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20 patient evaluations for Physical Therapy (PT) with a burden rating of A littleA littleA littleA littleA little

Purposes: Parkinson's Disease and Dystonia (Started Jun 01, 2009)
Date Dosage Parkinson's Disease Perceived effectiveness Dystonia Perceived effectiveness Side Effects Adherence Burden
Sep 25, 2012 30 min Monthly Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate MildMildMildMildMild AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
Dec 01, 2011 30 min Monthly Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate ModerateModerateModerateModerateModerate UsuallyUsuallyUsuallyUsuallyUsually SomewhatSomewhatSomewhatSomewhatSomewhat
Date
Sep 25, 2012
Advice & Tips
I follow a specific program to reduce my dystonia. See http://home.earthlink.net/~strkl/dystonia.html for it.
Cost
< $25 monthly
Date
Dec 01, 2011
Advice & Tips
My dystonia is worse in my left foot. It becomes pigeon-toed (pointing inward), and tends to twist so that I land on the outside of my foot when walking. In fact, I need to be careful that my ankle doesn't roll over (twisting my ankle). If I concentrate on landing more to the inside of my foot, and trying to keep my foot straight, I can continue to walk for a while. I've worked up to the point where I can walk for a mile or more this way. And I've found that I seem to have built up resistance to dystonia. I can exercise at higher intensity, or for a longer time, before getting dystonia. It used to be that once I went into dystonia, I would have to stop walking or running and finish my workout on an exercise bike or elliptical machine. And I would not be able to walk normally until I took my next dose and waited 30 to 60 minutes for it to take effect. (And it would be preferable to take my next dose immediately, or it would take two hours for me to come on then.) But now, even after pushing through the dystonia, once I shower and change, my dystonia is gone, and I can take my medication on my usual schedule. I do this as part of my regular exercise routine, not as Home Physical Therapy. I've just entered it this way because it seems to be the only way I can do so. I wrote about this in more detail at http://www.patientslikeme.com/forum/pd/topics/100055?post_id=1535080#post-1535080
Cost
< $25 monthly
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Purposes: Fibromyalgia and Degenerative Disc Disease (Started Mar 15, 2011)
Date Dosage Fibromyalgia Perceived effectiveness Degenerative Disc Disease Perceived effectiveness Side Effects Adherence Burden
May 06, 2012 60 min Weekly Led_efficacy_2Led_efficacy_2Led_defaultLed_defaultSlight Led_efficacy_1Led_defaultLed_defaultLed_defaultNone MildMildMildMildMild UsuallyUsuallyUsuallyUsuallyUsually A littleA littleA littleA littleA little
Date
May 06, 2012
Advice & Tips
Physical therapy helped me to learn stretchs that I do before getting out of bed in the morning to help decrease the pain I feel when I first get up in the morning. This helped with the stiffness I felt. A day or so after physical therapy I would flare up and be in more pain than what I originally was in. I loved the pool exercises and they helped a lot but the cool water was a problem. Some days the pool water was so cold to me that I would flare from it.
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Purpose: Degenerative Disc Disease (Started Jan 18, 2008)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Apr 22, 2012 20 min Daily Led_efficacy_2Led_efficacy_2Led_defaultLed_defaultSlight NoneNoneNoneNoneNone SometimesSometimesSometimesSometimesSometimes A littleA littleA littleA littleA little
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Purposes: Improve flexibility/strength and Degenerative Disc Disease (Started Nov 18, 2010)
Date Dosage Improve flexibility/strength Perceived effectiveness Degenerative Disc Disease Perceived effectiveness Side Effects Adherence Burden
Mar 02, 2012   Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
Dec 24, 2010   Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Dec 14, 2010 120 min Weekly Led_efficacy_2Led_efficacy_2Led_defaultLed_defaultSlight Led_efficacy_2Led_efficacy_2Led_defaultLed_defaultSlight NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
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Purposes: Pain in shoulders and post-surgical neck lympadema (Started )
Date Dosage Pain in shoulders Perceived effectiveness post-surgical neck lympadema Perceived effectiveness Side Effects Adherence Burden
Feb 23, 2012   Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate Led_efficacy_2Led_efficacy_2Led_defaultLed_defaultSlight NoneNoneNoneNoneNone UsuallyUsuallyUsuallyUsuallyUsually A littleA littleA littleA littleA little
Oct 01, 2011   Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate Led_efficacy_2Led_efficacy_2Led_defaultLed_defaultSlight NoneNoneNoneNoneNone UsuallyUsuallyUsuallyUsuallyUsually A littleA littleA littleA littleA little
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Purpose: Degenerative Disc Disease (Started Jan 01, 2008)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Jan 15, 2012 15 min Daily Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate NoneNoneNoneNoneNone UsuallyUsuallyUsuallyUsuallyUsually A littleA littleA littleA littleA little
Date
Jan 15, 2012
Advice & Tips
I feel better, move better, work better and can think clearer. I just stretch and do a little bit of yoga each morning and maybe during the evening. Getting motivated is just the most difficult part of this kind of therapy.
