99 patient evaluations for Natalizumab taken for the purpose of 'Multiple Sclerosis'

NW native son
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NW native son
Sex: M
Data Quality: 1 star
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: mild
Speech: mild
Swallowing: moderate
Upper limb: moderate
Walking: moderate
I have:
MS

See NW native son's full Natalizumab history

Feb 2, 2010 (Started Feb 01, 2010)

  • Perceived effectiveness for Multiple Sclerosis: Moderate
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: As needed
Cost: < $25 monthly

Jan 14, 2009 (Started Feb 01, 2010)

  • Perceived effectiveness for Multiple Sclerosis: Can’t tell
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Advice & Tips: I believe my MS is getting worse but still do feel the Tysabri is helping me.
Cost: < $25 monthly

  • 1 helpful mark
OldGypsy
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OldGypsy
Sex: F
Data Quality: 0 stars
Sensation: Moderate
Overall: Mild
Cognition: moderate
Vision: moderate
Speech: none
Swallowing: none
Upper limb: mild
Walking: moderate
I have:
MS

See OldGypsy's full Natalizumab history

Jan 22, 2010 (Started )

  • Perceived effectiveness for Multiple Sclerosis: Major
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Somewhat
Advice & Tips: I was barely able to walk before I started Tysabri. I tried most of the other tx's available prior to agreeing to try Tysabri. This is the bomb! I got my old life back! Yes, the side effects are bothersome, but not as bothersome as sitting in a chair all day, unable to get up. My veins are not very cooperative when it comes to the monthly infusions, but the tradeoff is huge. Be sure to get lab tests done often to avoid other problems, ie liver, vitamin D levels, ect.
Cost: $200+ monthly
Side effects: Back pain

  • 1 helpful mark
LELAMARIE
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LELAMARIE
Sex: F
Data Quality: 0 stars
Sensation: Moderate
Overall: Mild
Cognition: moderate
Vision: moderate
Speech: mild
Swallowing: mild
Upper limb: moderate
Walking: moderate
I have:
MS

See LELAMARIE's full Natalizumab history

Dec 31, 2009 (Started Dec 11, 2007)

  • Perceived effectiveness for Multiple Sclerosis: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: Monthly
Advice & Tips: I have just taken my 28th Tysarbri treatment on December 28, 2009. I am do ing great!
Cost: < $25 monthly

  • 0 helpful marks
jules2u
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jules2u
Data Quality: 0 stars
Sensation: Moderate
Overall: None
Cognition: moderate
Vision: moderate
Speech: none
Swallowing: none
Upper limb: none
Walking: none
I have:
MS

See jules2u's full Natalizumab history

Dec 29, 2009 (Started May 14, 2008)

  • Perceived effectiveness for Multiple Sclerosis: Slight
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 300 mg/15 mL every 4 weeks
Advice & Tips: Much better than the other MS treatments. Not having the issues with the side effects.
Cost: $100-199 monthly

  • 0 helpful marks
Sloopercat
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Sloopercat
Sex: M
Data Quality: 1 star
Sensation: Mild
Overall: Mild
Cognition: mild
Vision: none
Speech: mild
Swallowing: none
Upper limb: moderate
Walking: moderate
I have:
MS

See Sloopercat's full Natalizumab history

Dec 15, 2009 (Started Dec 19, 2006)

  • Perceived effectiveness for Multiple Sclerosis: Moderate
  • Side Effects: None
  • Adherence: Always
  • Burden: Somewhat
Dosage: 300 mg/15 mL Daily
Advice & Tips: Was on it for 3 years, and in consultation with doc, decided to take a drug holiday.

  • 0 helpful marks
kimberely4
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kimberely4
Sex: F
Data Quality: 0 stars
Sensation: Moderate
Overall: Mild
Cognition: moderate
Vision: none
Speech: none
Swallowing: moderate
Upper limb: moderate
Walking: moderate
I have:
MS

See kimberely4's full Natalizumab history

Nov 17, 2009 (Started Aug 28, 2009)

  • Perceived effectiveness for Multiple Sclerosis: Major
  • Side Effects: Mild
  • Adherence: Never
  • Burden: Not at all
Dosage: 300 mg/15 mL every 4 weeks
Advice & Tips: I felt better after first treatment than I had in 10 yrs.
Side effects: Tiredness, Headaches, Fear of PML, UTI symptoms

Aug 30, 2009 (Started Aug 28, 2009)

  • Perceived effectiveness for Multiple Sclerosis: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 300 mg/15 mL every 4 weeks
Side effects: Tiredness, Headaches, Fear of PML, UTI symptoms

  • 0 helpful marks
trixiec1
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trixiec1
Sex: F
Data Quality: 2 stars
Sensation: Mild
Overall: Mild
Cognition: moderate
Vision: mild
Speech: mild
Swallowing: moderate
Upper limb: mild
Walking: moderate
I have:
MS

See trixiec1's full Natalizumab history

Nov 4, 2009 (Started Oct 29, 2007)

  • Perceived effectiveness for Multiple Sclerosis: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 300 mg/15 mL Monthly
Advice & Tips: I thought this treatment worked great, no relapses, no MRI changes after 33 doses. Due to the unknown risk of developing PML after 2 years on the drug , 2 neurologists suggestd I change treatments for safety reasons. No 100% effective treatment for PML. So risk vs benefit became too high.
Cost: < $25 monthly

  • 0 helpful marks
WILLIAM BAJCZ
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WILLIAM BAJCZ
Sex: M
Data Quality: 0 stars
Sensation: None
Overall: Mild
Cognition: moderate
Vision: none
Speech: none
Swallowing: none
Upper limb: moderate
Walking: moderate
I have:
MS

See WILLIAM BAJCZ's full Natalizumab history

Nov 2, 2009 (Started Sep 02, 2009)

  • Perceived effectiveness for Multiple Sclerosis: Can’t tell
  • Side Effects: None
  • Adherence: Always
  • Burden: A little
Dosage: 300 mg/15 mL every 4 weeks
Advice & Tips: Monthly, I am have taken 2 doses at Dr Tolia's office. It lasts 3 hours each time. So far I have not experienced any positive effect and other then the TN it hasn't gotten worse but the Trigeminal Neuralgia has gotten better due to new drugs prescribed this Saturday.

  • 0 helpful marks
hhpaint
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hhpaint
Sex: F
Data Quality: 0 stars
Sensation: Moderate
Overall: Mild
Cognition: moderate
Vision: moderate
Speech: mild
Swallowing: none
Upper limb: moderate
Walking: severe
I have:
MS

See hhpaint's full Natalizumab history

Oct 31, 2009 (Started May 12, 2008)

  • Perceived effectiveness for Multiple Sclerosis: None
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: Monthly
Cost: $200+ monthly

  • 0 helpful marks
vjwebb59
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vjwebb59
Sex: F
Data Quality: 2 stars
Sensation: Moderate
Overall: Mild
Cognition: moderate
Vision: mild
Speech: mild
Swallowing: moderate
Upper limb: mild
Walking: moderate
I am: g
I have:
MS

See vjwebb59's full Natalizumab history

Oct 21, 2009 (Started Jan 15, 2008)

  • Perceived effectiveness for Multiple Sclerosis: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 300 mg/15 mL every 4 weeks

  • 0 helpful marks
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