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Riluzole Treatment Report

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88 patient evaluations for Riluzole taken for the purpose of 'ALS (Amyotrophic Lateral Sclerosis)'

Purpose: ALS (Amyotrophic Lateral Sclerosis) (Started Apr 28, 2010)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Jul 13, 2010 100 mg Daily ?Can't tell ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways SomewhatSomewhatSomewhatSomewhatSomewhat
Date
Jul 13, 2010
Advice & Tips
We think it was causing diarrea. My Neurologist said we would stop it for a whilw and see if it helps.
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Purpose: ALS (Amyotrophic Lateral Sclerosis) (Started Jun 14, 2010)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Jul 05, 2010 100 mg Daily ?Can't tell SevereSevereSevereSevereSevere AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Side effects:
Dizziness
Date
Jul 05, 2010
Advice & Tips
Severe fatigue Dizziness Possible drop in BP
Cost
< $25 monthly
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Purpose: ALS (Amyotrophic Lateral Sclerosis) (Started Apr 23, 2010)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Jun 15, 2010 100 mg Daily ?Can't tell ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways SomewhatSomewhatSomewhatSomewhatSomewhat
Side effects:
Generalized weakness (asthenia), Loss of sense of taste, Nausea
Date
Jun 15, 2010
Advice & Tips
Side effects, weakness, lack of energy and strength, taste loss, slight nausea, weight loss, cannot eat 6 hours out of the day. The side effects were not worth the small possible benefit.
Cost
$200+ monthly
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Purpose: ALS (Amyotrophic Lateral Sclerosis) (Started Oct 10, 2006)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
May 23, 2010 100 mg Daily Led_efficacy_2Led_efficacy_2Led_defaultLed_defaultSlight NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Mar 17, 2009 100 mg Daily Led_efficacy_2Led_efficacy_2Led_defaultLed_defaultSlight MildMildMildMildMild AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
Side effects:
Muscle weakness, Fatigue
Date
Mar 17, 2009
Advice & Tips
poor return on investment
Cost
$50-99 monthly
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Purpose: ALS (Amyotrophic Lateral Sclerosis) (Started Feb 15, 2007)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
May 15, 2010 100 mg Daily ?Can't tell NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
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Purpose: ALS (Amyotrophic Lateral Sclerosis) (Started Jan 09, 2010)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
May 07, 2010 100 mg Daily Led_efficacy_1Led_defaultLed_defaultLed_defaultNone ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways SomewhatSomewhatSomewhatSomewhatSomewhat
Side effects:
Nausea and vomiting
Date
May 07, 2010
Advice & Tips
The side effects for the first two months were pretty bad.I had trouble keeping any food down in the mornings and I got really dizzy at times. then the side effects eased off about 85% and I am doing better.
Cost
$25-49 monthly
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Purpose: ALS (Amyotrophic Lateral Sclerosis) (Started Sep 29, 2009)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
May 01, 2010 100 mg Daily ?Can't tell NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Date
May 01, 2010
Advice & Tips
Remembering to take it at appropriate times, time before or after meals.
Cost
$50-99 monthly
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Purpose: ALS (Amyotrophic Lateral Sclerosis) (Started Feb 09, 2010)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Mar 31, 2010 100 mg Daily ?Can't tell NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Date
Mar 31, 2010
Advice & Tips
I don't know how this treatment is working for me. I figure take it, it may help
Cost
$50-99 monthly
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Purpose: ALS (Amyotrophic Lateral Sclerosis) (Started Dec 14, 2008)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Mar 20, 2010 100 mg Daily ?Can't tell ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways SomewhatSomewhatSomewhatSomewhatSomewhat
Side effects:
Difficulty sleeping through night
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Purpose: ALS (Amyotrophic Lateral Sclerosis) (Started Dec 15, 2004)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Mar 17, 2010 100 mg Daily Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Date
Mar 17, 2010
Advice & Tips
started on Hospice; did not make sense therefore to continue. I am ready to die. No problem - I expected this and planned for it when the time came.
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