14 patient evaluations for Keppra XR

neuroplasticity
35926 thumb
neuroplasticity
Data Quality: 2 stars
  • Sex: M
  • Age: 55y
  • Duration: 41 yrs
PRO survey: PRO 3
Quality of Life:
  • Mental: Moderate
  • Physical: Mild
Surgery type: Selective Amygdalohippocampectomy, Vagus Nerve Stimulation (VNS), Extratemporal Resection
0 seizures
107 weeks ago
I am: g
I have:
Epilepsy

See neuroplasticity's full Keppra XR history

Nov 29, 2012 (Started Apr 12, 2009)

  • Perceived effectiveness for Epilepsy: Moderate
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: A little
Dosage: 2000 mg Daily
Cost: $100-199 monthly
Side effects: Vision loss in left side of visual field for both eyes, Nose itch, Paranoia

Jul 7, 2011 (Started Apr 12, 2009)

  • Perceived effectiveness for Epilepsy: Moderate
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 2000 mg Daily
Cost: $100-199 monthly
Side effects: Vision loss in left side of visual field for both eyes, Nose itch, Paranoia

  • 0 helpful marks
pokie too
1533 thumb
pokie too
Sex: F
Data Quality: 1 star
On
Mouth/throat: none
Arms: mild
Chest: mild
Legs: mild
I am: vg
I have:
Parkinson's

See pokie too's full Keppra XR history

Nov 18, 2012 (Started Nov 19, 2010)

  • Perceived effectiveness for Parkinson's Disease: Moderate
  • Side Effects: Severe
  • Adherence: Always
  • Burden: Not at all
Dosage: 500 mg Daily

  • 0 helpful marks
Tonialpha
21423 thumb
Tonialpha
Data Quality: 2 stars
  • Sex: F
  • Age: 61y
  • Duration: 47 yrs
PRO survey: PRO 3
Quality of Life:
  • Mental: Mild
  • Physical: Mild
Surgery type: Left Temporal Lobectomy, Selective Amygdalohippocampectomy, Vagus Nerve Stimulation (VNS)
100 seizures
33 weeks ago
I am: n
I have:
Epilepsy

See Tonialpha's full Keppra XR history

Feb 7, 2012 (Started Aug 14, 2010)

  • Perceived effectiveness for Epilepsy: Moderate
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Not at all
Dosage: 6000 mg Daily
Advice & Tips: THE XR IS THE BEST THE KEPPRA IS THE BEST. THE MAIL ORDER SENT ME THE GENERIC THE OTHER WEEK AND I TRIED IT AND I NOTICED SEIZURE ACTIVITY THAT DAY. SWALLOWING AND NAUSEA IS MY BIGGEST ISSUE BUT THE SEIZURES ARE A LOT BETTER!
Cost: < $25 monthly
Side effects: Stomach upset, Anxious mood

May 30, 2010 (Started Aug 14, 2010)

  • Perceived effectiveness for Epilepsy: Moderate
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Advice & Tips: timer from e-pill for taking pills 5 times a day. timer on phone and pill box
Cost: < $25 monthly
Side effects: Stomach upset, Anxious mood

  • 0 helpful marks
pray4me_sixx
20350 thumb
pray4me_sixx
Data Quality: 1 star
  • Sex: F
  • Age: 29y
  • Duration: 16 yrs
Quality of Life:
  • Mental: None
  • Physical: None
0 seizures
155 weeks ago
I am: g
I have:
Epilepsy

See pray4me_sixx's full Keppra XR history

Jan 5, 2012 (Started Nov 29, 2010)

  • Perceived effectiveness for Epilepsy: Can’t tell
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: 3000 mg Daily
Cost: < $25 monthly
Side effects: Fatigue

Nov 30, 2010 (Started Nov 29, 2010)

  • Perceived effectiveness for Epilepsy: Can’t tell
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Very
Dosage: 3000 mg Daily
Cost: < $25 monthly
Side effects: Fatigue

Mar 27, 2010 (Started Nov 29, 2010)

  • Perceived effectiveness for Epilepsy: Can’t tell
  • Side Effects: Mild
  • Adherence: Always
  • Burden: A little
Cost: < $25 monthly
Side effects: Fatigue

