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Natalizumab Treatment Report

Category: Prescription Drugs

Most Popular Types: Tysabri, Antegren

See patients taking Natalizumab

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92 patient evaluations for Natalizumab taken for the purpose of 'MS (Multiple Sclerosis)'

ciachef

Sex: M

Data Quality: 2 stars

MS: 10 yrs

Type: Relapsing-Remitting

Sensation: Moderate

Overall: Moderate

Cognition: moderate

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate
by ciachef
See ciachef's full Natalizumab history

**Purpose:** MS (Multiple Sclerosis) *(Started Nov 02, 2009)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Mar 22, 2012		Major	None	Always	Somewhat

Date: Mar 22, 2012
Advice & Tips: I really hated coming off of this drug. Some of my MRI's actually showed repair to my system. In the end the risk of PML got to be too great and I had to stop, but man, what a great treatment.
Cost: < $25 monthly

0 helpful marks

Unicat

Sex: F

Data Quality: 2 stars

MS: 11 yrs

Type: Relapsing-Remitting

Sensation: Moderate

Overall: Moderate

Cognition: moderate

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate
by Unicat
See Unicat's full Natalizumab history

**Purpose:** MS (Multiple Sclerosis) *(Started Jan 18, 2012)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Feb 18, 2012	300 mg/15 mL Monthly	?Can't tell	Moderate	Always	Somewhat

0 helpful marks

TysabriSept08

Sex: F

Data Quality: 3 stars

MS: 30 yrs

Mentor

Type: Secondary Progressive

Sensation: Moderate

Overall: Mild

Cognition: none

Vision: none

Speech: none

Swallowing: none

Upper limb: moderate

Walking: moderate
by TysabriSept08
See TysabriSept08's full Natalizumab history

**Purpose:** MS (Multiple Sclerosis) *(Started Sep 10, 2008)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Nov 20, 2011	300 mg/15 mL Every 6 Weeks	Moderate	None	Always	Not at all
Jun 11, 2010	300 mg/15 mL Every 6 Weeks	Moderate	None	Always	Not at all
Jun 10, 2010	300 mg/15 mL Every 6 Weeks	Moderate	None	Always	Not at all

Side effects:: Breast Cancer recurrence on Tysabri

Date: Nov 20, 2011
Advice & Tips: heLps with SPMS
Cost: < $25 monthly

Date: Jun 11, 2010
Advice & Tips: I started Tysabri to stop the progression of MS, Secondary Progressive, and becoming inexhorably worse over time. I was effectively diagnosed with MS in 1982. Starting Tysabri in 2008, 26 years into MS, was a last-ditch effort. Even though Tysabri is targeted at RR, one might as well throw anything one can at it (all of my neuros use this approach.) I was going down hill. I started Tysabri using 4 week intervals between infusions. After two months, an old cellulitis infection returned, and I just did not feel "well" - like I was always coming down with something. I changed to Tysabri every 4 weeks, and had no further problems. Cipro for about 5-6 weeks cured the cellulitis infection. Although I started Tysabri to stop the progression of MS, I was surprised to find that some neurological function, gone for some 10 to 20 years, returned. Oh, it was minor and subtle, but ientifyable. For example, my "bad" left hand got a little stronger and I could move my fingers better. In my right hand, my stronger, normal hand, the ability to feel vibrations, long gone, returned a little. I can now feel vibrations in that hand, not as strongly as in the left hnd, but discernable. My QOL has improved 100% on Tysabri. Tysabri slowed, but did not stop the MS progression. earlier this year, I did get a little worse - bad left leg is weaker and clonus is much more of a problem. However, Tysabri has helped, overall. I have a personal neuro (a woman) who prescribed Tysabri, and a Tysabri neuro (insurance hoops). My Tysabri neuro, who tightened up his department's Tysabri protocol insisted that he take over issuing my prescription. I saw him for the first time in April 2010. He started to make noises about Tysabri being for RR, etc. He concluded that I was SP. He then saw the data on how well I had done on Tysabri and he kept quiet. He was also mollified when he saw that I took Tysabri every 6 weeks, not every 4. However, if he will not continue to prescribe my Tysabri, I will go somewhere else!!!!!!!
Cost: < $25 monthly

Date: Jun 10, 2010
Advice & Tips: MORE EFFECTIVE FOR AFRICAN AMERICANS THAN THE BETA INTERFERONS

3 helpful marks

arkk

Sex: M

Data Quality: 1 star

MS: 26 yrs

Type: Progressive Relapsing

Sensation: Mild

Overall: Mild

Cognition: moderate

Vision: none

Speech: none

Swallowing: moderate

Upper limb: moderate

Walking: moderate
by arkk
See arkk's full Natalizumab history

**Purposes:** Other and MS (Multiple Sclerosis) *(Started Oct 27, 2008)*
Date	Dosage	Other Perceived effectiveness	MS (Multiple Sclerosis) Perceived effectiveness	Side Effects	Adherence	Burden
Oct 19, 2011	300 mg/15 mL Monthly	Moderate	Moderate	None	Always	Not at all
Sep 15, 2011	300 mg/15 mL Monthly	Moderate	Moderate	None	Never	Not at all
Jan 17, 2009	300 mg/15 mL Monthly	?Can't tell		Mild	Always	A little

