14 patient evaluations for Primidone

sharon28753
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sharon28753
Sex: F
Data Quality: 1 star
Pain: Most
Fatigue: Little
Sleep: All
Stiffness: All
function: Some
external_stress: Most
Stickman: most
Description:F64y
FM:16y Dx
I am: g
I have:
Fibromyalgia

See sharon28753's full Primidone history

Jul 31, 2010 (Started Jan 01, 2005)

  • Perceived effectiveness for Shakiness: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 300 mg Daily
Advice & Tips: must take for ESSENTIAL TREMORS
Cost: < $25 monthly

  • 2 helpful marks
Shakin
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Shakin
Sex: M
Data Quality: 2 stars
On
Mouth/throat: mild
Arms: mild
Chest: mild
Legs: mild
I am: vg
I have:
Parkinson's

See Shakin's full Primidone history

May 15, 2008 (Started Mar 12, 2008)

  • Perceived effectiveness for Essential Tremor: None
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: A little
Dosage: 750 mg Daily
Side effects: Low blood pressure, Grogginess, Dizziness, Fatigue

  • 1 helpful mark
StrkL
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StrkL
Sex: M
Data Quality: 3 stars
Off
Mouth/throat: mild
Arms: none
Chest: none
Legs: moderate
I am: g
I have:
Parkinson's

See StrkL's full Primidone history

Aug 18, 2008 (Started Jul 01, 2006)

  • Perceived effectiveness for Essential Tremor: Slight
  • Side Effects: Mild
  • Adherence: Always
  • Burden: A little
Dosage: 200 mg Daily
Advice & Tips: Started before took sinemet, and had slight effect on tremor. When sinemet was started, had more effect on tremor than primidone. When sinemet was increased to six pills daily, tried to decrease primidone and found could do so with no increase in tremor.
Cost: < $25 monthly
Side effects: Grogginess

  • 1 helpful mark
karend03
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karend03
Data Quality: 0 stars
  • Sex: F
  • Age: 58y
  • Duration: 48 yrs
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
1 seizure
216 weeks ago
I have:
Epilepsy

See karend03's full Primidone history

Feb 11, 2010 (Started Sep 09, 1984)

  • Perceived effectiveness for Seizures (grand mal or tonic-clonic): Major
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Not at all
Dosage: 4 x 250 mg/5 mL Daily
Advice & Tips: be prepared to be drowsy a good bit of the time
Side effects: Somnolence

  • 1 helpful mark
thegizzard
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thegizzard
Data Quality: 1 star
  • Sex: F
  • Age: 58y
  • Duration: 32 yrs
PRO survey: PRO 3
Quality of Life:
  • Mental: Mild
  • Physical: Mild
0 seizures
159 weeks ago
I am: n
I have:
Epilepsy

See thegizzard's full Primidone history

Oct 10, 2010 (Started Aug 01, 2010)

  • Perceived effectiveness for Essential Tremor: Moderate
  • Perceived effectiveness for Migraine headaches: Moderate
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 50 mg Daily
Advice & Tips: I am taking a low dose of this because of kidney disease, so be careful of that factor. I am taking it for seizures, chronic migraine headaches, and essential tremor. It works best on the headaches, though it isn't perfect. Same with the essential tremor, although I can use my hands better and write my name well again. It has helped my daily life in that it has reduced the number and severity of most of my headaches, not all of them. I still get bad ones. So it's had a mixed benefit. I'd still choose to take it because it does give enough relief to be helpful.
Cost: < $25 monthly

  • 1 helpful mark
kg10043
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kg10043
Data Quality: 1 star
  • Sex: M
  • Age: 59y
  • Duration: 45 yrs
PRO survey: PRO 3
Quality of Life:
  • Mental: Moderate
  • Physical: Mild
4 seizures
154 weeks ago
I am: g
I have:
Epilepsy

See kg10043's full Primidone history

Jan 13, 2011 (Started Jan 01, 2002)

  • Perceived effectiveness for Seizures (grand mal or tonic-clonic): Moderate
  • Side Effects: Severe
  • Adherence: Always
  • Burden: Somewhat
Dosage: 3 x 250 mg/5 mL Daily
Advice & Tips: For about a year the doctor has tried me on different medications, some for a very short time, now on Vimpat. He is reducing the primidone to reduce extreme tiredness. At times I will be sitting at a desk and all of a sudden wake up and realize I have been asleep for a half hour or so.
Cost: < $25 monthly
Side effects: Tiredness, Fatigue

Jan 20, 2010 (Started Jan 01, 2002)

  • Perceived effectiveness for Seizures (grand mal or tonic-clonic): Moderate
  • Side Effects: Severe
  • Adherence: Usually
  • Burden: Very
Dosage: 4 x 250 mg/5 mL Daily
Advice & Tips: From the point when I started taking Primidone I felt VERY TIRED almost all the time. My Blood Pressure (BP) went up in spite of a higher dose of BP medicine. I have muscle weakness.
Cost: < $25 monthly
Side effects: Tiredness, Fatigue