  • 1 helpful mark
motivationalforceman
38771 thumb
motivationalforceman
Data Quality: 0 stars
  • Sex: M
  • Age: 62y
  • Duration: ? yrs
Quality of Life:
  • Mental: Mild
  • Physical: Mild
0 seizures
162 weeks ago
I am: vg
I have:
Epilepsy

See motivationalforceman's full Keppra XR history

Nov 11, 2011 (Started May 01, 2008)

  • Perceived effectiveness for Epilepsy: Major
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: 1500 mg Daily
Advice & Tips: Since the Keepra does make you drowsy I try and get a good nights sleep.I also take vitamins such as vitamin B Plus,C,and a Multi Vitamin.I have research and have tried to eliminate caffeine.sugar,pop,etc.Since four out of the five grand mal seizures I had were at night while asleep My Doctor prescribed that I take 2 500 mg at 7:00 AM and 1 500 mg at 7:00 PM.For awhile my loving wife had to remind me to take the medicine as I sort of blocked it out that I even had them at all.But the med is working and my Doctor has agreed that I could attempt to wean off the medicine in the spring of 2012 if I wanted to knowing I couldn't drive a car for quite some time if I do.
Cost: $25-49 monthly

  • 0 helpful marks
whinni
18518 thumb
whinni
Data Quality: 0 stars
  • Sex: F
  • Age: 32y
  • Duration: 6 yrs
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
? seizures
I have:
Epilepsy

See whinni's full Keppra XR history

Oct 20, 2011 (Started Oct 21, 2008)

  • Perceived effectiveness for Epilepsy: Slight
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 500 mg Daily
Cost: $50-99 monthly

  • 0 helpful marks
seasterday
36063 thumb
seasterday
Data Quality: 1 star
  • Sex: M
  • Age: 38y
  • Duration: 25 yrs
Quality of Life:
  • Mental: Mild
  • Physical: None
0 seizures
179 weeks ago
I am: vg
I have:
Epilepsy

See seasterday's full Keppra XR history

Jul 10, 2011 (Started Mar 01, 2011)

  • Perceived effectiveness for Epilepsy: Major
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Not at all
Dosage: 3000 mg Daily
Advice & Tips: Keppra XR is working much better for me than regular Keppra.
Cost: $25-49 monthly
Side effects: Depressed mood

  • 0 helpful marks
creative1
16407 thumb
creative1
Data Quality: 1 star
  • Sex: F
  • Age: 47y
  • Duration: 29 yrs
PRO survey: PRO 3
Quality of Life:
  • Mental: Mild
  • Physical: Mild
0 seizures
181 weeks ago
I am: b
I have:
Epilepsy

See creative1's full Keppra XR history

Jan 28, 2011 (Started Jan 09, 2000)

  • Perceived effectiveness for Epilepsy: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 2000 mg Daily
Advice & Tips: Keppra XR worked much better than Keppra. No rage, no side effects after the first two weeks, sad to say because of insurance I will have to switch back to generic Keppra.
Cost: $100-199 monthly
Side effects: Rage

Jan 16, 2011 (Started Jan 09, 2000)

  • Perceived effectiveness for Epilepsy: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 2000 mg Daily
Advice & Tips: Talk to your doctor about your Keppra. XR taken once a day really helped me overcome the side effects and burden of taking pills four times a day. It's really worked well with other AED's to keep me seizure free. Always work with your doctor and be sure your doctor works with you. Working together you have a better chance at seizure control.
Cost: $100-199 monthly
Side effects: Rage

Dec 15, 2010 (Started Jan 09, 2000)

  • Perceived effectiveness for Epilepsy: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 2000 mg Daily
Advice & Tips: Seizure free and side effect free for 6 weeks. I kept moving forward, using a journal, and trying new meds until I found a cocktail that was right for me.
Cost: < $25 monthly
Side effects: Rage

Nov 5, 2010 (Started Jan 09, 2000)