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Purpose: Degenerative Disc Disease (Started Apr 01, 2011)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Nov 26, 2011   Led_efficacy_1Led_defaultLed_defaultLed_defaultNone SevereSevereSevereSevereSevere NeverNeverNeverNeverNever A littleA littleA littleA littleA little
Date
Nov 26, 2011
Advice & Tips
From my experience, physical therapy is a disaster for treatment of herniated disk in the lumbar spine (L4-L5). Physical therapy was never proven to work for fixing herniated disk or aleviating any of the symptoms or pain related to that (such as sciatic pain). If your symptoms improved during the physical therapy, they would have probably improved without the physical therapy. However, physical therapy, in particular when it involves mobilization/manipulation in the lower back, can be disastrous and might lead to what might be permanent and life long damages and pain. My first physical therapist told me to sit straight and gave me a couple of exercises to do at my home and work. Before seeing her I had almost full range of motion. After I tried to sit straight according to her instructions and did the exercises that she recommended, my range of motion was reduced substantially and it was much harder for me to bend. It was a very bad experience. After discussing the exercises that she gave me with 2 other physical therapists, they said that I should have never been given these exerces. And the original physical therapist who gave me these exercises was very experienced and specialized in back problems... The experience from my second physical therapist was even much worse. I might have life long unpleasant tingling sensations in my leg due to his malpractice. He is actually a very nice person who is an expert (with certificates) in the McKenzie method, which is now a leading method in physical therapy. One of the reasons that I came to his clinic was because I did not want to spend time and money working with physical therapy assistants, but with licensed physical therapists. However, he had a physical therapy student who was doing a rotation with him for 10 weeks. He gradually let her take care of my PT exercises. However, he also let her work for 15 minutes on my lower back in doing mobilization/manipulation. Immediately after these 15 minutes of her work, while I was still at the clinic, I started to suffer from constant unpleasant tingling (the medical term is paresthesia) sensations in my leg. I currently (around 5 months after the 'treatment') still have these sensations, even after a successful surgery that got rid of the pain, but not of these unpleasant tingling sensations. Notice, when you do physical therapy, at least where I live, I am in a room with many bother patients and my physical therapist or physical therapy assistant also had 1 other patient when seeing me. The famous physical therapist who I saw barely remebered what were my symptoms. The method of seeing 2 patients at a time means that your time and money are wasted as you don't get the full attention of the caregiver. Did you ever see a Dr for a 1 hour meeting and the Dr saw another patient at the same time? My sincere suggestion to patients who suffer from sciatic pain related to a herniated disk, is to avoid physical therapy. If for some reason you want to give it a try, avoid manipulations/mobilizations in the lower back as they were never proven to help but can surely cause side effects that the physical therapist and their assistants have no clue how to fix.
Cost
$50-99 monthly
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Purpose: Duchenne Muscular Dystrophy (Started Jan 01, 1990)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Nov 05, 2011 150 min Weekly Led_efficacy_2Led_efficacy_2Led_defaultLed_defaultSlight MildMildMildMildMild AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
Date
Nov 05, 2011
Advice & Tips
It's not fun but I feel better afterwards.
Cost
$25-49 monthly
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Purpose: Vestibular balance problems (Started Aug 15, 2011)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Oct 15, 2011 180 min Weekly Led_efficacy_1Led_defaultLed_defaultLed_defaultNone NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
Date
Oct 15, 2011
Advice & Tips
No perceived benefit.
Cost
$25-49 monthly
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  • trice
    Data Quality: 3 stars
    • Sex: M
    • Age: 43y
    • Duration: 30 yrs
    PRO survey: PRO 3
    Quality of Life:
    • Mental: None
    • Physical: None
    Surgery type: Vagus Nerve Stimulation (VNS)
    0 seizures
    1 week ago
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  • See trice's full Physical Therapy (PT) history
Purpose: Pain (Started Apr 18, 2011)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Jul 18, 2011 120 min Weekly Led_efficacy_2Led_efficacy_2Led_defaultLed_defaultSlight NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
Apr 18, 2011 120 min Weekly ?Can't tell MildMildMildMildMild UsuallyUsuallyUsuallyUsuallyUsually Not at allNot at allNot at allNot at allNot at all
Side effects:
Fatigue
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