BiPAP Treatment Report

• Tommy Maker

  Sex: M

  Data Quality: 3 stars

  ALS: 5 yrs

  Bi-Pap Wheelchair

  Bulbar: mild

  Arms: moderate

  Chest: mild

  Legs: moderate

• 
• by Tommy Maker
• See Tommy Maker's full BiPAP history

Purpose: General health (Started Sep 27, 2011)

Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Mar 22, 2013	1 hr Weekly	Moderate	None	Usually	Not at all

Date

Mar 22, 2013

Advice & Tips

I'm new to this device. I've had it for a year but I've only just started to use it on a regular basis. I try to put 3 to 4 hours into each day. I do this because at times I feel a slight breathlessness and also because my voice appears weak. It also appears to raise my energy levels.

Cost

< $25 monthly

• 0 helpful marks

• Rachael

  Sex: F

  Data Quality: 2 stars

  ALS: 7 yrs

  Bi-Pap Wheelchair

  Bulbar: severe

  Arms: severe

  Chest: moderate

  Legs: severe

• 
• by Rachael
• See Rachael's full BiPAP history

Purposes: ALS (Amyotrophic Lateral Sclerosis) and Fatigue (Started Apr 26, 2011)

Date	Dosage	ALS (Amyotrophic Lateral Sclerosis) Perceived effectiveness	Fatigue Perceived effectiveness	Side Effects	Adherence	Burden
Jul 28, 2012	4 hr Daily	?Can't tell	Moderate	Mild	Usually	Somewhat

Date

Jul 28, 2012

Advice & Tips

I used a bipap when I had my Supra Pubic Catheter Insertion done. I found it so beneficial for fatigue symptoms that I petitioned my consultant for a prescription despite good blood gas levels

• 0 helpful marks

• Cricketjbs

  Sex: F

  Data Quality: 1 star

  ALS: 3 yrs

  Bi-Pap

  Bulbar: severe

  Arms: moderate

  Chest: moderate

  Legs: moderate

• 
• by Cricketjbs
• See Cricketjbs's full BiPAP history

Purpose: ALS (Amyotrophic Lateral Sclerosis) (Started Sep 09, 2010)

Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Dec 20, 2010	8 hr Daily	Major	Moderate	Always	Somewhat

Side effects:

Eye floaters, Dry mouth at night

Date

Dec 20, 2010

Advice & Tips

eyes bothering got new Nasal apparatus

• 0 helpful marks

• mompeach

  Sex: F

  Data Quality: 3 stars

  ALS: 8 yrs

  Ventilator Wheelchair Feeding tube

  Bulbar: severe

  Arms: severe

  Chest: severe

  Legs: severe

• 
• by mompeach
• See mompeach's full BiPAP history

Purpose: ALS (Amyotrophic Lateral Sclerosis) (Started Apr 03, 2006)

Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Nov 09, 2010	24 hr Daily	Major	Moderate	Always	Somewhat

Side effects:

Pressure sore(s) (decubitus ulcers)

• 0 helpful marks

• SusyQ

  Sex: F

  Data Quality: 2 stars

  PLS: 9 yrs

  Bi-Pap Wheelchair Feeding tube

  Bulbar: moderate

  Arms: mild

  Chest: moderate

  Legs: moderate

• 
• by SusyQ
• See SusyQ's full BiPAP history

Purpose: PLS (Primary Lateral Sclerosis) (Started Jun 28, 2009)

Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Sep 03, 2010	10 hr Daily	Major	None	Always	A little

Date

Sep 03, 2010

Advice & Tips

it is a little difficult to use by yourself as you get weaker and nursing staff are a litle afraid of equipment. Inservicing new personnel when you don't talk is difficult.

• 0 helpful marks

• Narges Karimi

  Sex: F

  Data Quality: 3 stars

  ALS: 4 yrs

  Ventilator Wheelchair Feeding tube

  Bulbar: severe

  Arms: severe

  Chest: severe

  Legs: severe

• 
• by Narges Karimi
• See Narges Karimi's full BiPAP history

Purpose: Breathing difficulty (Started Jan 19, 2010)

Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Jan 19, 2010	3 hr Daily	Slight	Mild	Sometimes	A little

• 0 helpful marks

• Rolling Stone

  Sex: M

  Data Quality: 2 stars

  ALS: 8 yrs

  Ventilator Wheelchair Feeding tube

  Bulbar: moderate

  Arms: severe

  Chest: severe

  Legs: severe

• 
• by Rolling Stone
• See Rolling Stone's full BiPAP history

Purpose: Insomnia (Started Feb 10, 2009)

Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Jan 15, 2010		Major	None	Always	A little

• 0 helpful marks

• donhing

  Sex: M

  Data Quality: 3 stars

  ALS: 8 yrs

  Ventilator Wheelchair Feeding tube

  Bulbar: severe

  Arms: severe

  Chest: severe

  Legs: severe

• 
• by donhing
• See donhing's full BiPAP history

Purpose: ALS (Amyotrophic Lateral Sclerosis) (Started Aug 15, 2006)

Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Jan 05, 2010	11 hr Daily	Major	Moderate	Always	Not at all

Date

Jan 05, 2010

Advice & Tips

I wore the nose pillows mask (Liberty ) during the night time and I wore the full face mask during the day. The problem with both masks was that full face mask creates a sore on the bridge of my nose. The Liberty mask was a total pain because when I yawned at night, the nose pillows would come out of my nose. Since I could not use my hands, I had to call for help sometimes every hour into the night. A royal pain for me and my caregivers. Lack of sleep can be very exhausting. So my pulmonary doctor decided that it was time to get a vent. The main reason why is my c o 2 was getting too high. So I made the move to get to get a trach / vent. My breathing is so much better now.

• 0 helpful marks

• gecc4

  Sex: M

  Data Quality: 2 stars

  ALS: 9 yrs

  Bi-Pap Wheelchair Feeding tube

  Bulbar: moderate

  Arms: severe

  Chest: mild

  Legs: severe

• 
• by gecc4
• See gecc4's full BiPAP history

Purpose: Breathing difficulty (Started Sep 03, 2009)

Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Nov 18, 2009	7 hr Daily	Slight	None	Usually	Very

Date

Nov 18, 2009

Advice & Tips

Most of my issues are with the masks, leaking, rubbing my nose, and dry mouth.

• 0 helpful marks

4 additional evaluations for BiPAP are not currently shared publicly.