Side effects:: Headaches, Head pain, Fear of PML

Date: Jan 17, 2009
Advice & Tips: PML concerns..
Cost: < $25 monthly

0 helpful marks

moogie16

Sex: F

Data Quality: 2 stars

MS: 51 yrs

Type: Relapsing-Remitting

Sensation: Moderate

Overall: Moderate

Cognition: moderate

Vision: moderate

Speech: moderate

Swallowing: mild

Upper limb: moderate

Walking: moderate
by moogie16
See moogie16's full Natalizumab history

**Purpose:** MS (Multiple Sclerosis) *(Started Feb 09, 2007)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Oct 18, 2011	300 mg/15 mL Monthly	Major	Severe	Always	Not at all
Jan 16, 2009	300 mg/15 mL Monthly	Major	None	Always	Not at all
Aug 19, 2008	300 mg/15 mL Monthly	Moderate	None	Always	Not at all
Aug 18, 2008	300 mg/15 mL Monthly	Moderate	None	Always	Not at all

Date: Jan 16, 2009
Advice & Tips: Give it time, and refrain from taking a lot of other prescribed drugs for pain issues, or over-the-counter treatments for other MS-related physical problems. I believe the purity of the the Tysabri should be kept intact so as not to affect the potency and effectiveness of this treatment. A positive mental attitude and the desire to overcome this illness couldn't hurt, either. I will overcome.
Cost: < $25 monthly

Date: Aug 19, 2008
Advice & Tips: No more cane, a lot less pain!
Cost: < $25 monthly

Date: Aug 18, 2008
Advice & Tips: Your Immune system needs to be typically too large to be on Tysabri, as it reduces your immune system towards the normal spectrum.
Cost: < $25 monthly

2 helpful marks

heathercf75

Sex: F

Data Quality: 2 stars

MS: 17 yrs

Type: Relapsing-Remitting

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: mild

Speech: mild

Swallowing: none

Upper limb: moderate

Walking: moderate
by heathercf75
See heathercf75's full Natalizumab history

**Purpose:** MS (Multiple Sclerosis) *(Started Oct 09, 2012)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Oct 10, 2011		Major	None	Always	Not at all

0 helpful marks

grandmahoney

Sex: F

Data Quality: 0 stars

MS: 11 yrs

Type: Relapsing-Remitting

Sensation: Moderate

Overall: Moderate

Cognition: moderate

Vision: moderate

Speech: moderate

Swallowing: mild

Upper limb: moderate

Walking: moderate
by grandmahoney
See grandmahoney's full Natalizumab history

**Purpose:** MS (Multiple Sclerosis) *(Started Oct 08, 2009)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Sep 08, 2011		Moderate	Severe	Always	Not at all

Date: Sep 08, 2011
Advice & Tips: I tested positive for jc virus. I experienced side effects such as shingles, herpes, and excema.

0 helpful marks

richstar3

Sex: M

Data Quality: 2 stars

MS: 31 yrs

Type: Relapsing-Remitting

Sensation: Moderate

Overall: Mild

Cognition: mild

Vision: mild

Speech: none

Swallowing: none

Upper limb: moderate

Walking: moderate
by richstar3
See richstar3's full Natalizumab history

**Purpose:** MS (Multiple Sclerosis) *(Started Jul 23, 2009)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Sep 01, 2011	300 mg/15 mL every 4 weeks	Moderate	None	Always	Somewhat

Date: Sep 01, 2011
Advice & Tips: It seemed to make me fell better after 1 week then about 1 week before my next treatment I started feeling crummy again. I had a flair up and stopped using the drug.

0 helpful marks

cindy in arkansas

Sex: F

Data Quality: 0 stars

MS: 15 yrs

Type: Relapsing-Remitting

Sensation: Severe

Overall: Moderate

Cognition: severe

Vision: moderate

Speech: moderate

Swallowing: none

Upper limb: mild

Walking: moderate
by cindy in arkansas
See cindy in arkansas's full Natalizumab history

**Purpose:** MS (Multiple Sclerosis) *(Started Dec 01, 2007)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Jul 25, 2011	300 mg/15 mL Monthly	Major	None	Always	Not at all
May 18, 2009	300 mg/15 mL Monthly	Moderate	None	Always	Not at all

Date: Jul 25, 2011
Advice & Tips: I have been on Tysabri for several years now and I am totally happy with my therapy. I did have to get a port last summer, however it makes my infusions so much easier! It is working well for me.
Cost: $200+ monthly

Date: May 18, 2009
Advice & Tips: The expense is my only complaint. I have pretty good insurance and it's still expensive for me. I have friends who don't pay quite as much though???
Cost: $100-199 monthly

3 helpful marks

ILoveMyDogs!

Sex: F

Data Quality: 1 star

MS: 7 yrs

Type: Relapsing-Remitting

Sensation: Moderate

Overall: Mild

Cognition: mild

Vision: mild

Speech: mild

Swallowing: mild

Upper limb: mild

Walking: mild
by ILoveMyDogs!
See ILoveMyDogs!'s full Natalizumab history

**Purpose:** MS (Multiple Sclerosis) *(Started Aug 31, 2008)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
May 17, 2011	300 mg/15 mL Monthly	Major	Mild	Always	Not at all

Side effects:: Lethargy

Date: May 17, 2011
Advice & Tips: For people who have been advised that their symptoms to not warrant the risks associated with Tysabri, I would encourage them to expect more from their MS treatment. I have not had any worsening of my symptoms since starting the drug 2 1/2 years ago, and gained back some of my energy! I started taking it due to adverse reactions to my prior medication, not because my symptoms were uncontrolled. I am so glad I made the switch and that my Dr. was behind it. I don't believe that I have to be struggling with this disease day to day or have an expectation that it will get worse. When I meet other people with MS who say they aren't "bad enough" to go on Tysabri, it really bothers me b/c my personal goal is to be as symptom free as possible. If you can't work due to your illness, struggle to do normal physical activities, or take a ton of other medication to lessen your symptoms, I think you should consider another form of treatment!

4 helpful marks

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