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Home > Riluzole Treatment Evaluations

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41 patient evaluations for Riluzole

  • C.J.
    Sex: F
    Data Quality: 2 stars
    ALS: 2 yrs
    Mouth/throat: moderate
    Arms: none
    Chest: none
    Legs: mild
    See profile
  • C.J.
  • by C.J.
    current dosage:
    50 mg daily
    time on dosage:
    about 1 year
    purpose:
    Slow my ALS progress
  • 86b0161436621965e076cc328b3e7698767b0482
Slow my ALS progress Efficacy Side Effects Adherence Burden Specific Side Effects
Nov 15, 2009 Can't tell None Always Not at all
Advice/Tips Cost
Nov 15, 2009 I will take any medication that the medical community recommendends. It has helped my Crohn's Disease. $200+ monthly
  • Icon_thumb_off 0 helpful marks
  • indyborn
    Sex: F
    Data Quality: 2 stars
    ALS: 2 yrs
    Bi-Pap
    Mouth/throat: moderate
    Arms: mild
    Chest: none
    Legs: none
    See profile
  • indyborn
  • by indyborn
    current dosage:
    50 mg daily
    time on dosage:
    about 1 year
    purpose:
    Slow my ALS progress
  • a5fe71a1435823b81de1a64ba5bda8e1f2cbe0db
Slow my ALS progress Efficacy Side Effects Adherence Burden Specific Side Effects
Nov 20, 2008 Can't tell None Always Not at all
Feb 18, 2009 Can't tell None Always Not at all
May 23, 2009 Can't tell None Always Not at all
Aug 10, 2009 Can't tell None Always Not at all
Nov 13, 2009 Can't tell None Always Not at all
  • Icon_thumb_on 1 helpful mark
  • LianneGoes
    Sex: F
    Data Quality: 2 stars
    ALS: 1 yr
    Wheelchair
    Mouth/throat: none
    Arms: none
    Chest: none
    Legs: moderate
    See profile
  • LianneGoes
  • by LianneGoes
    current dosage:
    100 mg daily
    time on dosage:
    about 7 months
    purpose:
    Slow my ALS progress
  • c22e69261ef58a1bec81544f8d339c4080058654
Slow my ALS progress Efficacy Side Effects Adherence Burden Specific Side Effects
May 10, 2009 Can't tell None Always Not at all
Sep 20, 2009 Can't tell Mild Always Not at all
  • Fatigue
  • fast hart beating
Nov 09, 2009 Can't tell Moderate Always Not at all
  • fast hart beating
  • Fatigue
Advice/Tips Cost
Sep 20, 2009 Can't tell if it helps. But I have seen the statistics: so I keep on taking it. I just believe it helps, even if I cant be sure. < $25 monthly
Nov 09, 2009 The only proven treatment: so I will keep on taking it. < $25 monthly
  • Icon_thumb_off 0 helpful marks
  • Pen'sup
    Sex: F
    Data Quality: 2 stars
    ALS: 3 yrs
    Mouth/throat: none
    Arms: none
    Chest: none
    Legs: none
    See profile
  • Pen'sup
  • by Pen'sup
    current dosage:
    100 mg daily
    time on dosage:
    about 1 years
    purpose:
    Slow my ALS progress
  • 9dfcbcf865a2a1da7a64e7fad3060f548d4ee9a9
Slow my ALS progress Efficacy Side Effects Adherence Burden Specific Side Effects
Nov 17, 2008 Can't tell None Sometimes Very
Nov 09, 2009 Can't tell None Sometimes Very
Advice/Tips Cost
Nov 17, 2008 I have a really hard time being able to take the evening dose at a time when I haven't eaten in 2 hr or don't need to take other medicine within the next hour. many times I take both Li and this at same time -- right before bedtime < $25 monthly
  • Icon_thumb_off 0 helpful marks
  • pabbey13053
    Sex: F
    Data Quality: 1 star
    ALS: 14 yrs
    Mouth/throat: none
    Arms: mild
    Chest: none
    Legs: mild
    See profile
  • pabbey13053
  • by pabbey13053
    current dosage:
    100 mg daily
    time on dosage:
    about 9 years
    purpose:
    disease-related symptoms
  • 512df1abfac9a052ef141cec1ae13ac78e827f0e
disease-related symptoms Efficacy Side Effects Adherence Burden Specific Side Effects
Jan 16, 2009 Major None Always Not at all
Jul 01, 2009 Major None Always Not at all
Nov 05, 2009 Major None Always Not at all
Advice/Tips Cost