Dec 30, 2009 (Started Jan 01, 2002)

  • Perceived effectiveness for Seizures (grand mal or tonic-clonic): Moderate
  • Side Effects: Severe
  • Adherence: Usually
  • Burden: Somewhat
Dosage: 4 x 250 mg/5 mL Daily
Advice & Tips: Makes me even more tired. Last time they increased my dose I went to a point that I could easily sleep 12+ hours per day.
Cost: < $25 monthly
Side effects: Tiredness, Fatigue

  • 1 helpful mark
Dirty Butter
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Dirty Butter
Data Quality: 1 star
  • Sex: F
  • Age: 71
Condition: Mitochondrial Myopathy 7 additional condition(s)
Quality of Life:
  • Mental: Mild
  • Physical: Moderate
I am: n
I have:
Mitochondrial Myopathy

See Dirty Butter's full Primidone history

Jul 19, 2011 (Started May 30, 2008)

  • Perceived effectiveness for Essential Myoclonus: Major
  • Perceived effectiveness for Myoclonus: Major
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: 300 mg Daily
Advice & Tips: Stopped all meds due to elevated liver enzymes, until liver situation resolved.
Cost: < $25 monthly
Side effects: Brain fog, Constipation

Apr 30, 2009 (Started May 30, 2008)

  • Perceived effectiveness for Myoclonus: Major
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Somewhat
Dosage: 100 mg Daily
Advice & Tips: It's been a miracle drug for me, so I gladly deal with the constipation. Jerking has all but stopped completely.
Side effects: Brain fog, Constipation

Nov 18, 2008 (Started May 30, 2008)

  • Perceived effectiveness for Other: Major
  • Side Effects: Severe
  • Adherence: Always
  • Burden: Very
Dosage: 100 mg Daily
Advice & Tips: Primidone worked great for stopping all the jerks and tics I had developed as part of my Essential Myoclonus. But by the second of day of using it I could tell constipation was going to be a problem. I take Miralax, 3 Metamucil capsules, and use 2 Glycerin suppositories every day, not to mention the high fiber diet and prunes I eat every day! Milk of Magnesia has stopped working and it took 2 rounds of Go-Lytely to clean me out. Two days later I was constipated again. That's when I decided it was time to find an alternative to Primidone.
Side effects: Brain fog, Constipation

Sep 11, 2008 (Started May 30, 2008)

  • Perceived effectiveness for Other: Major
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Not at all
Dosage: 125 mg Daily
Advice & Tips: It stopped the Myoclonus almost totally within 2 days of starting treatment! I will deal with the constipation by other means and definitely continue taking the Primidone.
Side effects: Brain fog, Constipation

  • 1 helpful mark
pheonix61
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pheonix61
Data Quality: 1 star
  • Sex: M
  • Age: 63
Condition: COPD 43 additional condition(s)
Quality of Life:
  • Mental: None
  • Physical: Mild
I am: n
I have:
COPD

See pheonix61's full Primidone history

Aug 26, 2009 (Started Jun 04, 1995)

  • Perceived effectiveness for Epilepsy: Major
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Not at all
Dosage: 1000 mg Daily
Advice & Tips: Much better than taking actual phenobarbitol less doping.
Cost: < $25 monthly

  • 1 helpful mark
trice
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trice
Data Quality: 2 stars
  • Sex: M
  • Age: 44y
  • Duration: 31 yrs
PRO survey: PRO 3
Quality of Life:
  • Mental: None
  • Physical: None
Surgery type: Vagus Nerve Stimulation (VNS)
0 seizures
3 weeks ago
I am: g
I have:
Epilepsy

See trice's full Primidone history

Jan 21, 2013 (Started Nov 10, 2010)

  • Perceived effectiveness for Epilepsy: Slight
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 300 mg Daily
Cost: < $25 monthly
Side effects: Fatigue

Nov 23, 2009 (Started Nov 10, 2010)

  • Perceived effectiveness for Epilepsy: Moderate
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: A little
Side effects: Fatigue

  • 1 helpful mark
clr714
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clr714
Sex: F
Data Quality: 1 star
Pain: Most
Fatigue: Most
Sleep: Most
Stiffness: All
function: Little
external_stress: All
Stickman: most
Description:F40y
CFS:12y Dx
FM:12y Dx
I am: b
I have:
Fibromyalgia

See clr714's full Primidone history

Nov 30, 2009 (Started Jul 01, 2009)

  • Perceived effectiveness for Shakiness: None
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 250 mg/5 mL Daily
Cost: < $25 monthly

  • 0 helpful marks
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Showing 10 of 14 patient evaluations for Primidone