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Cyclophosphamide Treatment Report

Category: Prescription Drugs

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Generic Name: Cyclophosphamide

See also: CALGB 9251, CEF protocol, CODOX-M/IVAC, DRC protocol, EPOCH, FAC protocol, FCMR protocol, FEC-100 protocol, R-CVP protocol

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10 patient evaluations for Cyclophosphamide

  • Miksirch
    Sex: F
    Data Quality: 2 stars
    MS: 7 yrs
    Type: Secondary Progressive
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
  • 53392-thumb
  • by Miksirch
  • See Miksirch's full Cyclophosphamide history
Purpose: MS (Multiple Sclerosis) (Started Dec 16, 2011)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Dec 11, 2011   ?Can't tell NoneNoneNoneNoneNone NeverNeverNeverNeverNever Not at allNot at allNot at allNot at allNot at all
Date
Dec 11, 2011
Advice & Tips
I put this treatment in as a mistake
Cost
< $25 monthly
  • Icon_thumb_off 0 helpful marks
  • sdr24
    Sex: M
    Data Quality: 2 stars
    MS: 15 yrs
    Type: Secondary Progressive
    Sensation: Moderate
    Overall: Mild
    Cognition: mild
    Vision: none
    Speech: none
    Swallowing: none
    Upper limb: moderate
    Walking: moderate
  • Portrait_default_thumb
  • by sdr24
  • See sdr24's full Cyclophosphamide history
Purpose: MS (Multiple Sclerosis) (Started Oct 06, 2010)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Sep 05, 2011 1 g Monthly Led_efficacy_2Led_efficacy_2Led_defaultLed_defaultSlight MildMildMildMildMild AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
  • Icon_thumb_off 0 helpful marks
Purposes: used to kill immune system and MS (Multiple Sclerosis) (Started Jan 07, 2010)
Date Dosage used to kill immune system Perceived effectiveness MS (Multiple Sclerosis) Perceived effectiveness Side Effects Adherence Burden
Apr 30, 2011 2 g Monthly Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways SomewhatSomewhatSomewhatSomewhatSomewhat
Date
Apr 30, 2011
Advice & Tips
it worked wonderfully for we'll over a year! My disease then started to take over again. Taking this drug for my MS was one thing, taking it to kill my immune system to prepare me for my transplant was another completely.
Cost
< $25 monthly
  • Icon_thumb_off 0 helpful marks
  • bluedot
    Sex: F
    Data Quality: 0 stars
    MS: 9 yrs
    Type: Relapsing-Remitting
    Sensation: Moderate
    Overall: Mild
    Cognition: none
    Vision: mild
    Speech: none
    Swallowing: none
    Upper limb: moderate
    Walking: moderate
  • Portrait_default_thumb
  • by bluedot
  • See bluedot's full Cyclophosphamide history
Purpose: MS (Multiple Sclerosis) (Started Sep 01, 2010)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Oct 21, 2010 800 mg Monthly ?Can't tell MildMildMildMildMild AlwaysAlwaysAlwaysAlwaysAlways SomewhatSomewhatSomewhatSomewhatSomewhat
Side effects:
Nausea
  • Icon_thumb_off 0 helpful marks
  • jmartell
    Sex: F
    Data Quality: 2 stars
    MS: 11 yrs
    Type: Relapsing-Remitting
    Relapse: Moderate
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: severe
  • 28936-thumb
  • by jmartell
  • See jmartell's full Cyclophosphamide history
Purpose: MS (Multiple Sclerosis) (Started Feb 25, 2010)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Aug 02, 2010 600 mg Monthly ?Can't tell NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
  • Icon_thumb_off 0 helpful marks
  • Katie115
    Sex: F
    Data Quality: 0 stars
    MS: 16 yrs
    Type: Relapsing-Remitting
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: mild
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
  • 4490-thumb
  • by Katie115
  • See Katie115's full Cyclophosphamide history
Purpose: MS (Multiple Sclerosis) (Started Apr 07, 2009)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Dec 14, 2009 1.25 g Monthly ?Can't tell ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways SomewhatSomewhatSomewhatSomewhatSomewhat
Side effects:
Fatigue, Incontinence, Nausea, Hair loss, Constipation, Headaches
Date
Dec 14, 2009
Advice & Tips
