2 patient evaluations for ALS Phase 3 Study Ceftriaxone

moolaw
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moolaw
Sex: F
Data Quality: 0 stars
Bulbar: moderate
Arms: severe
Chest: moderate
Legs: severe
I am: b
I have:
ALS

See moolaw's full ALS Phase 3 Study Ceftriaxone history

Dec 20, 2010 (Started Oct 11, 2010)

  • Perceived effectiveness for Participate in clinical trial: Can’t tell
  • Side Effects: Mild
  • Adherence: Usually
  • Burden: Somewhat
Dosage: 2 mg Daily
Advice & Tips: It's no problem for me, but my husband has so much to do that he forgets to thaw the medicine sometimes.
Cost: < $25 monthly
Side effects: Lymphocytopenia (low lymphocytes), Itching and rash from patch adhesive

Nov 20, 2010 (Started Oct 11, 2010)

  • Perceived effectiveness for Participate in clinical trial: None
  • Side Effects: Moderate
  • Adherence: Usually
  • Burden: Somewhat
Dosage: 2 mg Daily
Advice & Tips: I feel like I'm getting worse more quickly, but don't know whether it is the study drug or riluzole.
Cost: < $25 monthly
Side effects: Lymphocytopenia (low lymphocytes), Itching and rash from patch adhesive

Oct 21, 2010 (Started Oct 11, 2010)

  • Perceived effectiveness for Participate in clinical trial: Can’t tell
  • Side Effects: None
  • Adherence: Always
  • Burden: A little
Dosage: 4 g Daily
Advice & Tips: I was afraid that the procedures for administering the drug would be difficult, but it isn't too hard for my husband to do and it is easy to schedule early in the morning and then before bed. I feel good about participating in a trial.
Cost: < $25 monthly
Side effects: Lymphocytopenia (low lymphocytes), Itching and rash from patch adhesive

  • 0 helpful marks
7573
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7573
Sex: F
Data Quality: 1 star
Bulbar: mild
Arms: mild
Chest: mild
Legs: moderate
I am: g
I have:
ALS

See 7573's full ALS Phase 3 Study Ceftriaxone history

Apr 29, 2011 (Started Oct 22, 2010)

  • Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): Can’t tell
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 1 other Daily
Advice & Tips: I take this treatment twice a day. People tell me that my ALS is moving slower.
Cost: < $25 monthly

Mar 4, 2011 (Started Oct 22, 2010)

  • Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): Can’t tell
  • Side Effects: None
  • Adherence: Always
  • Burden: A little
Dosage: 1 other Daily
Advice & Tips: I think this is a good study. We set a time each morning to take the medication, and it is no problem for us. I feel I swallow better when I am on the medication. Taking this medication is an adjustment to my life, but so is ALS and if this is going help me, I'll do it.
Cost: < $25 monthly

  • 0 helpful marks
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Showing 2 of 2 patient evaluations for ALS Phase 3 Study Ceftriaxone