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Carbidopa-Levodopa Treatment Report

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27 patient evaluations for Carbidopa-Levodopa with a side effects rating of ModerateModerateModerateModerateModerate

Purpose: Parkinson's Disease (Started Jul 27, 2011)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Apr 18, 2013 As needed Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways SomewhatSomewhatSomewhatSomewhatSomewhat
Side effects:
Dyskinesia
Date
Apr 18, 2013
Advice & Tips
This survey doesn't account for the way i take L-dopa. I started out at 1 tablet every 6 hours. Now I am at 0.75 tablet every 4 hours. So this means i am taking a smaller dose at more frequent intervals as Parkinson's progresses. If I take more than needed, the dyskinesia starts. If I go too long without a dose (usually sitting at work or computer), forget to take it, hand tremor starts.
Cost
< $25 monthly
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Purpose: Parkinson's Disease (Started Jul 06, 2012)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Jul 23, 2012 300 mg Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Date
Jul 23, 2012
Advice & Tips
The benefits are so great that I have no difficulty in remembering to take the meds. I am standing up straight now, walking with no difficulty, and doing things I haven't done in years.
Cost
$50-99 monthly
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Purpose: Parkinson's Disease (Started Aug 31, 2010)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Mar 02, 2012 3 x 25 mg-100 mg Daily Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Aug 23, 2011 3 x 25 mg-100 mg Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Side effects:
Excessive daytime sleepiness (somnolence)
Date
Aug 23, 2011
Advice & Tips
When I first started this 11 months ago, I felt so light and free on my feet. Much easier to type. Much more effective than Mirapex which made me tired). Then, I started getting more rigid, so the Dr increased the dose from from 1 tab 3x a day to 1.5 tabs 3x a day. I developed dyskenisia immediatley. Very disappointed, but he said i was very sensitive to it and that is also good. So, I dropped back to 1 tab 3x a day with the addition of amantadine 100mg 2x a day. I may experiment with 1.25tabs dosage to try to get the max. Dr said increasing the amantadine may contribute to insomnia.
Cost
< $25 monthly
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Purpose: Parkinson's Disease (Started Nov 12, 2009)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Feb 11, 2012 6 x 25 mg-100 mg Daily Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Date
Feb 11, 2012
Advice & Tips
Separate, by one hour, protein intake from treatment. Doing this separation, I'm told, assures the strongest possible impact of the treatment. My experience supports this.
Cost
< $25 monthly
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Purpose: Parkinson's Disease (Started Oct 21, 2009)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Jan 22, 2012 4 x 25 mg-100 mg Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Dec 20, 2010 4 x 25 mg-100 mg Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways VeryVeryVeryVeryVery
Mar 03, 2010 3 x 25 mg-100 mg Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
Feb 04, 2010 3 x 25 mg-100 mg Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major MildMildMildMildMild AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Nov 14, 2009 3 x 25 mg-100 mg Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major MildMildMildMildMild AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
Side effects:
Sleep problems, Insomnia, Compulsive behaviors, Drowsiness, Increased insomnia
Date
Dec 20, 2010
Advice & Tips
Thus far, I have had done of the Dyskinesia that I feared. However I have read that it takes up to 4 years to get these uncontrollable body ticks.
Cost
< $25 monthly
Date
Mar 03, 2010
Advice & Tips
It is like a night and day improvement. I wish that I had started on it earlier. Many of my symptoms have beem minimized.
Cost
< $25 monthly
Date
Feb 04, 2010
Advice & Tips
Since beginning Sinemet in 10-09 I can tell a great improvement. When I was only on Mirapex and Azilect, I have many PD symptoms that were not under control. The medicine would only work for about 3 months and then the symptoms yould return. Now that I am on Sinemet, it is like a day and night improvement. The sinemet has almost made the symptoms disappear; something that the Mirapex and Azilect did not do.
Cost
< $25 monthly
Date
Nov 14, 2009
Advice & Tips
I started taking Sinemet kickingi and dragging. I had been on Azilect andn Mirapex for over 18 months. My PD symptoms were increasing: the arm tremors were increasing, walking was turning back into shuffling, I felt confused, etc. I have been on Sinemet for about 3 weeks and I must admit that I haven't felt this good in years. I am talking better, less mumbling, I am actually moving more quickly.
