Purpose:ALS (Amyotrophic Lateral Sclerosis)(Started Oct 22, 2010)
Date
Dosage
Perceived effectiveness
Side Effects
Adherence
Burden
Apr 29, 2011
1 other
Daily
?Can't tell
None
Always
Not at all
Mar 04, 2011
1 other
Daily
?Can't tell
None
Always
A little
Date
Apr 29, 2011
Advice & Tips
I take this treatment twice a day. People tell me that my ALS is moving slower.
Cost
< $25 monthly
Date
Mar 04, 2011
Advice & Tips
I think this is a good study. We set a time each morning to take the medication, and it is no problem for us. I feel I swallow better when I am on the medication. Taking this medication is an adjustment to my life, but so is ALS and if this is going help me, I'll do it.
Purpose:Participate in clinical trial(Started Oct 11, 2010)
Date
Dosage
Perceived effectiveness
Side Effects
Adherence
Burden
Dec 20, 2010
2 mg
Daily
?Can't tell
Mild
Usually
Somewhat
Nov 20, 2010
2 mg
Daily
None
Moderate
Usually
Somewhat
Oct 21, 2010
4 g
Daily
?Can't tell
None
Always
A little
Side effects:
Lymphocytopenia (low lymphocytes), Itching and rash from patch adhesive
Date
Dec 20, 2010
Advice & Tips
It's no problem for me, but my husband has so much to do that he forgets to thaw the medicine sometimes.
Cost
< $25 monthly
Date
Nov 20, 2010
Advice & Tips
I feel like I'm getting worse more quickly, but don't know whether it is the study drug or riluzole.
Cost
< $25 monthly
Date
Oct 21, 2010
Advice & Tips
I was afraid that the procedures for administering the drug would be difficult, but it isn't too hard for my husband to do and it is easy to schedule early in the morning and then before bed. I feel good about participating in a trial.
Cost
< $25 monthly
0 helpful marks
13 additional evaluations
for
ALS Phase 3 Study Ceftriaxone
are
not currently shared publicly.
Updating results…
0 helpful marks
