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41 patient evaluations for Riluzole

  • C.J.
    Sex: F
    Data Quality: 2 stars
    ALS: 2 yrs
    Mouth/throat: moderate
    Arms: none
    Chest: none
    Legs: mild
    See profile
  • C.J.
  • by C.J.
    current dosage:
    50 mg daily
    time on dosage:
    about 1 year
    purpose:
    Slow my ALS progress
  • b1e2d8f71237ca11174969f2e1e83b3999fb17ef
Slow my ALS progress Efficacy Side Effects Adherence Burden Specific Side Effects
Nov 15, 2009 Can't tell None Always Not at all
Advice/Tips Cost
Nov 15, 2009 I will take any medication that the medical community recommendends. It has helped my Crohn's Disease. $200+ monthly
  • Icon_thumb_off 0 helpful marks
  • indyborn
    Sex: F
    Data Quality: 2 stars
    ALS: 2 yrs
    Bi-Pap
    Mouth/throat: moderate
    Arms: mild
    Chest: none
    Legs: none
    See profile
  • indyborn
  • by indyborn
    current dosage:
    50 mg daily
    time on dosage:
    about 1 year
    purpose:
    Slow my ALS progress
  • 59e90d01406bb156763feaf1f8a0997a59d55c56
Slow my ALS progress Efficacy Side Effects Adherence Burden Specific Side Effects
Nov 20, 2008 Can't tell None Always Not at all
Feb 18, 2009 Can't tell None Always Not at all
May 23, 2009 Can't tell None Always Not at all
Aug 10, 2009 Can't tell None Always Not at all
Nov 13, 2009 Can't tell None Always Not at all
  • Icon_thumb_on 1 helpful mark
  • LianneGoes
    Sex: F
    Data Quality: 3 stars
    ALS: 1 yr
    Wheelchair
    Mouth/throat: none
    Arms: none
    Chest: none
    Legs: moderate
    See profile
  • LianneGoes
  • by LianneGoes
    current dosage:
    100 mg daily
    time on dosage:
    about 7 months
    purpose:
    Slow my ALS progress
  • c0039de8bf529975d33b4e4fff64a20bc61ec70d
Slow my ALS progress Efficacy Side Effects Adherence Burden Specific Side Effects
May 10, 2009 Can't tell None Always Not at all
Sep 20, 2009 Can't tell Mild Always Not at all
  • Fatigue
  • fast hart beating
Nov 09, 2009 Can't tell Moderate Always Not at all
  • fast hart beating
  • Fatigue
Advice/Tips Cost
Sep 20, 2009 Can't tell if it helps. But I have seen the statistics: so I keep on taking it. I just believe it helps, even if I cant be sure. < $25 monthly
Nov 09, 2009 The only proven treatment: so I will keep on taking it. < $25 monthly
  • Icon_thumb_off 0 helpful marks
  • Pen'sup
    Sex: F
    Data Quality: 2 stars
    ALS: 3 yrs
    Mouth/throat: none
    Arms: none
    Chest: none
    Legs: none
    See profile
  • Pen'sup
  • by Pen'sup
    current dosage:
    100 mg daily
    time on dosage:
    about 1 years
    purpose:
    Slow my ALS progress
  • 20c79e09b01ffb90250c8bad79cd9239d5a32b1b
Slow my ALS progress Efficacy Side Effects Adherence Burden Specific Side Effects
Nov 17, 2008 Can't tell None Sometimes Very
Nov 09, 2009 Can't tell None Sometimes Very
Advice/Tips Cost
Nov 17, 2008 I have a really hard time being able to take the evening dose at a time when I haven't eaten in 2 hr or don't need to take other medicine within the next hour. many times I take both Li and this at same time -- right before bedtime < $25 monthly
  • Icon_thumb_off 0 helpful marks
  • pabbey13053
    Sex: F
    Data Quality: 1 star
    ALS: 14 yrs
    Mouth/throat: none
    Arms: mild
    Chest: none
    Legs: mild
    See profile
  • pabbey13053
  • by pabbey13053
    current dosage:
    100 mg daily
    time on dosage:
    about 9 years
    purpose:
    disease-related symptoms
  • ccd4047717084d020ab0a40b6b3d01a70ca2609f
disease-related symptoms Efficacy Side Effects Adherence Burden Specific Side Effects
Jan 16, 2009 Major None Always Not at all
Jul 01, 2009 Major None Always Not at all
Nov 05, 2009 Major None Always Not at all
Advice/Tips Cost
Jul 01, 2009 survivor it is monthly
