3 patient evaluations for Pyridostigmine

tarheel
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tarheel
Sex: M
Data Quality: 0 stars
Bulbar: severe
Arms: severe
Chest: moderate
Legs: mild
I am: n
I have:
ALS

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Mar 1, 2011 (Started Aug 01, 2006)

  • Perceived effectiveness for Fatigue: None
  • Side Effects: None
  • Adherence: Sometimes
  • Burden: Not at all
Dosage: As needed

  • 0 helpful marks
drumstix
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drumstix
Data Quality: 0 stars
  • Sex: F
  • Age: 59
Condition:
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported

See drumstix's full Pyridostigmine history

Apr 8, 2009 (Started Apr 08, 2009)

  • Perceived effectiveness for Other: Moderate
  • Perceived effectiveness for Fatigue: Moderate
  • Perceived effectiveness for Double vision (diplopia): None
  • Side Effects: Moderate
  • Adherence: Usually
  • Burden: A little
Dosage: 30 mg All the time (24/7)
Advice & Tips: The doctor prescribed way too much for me initially. I was to take 60 mg every four hours, well by the second dose I had 120 mg and I was rigid, weak, could not form words with my mouth and tongue, I sounded like I inhaled helium, my face muscles were not working together....I hyperventilated and my anxiety shot through the roof !A trip to the ER, with several IV's and a re-evaluation over the phone with the doc. I now take 1/2-1 30mg tablet as needed. I am monitoring symptoms...no vision improvement but it does help with speaking, choking and neck pain.
Cost: $50-99 monthly
Side effects: Excess mucus

  • 0 helpful marks
ashfieb
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ashfieb
Sex: M
Data Quality: 1 star
Bulbar: none
Arms: moderate
Chest: none
Legs: mild
I have:
ALS

See ashfieb's full Pyridostigmine history

Aug 19, 2008 (Started Dec 17, 2005)

  • Perceived effectiveness for Other: Major
  • Perceived effectiveness for Atrophy of upper body muscles: None
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 180 mg Daily
Cost: < $25 monthly

  • 0 helpful marks
Last updated:
Showing 3 of 3 patient evaluations for Pyridostigmine