It helped for a couple of months, but for me the impact I had from side-effects made my quality of life poor.
  • Icon_thumb_on 2 helpful marks
  • Meehoo
    Sex: M
    Data Quality: 1 star
    MS: 6 yrs
    Type: Primary Progressive
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: severe
  • Portrait_default_thumb
  • by Meehoo
  • See Meehoo's full Cyclophosphamide history
Purpose: MS (Multiple Sclerosis) (Started Mar 26, 2009)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Sep 25, 2009 1600 mg Monthly Led_efficacy_2Led_efficacy_2Led_defaultLed_defaultSlight ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways SomewhatSomewhatSomewhatSomewhatSomewhat
May 20, 2009 1600 mg Monthly Led_efficacy_2Led_efficacy_2Led_defaultLed_defaultSlight ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
Apr 05, 2009 1600 mg Monthly Led_efficacy_2Led_efficacy_2Led_defaultLed_defaultSlight ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways SomewhatSomewhatSomewhatSomewhatSomewhat
Side effects:
Nausea, Hair loss, Vomiting, Constipation, Headaches, Fatigue
Date
Sep 25, 2009
Advice & Tips
Although the monthly infusions were largely ineffective for me, you results may be different. Regarding the side effects, about the time I started feeling "normal", I was back in chemo. It was an extremely miserable 6 month period. But in retrospect, I felt that I had to do what I could to slow the progression, and that cytoxan infusions were my best chance to do it.
Date
Apr 05, 2009
Advice & Tips
Limit your exposure to others, especially those that are ill, cover your mouth and nose, and wash your hands often. You will lose some of your immune system for up to three weeks, leaving you susceptable to infection. Very important to eat 5-6 small meals more often than 2-3 larger meals, and drink lots of water to flush the Cytoxan out of your bladder, as it is toxic to your system.
  • Icon_thumb_on 1 helpful mark
  • hitch354
    Sex: M
    Data Quality: 1 star
    MS: 16 yrs
    Type: Primary Progressive
    Sensation: Moderate
    Overall: Mild
    Cognition: mild
    Vision: mild
    Speech: mild
    Swallowing: mild
    Upper limb: moderate
    Walking: severe
  • Portrait_default_thumb
  • by hitch354
  • See hitch354's full Cyclophosphamide history
Purpose: Other (Started Oct 24, 2008)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Nov 18, 2008 100 mg Monthly Led_efficacy_1Led_defaultLed_defaultLed_defaultNone NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways SomewhatSomewhatSomewhatSomewhatSomewhat
Date
Nov 18, 2008
Advice & Tips
possible side effects
Cost
< $25 monthly
  • Icon_thumb_on 1 helpful mark
  • LSK
    Sex: F
    Data Quality: 3 stars
    MS: 20 yrs
    Type: Secondary Progressive
    Sensation: Moderate
    Overall: Moderate
    Cognition: severe
    Vision: none
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
  • 12214-thumb
  • by LSK
  • See LSK's full Cyclophosphamide history
Purpose: MS (Multiple Sclerosis) (Started Apr 01, 2006)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Jun 01, 2006 1700 mg Monthly ?Can't tell SevereSevereSevereSevereSevere AlwaysAlwaysAlwaysAlwaysAlways VeryVeryVeryVeryVery
Side effects:
Hair loss, Vomiting, Fatigue
Date
Jun 01, 2006
Advice & Tips
It can be a very helpful intervention for many folks; I was just unlucky with it.
Cost
< $25 monthly
  • Icon_thumb_on 1 helpful mark
  • Oilyn
    Sex: F
    Data Quality: 1 star
    MS: 40 yrs
    Type: Progressive Relapsing
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: severe
  • 8230-thumb
  • by Oilyn
  • See Oilyn's full Cyclophosphamide history
Purpose: MS (Multiple Sclerosis) (Started Jan 30, 2005)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Jan 30, 2005 1 g Monthly ?Can't tell ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways SomewhatSomewhatSomewhatSomewhatSomewhat
Side effects:
Incontinence, Hair loss
Date
Jan 30, 2005
Advice & Tips
nasty side effects; after three infusions, 60% hair loss; no effect on my MS; had never experienced incontinence like this
Cost
< $25 monthly
  • Icon_thumb_on 1 helpful mark

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