Cost
< $25 monthly
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Purpose: Parkinson's Disease (Started Aug 22, 2004)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
May 05, 2011 4 x 25 mg-250 mg Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Mar 19, 2009 4 x 25 mg-250 mg Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major MildMildMildMildMild AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Mar 15, 2009 4 x 25 mg-250 mg Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major MildMildMildMildMild AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
Side effects:
Nominal Aphasia, Sleep problems, on/off time is like a rollercoaster ride, Diminished sense of taste, Drowsiness
Date
May 05, 2011
Advice & Tips
Carbo/levo consistently seems to be the most effective med I take. I can tell when it is time for me to take another one. Since sometimes my throat tightens up and my body just refuses to take another pill, I say a little prayer, relax my throat muscle and eventually it goes down. Keeps my ability to walk with confidence at a steady level.
Cost
$25-49 monthly
Date
Mar 19, 2009
Advice & Tips
Works with Mirapex to give maximum benefit to both meds.
Cost
$25-49 monthly
Date
Mar 15, 2009
Advice & Tips
Thank God there are meds to help you through this illness.
Cost
$50-99 monthly
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Purpose: Parkinson's Disease (Started Jun 01, 2009)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Mar 30, 2011 5 x 25 mg-100 mg Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
Dec 29, 2010 5 x 25 mg-100 mg Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Side effects:
Tired upon waking, Jerky movements (dyskinesia)
Date
Mar 30, 2011
Advice & Tips
Dyskinesia if more than 500/mg/day
Date
Dec 29, 2010
Advice & Tips
The drug works quite well but takes some time to adjust to a suitable dosage... I found out there is an absolute limit to how much I can take in a 23-hour period. If I take more than five tablets, severe side effects kick in. Also while on this drug I am tired most of the time.
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Purpose: Parkinson's Disease (Started Nov 19, 2001)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Mar 25, 2011 4 x 25 mg-250 mg Daily Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Date
Mar 25, 2011
Advice & Tips
Do not stop taking your meds without Drs approval I felt like I was getting dyskenesia froim the med
Cost
< $25 monthly
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Purpose: Parkinson's Disease (Started Aug 26, 2010)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Dec 16, 2010 25 mg-100 mg Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Aug 26, 2010 25 mg-100 mg Daily ?Can't tell MildMildMildMildMild AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Side effects:
Erectile dysfunction, Double vision (diplopia)
Date
Dec 16, 2010
Advice & Tips
I immediatly felt a positive difference when I started . I am still taking Carbidopa Levodopa , not just the Extended release.My neuro wanted to switch me to another medication (stalevo) which he called Sinemet "with a kick." I was not able to take the Stalevo as my insurance co-payment would have been $100.00. We switched to a combo of Carbidopa Levodopa and Comton.
Cost
< $25 monthly
Date
Aug 26, 2010
Advice & Tips
I have been on the carbidopa/levadopa (25/100) for over 1 year. When I first started I felt an immediate change for the better. About 4 months ago, I started to see more of the old PD symptoms come back. Mostly, I was having leg stiffness/spasms. Then I started having difficulty forming my words, etc. I went for my regular check-up. My peak (on )time had changed from morning to the afternoon. Therefore, I remain on 2 daily doses (am and at lunch ) of the regular carbidopa/levedopa 25/10. At 7pm I take the controlled release. this is to get me through the night and to have a better morning.
Cost
< $25 monthly
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Purposes: Parkinson's Disease and Stiffness/Spasticity (Started Jun 19, 2001)
Date Dosage Parkinson's Disease Perceived effectiveness Stiffness/Spasticity Perceived effectiveness Side Effects Adherence Burden
Dec 01, 2010 50 mg Daily ?Can't tell ?Can't tell ModerateModerateModerateModerateModerate SometimesSometimesSometimesSometimesSometimes Not at allNot at allNot at allNot at allNot at all
Side effects:
Dyskinesia
Date
Dec 01, 2010
Advice & Tips
With the support of my neurologist, I stopped taking Sinemet 25/100 because I didn't seem to need it. It had been prescribed as PRN, but I was not having a need for it. I keep one or two with me, just in case, but have not taken it in several months.
Cost
< $25 monthly
  • Icon_thumb_off 0 helpful marks
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