Jul 01, 2009 survivor it is monthly
Nov 05, 2009 HELPS WITH ALS monthly
  • Icon_thumb_on 1 helpful mark
  • Wayne Lampe
    Sex: M
    Data Quality: 3 stars
    ALS: 4 yrs
    Bi-Pap
    Mouth/throat: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    See profile
  • Wayne Lampe
  • by Wayne Lampe
    current dosage:
    100 mg daily
    time on dosage:
    about 3 years
    purpose:
    Slow my ALS progress
  • b847f24facdb85f43b8056bbbd2bede320555ef9
Slow my ALS progress Efficacy Side Effects Adherence Burden Specific Side Effects
Aug 23, 2008 Can't tell None Always Not at all
Jan 27, 2009 Can't tell None Always Not at all
Apr 04, 2009 Can't tell None Always Not at all
Oct 28, 2009 Moderate None Always Not at all
  • Icon_thumb_off 0 helpful marks
  • wbear35
    Sex: M
    Data Quality: 3 stars
    ALS: 32 yrs
    Bi-Pap Wheelchair Feeding tube
    Mouth/throat: severe
    Arms: severe
    Chest: moderate
    Legs: severe
    See profile
  • wbear35
  • by wbear35
    current dosage:
    100 mg daily
    time on dosage:
    about 3 years
    purpose:
    Slow my ALS progress
  • 44936da964d2c2a31e63c83d196a4de0871011df
Slow my ALS progress Efficacy Side Effects Adherence Burden Specific Side Effects
Aug 19, 2008 Can't tell None Always Somewhat
Oct 26, 2009 Can't tell None Always Somewhat
Advice/Tips Cost
Aug 19, 2008 MY DOCTOR SAYS MAKE SURE I TAKE IT SO I DO < $25 monthly
  • Icon_thumb_on 1 helpful mark
  • kitkat2055
    Sex: F
    Data Quality: 2 stars
    ALS: 1 yr
    Bi-Pap Wheelchair
    Mouth/throat: mild
    Arms: moderate
    Chest: moderate
    Legs: severe
    See profile
  • by kitkat2055
    current dosage:
    100 mg daily
    time on dosage:
    about 7 months
    purpose:
    Slow my ALS progress
  • fc4d403080cf434827de9501b55935c2eb977113
Slow my ALS progress Efficacy Side Effects Adherence Burden Specific Side Effects
Oct 03, 2009 Can't tell None Always A little
  • Icon_thumb_off 0 helpful marks
  • speechlessinseattle
    Sex: F
    Data Quality: 2 stars
    ALS: 3 yrs
    Mouth/throat: mild
    Arms: none
    Chest: none
    Legs: moderate
    See profile
  • speechlessinseattle
  • by speechlessinseattle
    current dosage:
    100 mg daily
    time on dosage:
    about 3 months
    purpose:
    Slow my ALS progress
  • e7350e24449b97aa8dbbb98f90a6239911887f6e
Slow my ALS progress Efficacy Side Effects Adherence Burden Specific Side Effects
May 31, 2009 Can't tell Mild Always Not at all
  • Sensation in tongue
  • Skin irritation
Jun 01, 2009 Can't tell Moderate Always Not at all
  • Lightheadedness
  • Sensation in tongue
  • lips and tongue go numb
Jun 06, 2009 Can't tell Mild Always Not at all
  • Lightheadedness
  • lips and tongue go numb
  • Sensation in tongue
Aug 11, 2009 Can't tell None Always Not at all
Aug 25, 2009 Can't tell Severe Always Not at all
  • lips and tongue go numb
  • Sensation in tongue
  • weakness in lips
Advice/Tips Cost
May 31, 2009 unsure as of yet. < $25 monthly
Jun 01, 2009 take it as directed by your doctor. < $25 monthly
Aug 11, 2009 If you can afford it, take it. What can it hurt. < $25 monthly
Aug 25, 2009 Make sure to get the liver enzyme tests done regularly. < $25 monthly
  • Icon_thumb_on 1 helpful mark
  • dundee
    Sex: M
    Data Quality: 2 stars
    ALS: 8 yrs
    Bi-Pap Wheelchair
    Mouth/throat: moderate
    Arms: moderate
    Chest: moderate
    Legs: moderate
    See profile
  • dundee
  • by dundee
    current dosage:
    100 mg daily
    time on dosage:
    about 3 years
    purpose:
    Slow my ALS progress
  • 1456342b38393d1110cb7ce07cee00b75e26aac5
Slow my ALS progress Efficacy Side Effects Adherence Burden Specific Side Effects
Dec 22, 2008 Slight Moderate Always Not at all
  • Nausea
Aug 22, 2009 Slight None Always Not at all
  • Icon_thumb_on 1 helpful mark
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