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Riluzole Treatment Report

Category: Prescription Drugs

Most Popular Types: Rilutek

See patients taking Riluzole

Sort by: Helpfulness | Most Recent

88 patient evaluations for Riluzole taken for the purpose of 'ALS (Amyotrophic Lateral Sclerosis)'

amma

Sex: F

Data Quality: 2 stars

ALS: 8 yrs

Ventilator Wheelchair Feeding tube

Bulbar: moderate

Arms: severe

Chest: severe

Legs: severe
by amma
See amma's full Riluzole history

**Purpose:** ALS (Amyotrophic Lateral Sclerosis) *(Started Jun 22, 2006)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Mar 02, 2010	50 mg Daily	?Can't tell	None	Always	Not at all

0 helpful marks

AcesHigh

Sex: M

Data Quality: 1 star

ALS: 5 yrs

Bulbar: mild

Arms: moderate

Chest: none

Legs: moderate
by AcesHigh
See AcesHigh's full Riluzole history

**Purpose:** ALS (Amyotrophic Lateral Sclerosis) *(Started Dec 15, 2008)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Feb 09, 2010	100 mg Daily	None	None	Always	Not at all
Feb 12, 2009	100 mg Daily	None	None	Usually	Not at all

Date: Feb 09, 2010
Advice & Tips: This medication seemed to be of no effect. Not worth taking a pill.
Cost: < $25 monthly

0 helpful marks

wbear35

Sex: M

Data Quality: 1 star

ALS: 36 yrs

Bi-Pap Wheelchair Feeding tube

Bulbar: severe

Arms: severe

Chest: moderate

Legs: severe
by wbear35
See wbear35's full Riluzole history

**Purpose:** ALS (Amyotrophic Lateral Sclerosis) *(Started Feb 11, 2007)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Jan 28, 2010	100 mg Daily	Moderate	None	Always	A little
Oct 26, 2009	100 mg Daily	?Can't tell	None	Always	Somewhat
Aug 19, 2008	100 mg Daily	?Can't tell	None	Always	A little

Date: Aug 19, 2008
Advice & Tips: MY DOCTOR SAYS MAKE SURE I TAKE IT SO I DO
Cost: < $25 monthly

1 helpful mark

colinmoss

Sex: M

Data Quality: 0 stars

ALS: 12 yrs

Bi-Pap

Bulbar: mild

Arms: moderate

Chest: mild

Legs: moderate
by colinmoss
See colinmoss's full Riluzole history

**Purpose:** ALS (Amyotrophic Lateral Sclerosis) *(Started Mar 30, 2002)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Jan 21, 2010	Daily	?Can't tell	Mild	Always	Not at all

Date: Jan 21, 2010
Advice & Tips: Initially it made me more tired but i seemed to get used to it. (Jan 2008) After 6 years with MND I reduced my daily dose by half with seemingly no affect to my progression rate.

0 helpful marks

pdwyer1986

Sex: M

Data Quality: 2 stars

ALS: 10 yrs

Bi-Pap Wheelchair

Bulbar: none

Arms: severe

Chest: moderate

Legs: severe
by pdwyer1986
See pdwyer1986's full Riluzole history

**Purpose:** ALS (Amyotrophic Lateral Sclerosis) *(Started Jul 30, 2007)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Jan 10, 2010	100 mg Daily	None	Mild	Always	Not at all

Side effects:: Generalized weakness (asthenia)

Date: Jan 10, 2010
Advice & Tips: I didn't really see any changes and I felt like it made me weaker.
Cost: $100-199 monthly

0 helpful marks

gjames123

Sex: M

Data Quality: 1 star

ALS: 7 yrs

Bi-Pap

Bulbar: none

Arms: mild

Chest: mild

Legs: moderate
by gjames123
See gjames123's full Riluzole history

**Purpose:** ALS (Amyotrophic Lateral Sclerosis) *(Started Jun 13, 2007)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Dec 16, 2009	50 mg Daily	None	Severe	Sometimes	A little
Oct 13, 2009	50 mg Daily	None	Severe	Never	Not at all

Date: Dec 16, 2009
Advice & Tips: Ao tomar esse medicamento nao tive melhoras e meu figado ficou muito ruim, TGO E TGP acima de 600
Cost: $200+ monthly

Date: Oct 13, 2009
Advice & Tips: nao faz efeito e maltrata o figado

0 helpful marks

C.J.

Sex: F

Data Quality: 0 stars

ALS: 5 yrs

Wheelchair

Bulbar: moderate

Arms: moderate

Chest: none

Legs: severe
by C.J.
See C.J.'s full Riluzole history

**Purpose:** ALS (Amyotrophic Lateral Sclerosis) *(Started Aug 07, 2008)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Nov 15, 2009	50 mg Daily	?Can't tell	None	Always	Not at all

Date: Nov 15, 2009
Advice & Tips: I will take any medication that the medical community recommendends. It has helped my Crohn's Disease.
Cost: $200+ monthly

0 helpful marks

indyborn

Sex: F

Data Quality: 1 star

ALS: 5 yrs

Ventilator Wheelchair Feeding tube

Bulbar: severe

Arms: severe

Chest: severe

Legs: severe
by indyborn
See indyborn's full Riluzole history

**Purpose:** ALS (Amyotrophic Lateral Sclerosis) *(Started Sep 19, 2008)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Nov 13, 2009	50 mg Daily	?Can't tell	None	Always	Not at all
Aug 10, 2009	50 mg Daily	?Can't tell	None	Always	Not at all
May 23, 2009	50 mg Daily	?Can't tell	None	Always	Not at all
Feb 18, 2009	50 mg Daily	?Can't tell	None	Always	Not at all
Nov 20, 2008	50 mg Daily	?Can't tell	None	Always	Not at all

1 helpful mark

LianneGoes

Sex: F

Data Quality: 1 star

ALS: 2 yrs

Bi-Pap Wheelchair Feeding tube

Bulbar: moderate

Arms: severe

Chest: moderate

Legs: severe
by LianneGoes
See LianneGoes's full Riluzole history

**Purpose:** ALS (Amyotrophic Lateral Sclerosis) *(Started Apr 08, 2009)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Nov 09, 2009	100 mg Daily	?Can't tell	Moderate	Always	Not at all
Sep 20, 2009	100 mg Daily	?Can't tell	Mild	Always	Not at all
May 10, 2009	100 mg Daily	?Can't tell	None	Always	Not at all

Side effects:: Heart rate increased, Fatigue, Fatigue

Date: Nov 09, 2009
Advice & Tips: The only proven treatment: so I will keep on taking it.
Cost: < $25 monthly

Date: Sep 20, 2009
Advice & Tips: Can't tell if it helps. But I have seen the statistics: so I keep on taking it. I just believe it helps, even if I cant be sure.
Cost: < $25 monthly

0 helpful marks

pabbey13053

Sex: F

Data Quality: 0 stars

ALS: 17 yrs

Bulbar: mild

Arms: mild

Chest: none

Legs: mild
by pabbey13053
See pabbey13053's full Riluzole history

**Purpose:** ALS (Amyotrophic Lateral Sclerosis) *(Started Sep 05, 2000)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Nov 05, 2009	100 mg Daily	Major	None	Always	Not at all
Jul 01, 2009	100 mg Daily	Major	None	Always	Not at all
Jan 16, 2009	100 mg Daily	Major	None	Always	Not at all

Date: Nov 05, 2009
Advice & Tips: HELPS WITH ALS

Date: Jul 01, 2009
Advice & Tips: survivor it is

1 helpful mark

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