson's

See princess adventurous's full Carbidopa-Levodopa history

Feb 14, 2014 (Started Jul 01, 2011)

  • Perceived effectiveness for Parkinson's Disease: Moderate
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 150 mg Daily
Cost: $50-99 monthly

  • 0 helpful marks
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