  • Perceived effectiveness for Epilepsy: Major
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Not at all
Dosage: 2000 mg Daily
Advice & Tips: Keppra XR may be causing side effect of being emotionally over sensitive. I become saddened easily.
Cost: < $25 monthly
Side effects: Rage

Aug 21, 2010 (Started Jan 09, 2000)

  • Perceived effectiveness for Epilepsy: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 2000 mg Daily
Advice & Tips: Took this medication for years. Am wondering now, is it really making a difference?
Cost: < $25 monthly
Side effects: Rage

Aug 10, 2010 (Started Jan 09, 2000)

  • Perceived effectiveness for Epilepsy: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 2000 mg Daily
Advice & Tips: After my body adjusted to Keppra it was as if I finally found one of the meds my body and brain needs to manage seizures.
Cost: < $25 monthly
Side effects: Rage

Apr 1, 2010 (Started Jan 09, 2000)

  • Perceived effectiveness for Epilepsy: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 2000 mg Daily
Advice & Tips: Keppra XR is one of the best treatments for me. Easy to remember to use, the only possible side effect I notice is an inability to lose weight.
Cost: < $25 monthly
Side effects: Rage

  • 2 helpful marks
luv.poppies
28577 thumb
luv.poppies
Data Quality: 1 star
  • Sex: F
  • Age: 42y
  • Duration: 30 yrs
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
1 seizure
216 weeks ago
I have:
Epilepsy

See luv.poppies's full Keppra XR history

Oct 17, 2010 (Started Sep 30, 2010)

  • Perceived effectiveness for seizures generalized tonic clonic: Moderate
  • Perceived effectiveness for Seizures (absence or petit mal): Slight
  • Perceived effectiveness for Myoclonic seizures: Slight
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 2000 mg Daily
Advice & Tips: Keppra XR soooooo far has been a gr8 Medicine for me.. It is just getting the timing, whens and hows to take it for my body.. 2, 500mlg 7am 1, 500mlg 2-3pm 1, 500mlg 7pm Doing this schedule for my body is a gr8 thing.. @ times I would be more prone to seizure activity, early mornings and afternoon evenings.. Seems to be settling in a bit.. Atleast for this week.. LOL
Cost: $25-49 monthly
Side effects: Lips Tingling, Numbness in hands and arms in AM, Medication does not last long in my body, Numbness to roof of mouth

Oct 15, 2010 (Started Sep 30, 2010)

  • Perceived effectiveness for seizures generalized tonic clonic: Moderate
  • Perceived effectiveness for Seizures (absence or petit mal): Slight
  • Perceived effectiveness for Myoclonic seizures: Slight
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: 1500 mg Daily
Cost: $25-49 monthly
Side effects: Lips Tingling, Numbness in hands and arms in AM, Medication does not last long in my body, Numbness to roof of mouth

Oct 13, 2010 (Started Sep 30, 2010)

  • Perceived effectiveness for seizures generalized tonic clonic: Slight
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: 1000 mg Daily
Cost: $25-49 monthly
Side effects: Lips Tingling, Numbness in hands and arms in AM, Medication does not last long in my body, Numbness to roof of mouth

Oct 10, 2010 (Started Sep 30, 2010)

  • Perceived effectiveness for Epilepsy: Slight
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: 1500 mg Daily
Advice & Tips: More numbing tingling forearms, lower lip, roof of mouth, slight dizziness.. Less peaks and valleys of emotions. :@) perception is off.. Flashing lights with movement
Cost: $25-49 monthly
Side effects: Lips Tingling, Numbness in hands and arms in AM, Medication does not last long in my body, Numbness to roof of mouth

  • 0 helpful marks
acg122
25748 thumb
acg122
Data Quality: 1 star
  • Sex: F
  • Age: 34y
  • Duration: 24 yrs
PRO survey: PRO 3
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
0 seizures
198 weeks ago
I am: vg
I have:
Epilepsy

See acg122's full Keppra XR history

Jul 30, 2010 (Started Oct 01, 2008)

  • Perceived effectiveness for Epilepsy: Major
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: 1500 mg Daily
Cost: $50-99 monthly

  • 0 helpful marks
Last updated:
Showing 10 of 14 patient evaluations for Keppra XR