Nov 05, 2009 HELPS WITH ALS monthly
  • Icon_thumb_on 1 helpful mark
  • Wayne Lampe
    Sex: M
    Data Quality: 3 stars
    ALS: 4 yrs
    Bi-Pap
    Mouth/throat: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    See profile
  • Wayne Lampe
  • by Wayne Lampe
    current dosage:
    100 mg daily
    time on dosage:
    about 3 years
    purpose:
    Slow my ALS progress
  • 203ce3bbf7800a5008ededef9ca7981738fa1d1c
Slow my ALS progress Efficacy Side Effects Adherence Burden Specific Side Effects
Aug 23, 2008 Can't tell None Always Not at all
Jan 27, 2009 Can't tell None Always Not at all
Apr 04, 2009 Can't tell None Always Not at all
Oct 28, 2009 Moderate None Always Not at all
  • Icon_thumb_off 0 helpful marks
  • wbear35
    Sex: M
    Data Quality: 3 stars
    ALS: 32 yrs
    Bi-Pap Wheelchair Feeding tube
    Mouth/throat: severe
    Arms: severe
    Chest: moderate
    Legs: severe
    See profile
  • wbear35
  • by wbear35
    current dosage:
    100 mg daily
    time on dosage:
    about 3 years
    purpose:
    Slow my ALS progress
  • 94022172e07d026399a83a32a8c78b1efef9c1cb
Slow my ALS progress Efficacy Side Effects Adherence Burden Specific Side Effects
Aug 19, 2008 Can't tell None Always Somewhat
Oct 26, 2009 Can't tell None Always Somewhat
Advice/Tips Cost
Aug 19, 2008 MY DOCTOR SAYS MAKE SURE I TAKE IT SO I DO < $25 monthly
  • Icon_thumb_on 1 helpful mark
  • kitkat2055
    Sex: F
    Data Quality: 2 stars
    ALS: 1 yr
    Bi-Pap Wheelchair
    Mouth/throat: mild
    Arms: moderate
    Chest: moderate
    Legs: severe
    See profile
  • by kitkat2055
    current dosage:
    100 mg daily
    time on dosage:
    about 7 months
    purpose:
    Slow my ALS progress
  • a0a682e472ffae4978cbe693d9c21f910d54e6c1
Slow my ALS progress Efficacy Side Effects Adherence Burden Specific Side Effects
Oct 03, 2009 Can't tell None Always A little
  • Icon_thumb_off 0 helpful marks
  • speechlessinseattle
    Sex: F
    Data Quality: 2 stars
    ALS: 3 yrs
    Mouth/throat: moderate
    Arms: none
    Chest: none
    Legs: moderate
    See profile
  • speechlessinseattle
  • by speechlessinseattle
    current dosage:
    100 mg daily
    time on dosage:
    about 3 months
    purpose:
    Slow my ALS progress
  • c9840fe04dd250020a580d2a617fb58613c5c7bc
Slow my ALS progress Efficacy Side Effects Adherence Burden Specific Side Effects
May 31, 2009 Can't tell Mild Always Not at all
  • Sensation in tongue
  • Skin irritation
Jun 01, 2009 Can't tell Moderate Always Not at all
  • Lightheadedness
  • Sensation in tongue
  • lips and tongue go numb
Jun 06, 2009 Can't tell Mild Always Not at all
  • Lightheadedness
  • lips and tongue go numb
  • Sensation in tongue
Aug 11, 2009 Can't tell None Always Not at all
Aug 25, 2009 Can't tell Severe Always Not at all
  • lips and tongue go numb
  • Sensation in tongue
  • weakness in lips
Advice/Tips Cost
May 31, 2009 unsure as of yet. < $25 monthly
Jun 01, 2009 take it as directed by your doctor. < $25 monthly
Aug 11, 2009 If you can afford it, take it. What can it hurt. < $25 monthly
Aug 25, 2009 Make sure to get the liver enzyme tests done regularly. < $25 monthly
  • Icon_thumb_on 1 helpful mark
  • dundee
    Sex: M
    Data Quality: 2 stars
    ALS: 8 yrs
    Bi-Pap Wheelchair
    Mouth/throat: moderate
    Arms: moderate
    Chest: moderate
    Legs: moderate
    See profile
  • dundee
  • by dundee
    current dosage:
    100 mg daily
    time on dosage:
    about 3 years
    purpose:
    Slow my ALS progress
  • 3bb077efdf18f39e57cd97c6ac31b2c03a832530
Slow my ALS progress Efficacy Side Effects Adherence Burden Specific Side Effects
Dec 22, 2008 Slight Moderate Always Not at all
  • Nausea
Aug 22, 2009 Slight None Always Not at all
  • Icon_thumb_on 1 helpful mark
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