9 patient evaluations for BiPAP

Tommy Maker
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Tommy Maker
Sex: M
Data Quality: 3 stars
Bulbar: moderate
Arms: severe
Chest: moderate
Legs: moderate
I am: b
I have:
ALS

See Tommy Maker's full BiPAP history

Mar 22, 2013 (Started Jan 02, 2014)

  • Perceived effectiveness for General health: Moderate
  • Side Effects: None
  • Adherence: Usually
  • Burden: Not at all
Advice & Tips: I'm new to this device. I've had it for a year but I've only just started to use it on a regular basis. I try to put 3 to 4 hours into each day. I do this because at times I feel a slight breathlessness and also because my voice appears weak. It also appears to raise my energy levels.
Cost: < $25 monthly

  • 0 helpful marks
Rachael
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Rachael
Sex: F
Data Quality: 2 stars
Bulbar: severe
Arms: severe
Chest: moderate
Legs: severe
I am: vb
I have:
ALS

See Rachael's full BiPAP history

Jul 28, 2012 (Started Apr 26, 2011)

  • Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): Can’t tell
  • Perceived effectiveness for Fatigue: Moderate
  • Side Effects: Mild
  • Adherence: Usually
  • Burden: Somewhat
Dosage: 4 hr Daily
Advice & Tips: I used a bipap when I had my Supra Pubic Catheter Insertion done. I found it so beneficial for fatigue symptoms that I petitioned my consultant for a prescription despite good blood gas levels

  • 0 helpful marks
Cricketjbs
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Cricketjbs
Sex: F
Data Quality: 1 star
Bulbar: severe
Arms: moderate
Chest: moderate
Legs: moderate
I am: vb
I have:
ALS

See Cricketjbs's full BiPAP history

Dec 20, 2010 (Started Sep 09, 2010)

  • Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): Major
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Somewhat
Dosage: 8 hr Daily
Advice & Tips: eyes bothering got new Nasal apparatus
Side effects: Eye floaters, Dry mouth at night

  • 0 helpful marks
mompeach
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mompeach
Sex: F
Data Quality: 2 stars
Bulbar: severe
Arms: severe
Chest: severe
Legs: severe
I am: g
I have:
ALS

See mompeach's full BiPAP history

Nov 9, 2010 (Started Apr 03, 2006)

  • Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): Major
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Somewhat
Dosage: 24 hr Daily
Side effects: Pressure sore(s) (decubitus ulcers)

  • 0 helpful marks
SusyQ
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SusyQ
Sex: F
Data Quality: 2 stars
Bulbar: moderate
Arms: mild
Chest: moderate
Legs: moderate
I am: n
I have:
PLS

See SusyQ's full BiPAP history

Sep 3, 2010 (Started Jun 28, 2009)

  • Perceived effectiveness for PLS (Primary Lateral Sclerosis): Major
  • Side Effects: None
  • Adherence: Always
  • Burden: A little
Dosage: 10 hr Daily
Advice & Tips: it is a little difficult to use by yourself as you get weaker and nursing staff are a litle afraid of equipment. Inservicing new personnel when you don't talk is difficult.

  • 0 helpful marks
Narges Karimi
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Narges Karimi
Sex: F
Data Quality: 3 stars
Bulbar: severe
Arms: severe
Chest: severe
Legs: severe
I am: vb
I have:
ALS

See Narges Karimi's full BiPAP history

Jan 19, 2010 (Started Jan 19, 2010)

  • Perceived effectiveness for Breathing difficulty: Slight
  • Side Effects: Mild
  • Adherence: Sometimes
  • Burden: A little
Dosage: 6 hr Daily

  • 0 helpful marks
Rolling Stone
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Rolling Stone
Sex: M
Data Quality: 2 stars
Bulbar: moderate
Arms: severe
Chest: severe
Legs: severe
I am: g
I have:
ALS

See Rolling Stone's full BiPAP history

Jan 15, 2010 (Started Feb 10, 2009)

  • Perceived effectiveness for Insomnia: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: A little

  • 0 helpful marks
donhing
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donhing
Sex: M
Data Quality: 2 stars
Bulbar: severe
Arms: severe
Chest: severe
Legs: severe
I am: vg
I have:
ALS

See donhing's full BiPAP history

Jan 5, 2010 (Started Aug 15, 2006)

  • Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): Major
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Not at all
Dosage: 11 hr Daily
Advice & Tips: I wore the nose pillows mask (Liberty ) during the night time and I wore the full face mask during the day. The problem with both masks was that full face mask creates a sore on the bridge of my nose. The Liberty mask was a total pain because when I yawned at night, the nose pillows would come out of my nose. Since I could not use my hands, I had to call for help sometimes every hour into the night. A royal pain for me and my caregivers. Lack of sleep can be very exhausting. So my pulmonary doctor decided that it was time to get a vent. The main reason why is my c o 2 was getting too high. So I made the move to get to get a trach / vent. My breathing is so much better now.

  • 0 helpful marks
gecc4
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gecc4
Sex: M
Data Quality: 1 star
Bulbar: moderate
Arms: severe
Chest: mild
Legs: severe
I am: g
I have:
ALS

See gecc4's full BiPAP history

Nov 18, 2009 (Started Sep 03, 2009)

  • Perceived effectiveness for Breathing difficulty: Slight
  • Side Effects: None
  • Adherence: Usually
  • Burden: Very
Dosage: 7 hr Daily
Advice & Tips: Most of my issues are with the masks, leaking, rubbing my nose, and dry mouth.

  • 0 helpful marks
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Showing 9 of 9 patient evaluations for BiPAP