104 patient evaluations for Natalizumab

katonah
3134 thumb
katonah
Sex: F
Data Quality: 0 stars
Sensation: Moderate
Overall: None
Cognition: none
Vision: none
Speech: none
Swallowing: none
Upper limb: moderate
Walking: mild
I have:
MS

See katonah's full Natalizumab history

Mar 4, 2009 (Started May 01, 2008)

  • Perceived effectiveness for Multiple Sclerosis: Can’t tell
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 300 mg Monthly
Advice & Tips: I think it helped me in the beginning but since I stopped my monthly treatment, I can't tell the difference.
Cost: < $25 monthly

  • 0 helpful marks
jfsnaz
4107 thumb
jfsnaz
Sex: M
Data Quality: 0 stars
Sensation: Mild
Overall: Mild
Cognition: moderate
Vision: moderate
Speech: moderate
Swallowing: mild
Upper limb: none
Walking: none
I have:
MS

See jfsnaz's full Natalizumab history

Jul 18, 2009 (Started Apr 08, 2008)

  • Perceived effectiveness for Multiple Sclerosis: Major
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Not at all
Dosage: Monthly
Advice & Tips: The main side affect that bothers me the most is the tightening of my chest and the difficulty breathing during the infusion, also I get the chills during the flush
Cost: < $25 monthly
Side effects: Tiredness, Allergic reaction, Itchy rash, Head pain

  • 0 helpful marks
HeidiK
Portrait default thumb
HeidiK
Sex: F
Data Quality: 0 stars
Sensation: Mild
Overall: None
Cognition: mild
Vision: none
Speech: none
Swallowing: none
Upper limb: none
Walking: mild
I have:
MS

See HeidiK's full Natalizumab history

Jul 27, 2009 (Started Aug 31, 2006)

  • Perceived effectiveness for Multiple Sclerosis: Major
  • Side Effects: Mild
  • Adherence: Always
  • Burden: A little
Dosage: 300 mg/15 mL every 4 weeks
Cost: $200+ monthly
Side effects: Tiredness

  • 0 helpful marks
cmcleigh
27831 thumb
cmcleigh
Sex: F
Data Quality: 0 stars
Sensation: None
Overall: None
Cognition: moderate
Vision: none
Speech: none
Swallowing: none
Upper limb: none
Walking: mild
I am: n
I have:
MS

See cmcleigh's full Natalizumab history

Sep 1, 2009 (Started Aug 01, 2009)

  • Perceived effectiveness for Multiple Sclerosis: Slight
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: 300 mg/15 mL every 4 weeks
Side effects: Itchy rash

  • 0 helpful marks
vjwebb59
12776 thumb
vjwebb59
Sex: F
Data Quality: 2 stars
Sensation: Moderate
Overall: Mild
Cognition: moderate
Vision: mild
Speech: mild
Swallowing: moderate
Upper limb: mild
Walking: moderate
I am: g
I have:
MS

See vjwebb59's full Natalizumab history

Oct 21, 2009 (Started Jan 15, 2008)

  • Perceived effectiveness for Multiple Sclerosis: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 300 mg/15 mL every 4 weeks

  • 0 helpful marks
WILLIAM BAJCZ
14891 thumb
WILLIAM BAJCZ
Sex: M
Data Quality: 0 stars
Sensation: None
Overall: Mild
Cognition: moderate
Vision: none
Speech: none
Swallowing: none
Upper limb: moderate
Walking: moderate
I have:
MS

See WILLIAM BAJCZ's full Natalizumab history

Nov 2, 2009 (Started Sep 02, 2009)

  • Perceived effectiveness for Multiple Sclerosis: Can’t tell
  • Side Effects: None
  • Adherence: Always
  • Burden: A little
Dosage: 300 mg/15 mL every 4 weeks
Advice & Tips: Monthly, I am have taken 2 doses at Dr Tolia's office. It lasts 3 hours each time. So far I have not experienced any positive effect and other then the TN it hasn't gotten worse but the Trigeminal Neuralgia has gotten better due to new drugs prescribed this Saturday.

  • 0 helpful marks
kimberely4
8267 thumb
kimberely4
Sex: F
Data Quality: 0 stars
Sensation: Moderate
Overall: Mild
Cognition: moderate
Vision: none
Speech: none
Swallowing: moderate
Upper limb: moderate
Walking: moderate
I have:
MS

See kimberely4's full Natalizumab history

Nov 17, 2009 (Started Aug 28, 2009)

  • Perceived effectiveness for Multiple Sclerosis: Major
  • Side Effects: Mild
  • Adherence: Never
  • Burden: Not at all
Dosage: 300 mg/15 mL every 4 weeks
Advice & Tips: I felt better after first treatment than I had in 10 yrs.
Side effects: Tiredness, Headaches, Fear of PML, UTI symptoms

Aug 30, 2009 (Started Aug 28, 2009)

  • Perceived effectiveness for Multiple Sclerosis: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 300 mg/15 mL every 4 weeks
Side effects: Tiredness, Headaches, Fear of PML, UTI symptoms

  • 0 helpful marks
lexilew
Portrait default thumb
lexilew
Sex: F
Data Quality: 0 stars
Relapse: Moderate
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: moderate
Swallowing: moderate
Upper limb: moderate
Walking: moderate
I have:
MS

See lexilew's full Natalizumab history

Sep 9, 2009 (Started Jan 05, 2009)

  • Perceived effectiveness for Multiple Sclerosis: None
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 300 mg/15 mL Monthly
Advice & Tips: I was in a FDA study for use of Tysabri and SP. It did not work for me at all. It was easy to toloerate the infusions, but after 9 infusions felt it was best to stop.
Cost: < $25 monthly

  • 0 helpful marks
trixiec1
9969 thumb
trixiec1
Sex: F
Data Quality: 2 stars
Sensation: Mild
Overall: Mild
Cognition: moderate
Vision: mild
Speech: mild
Swallowing: moderate
Upper limb: mild
Walking: moderate
I have:
MS

See trixiec1's full Natalizumab history

Nov 4, 2009 (Started Oct 29, 2007)

  • Perceived effectiveness for Multiple Sclerosis: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 300 mg/15 mL Monthly
Advice & Tips: I thought this treatment worked great, no relapses, no MRI changes after 33 doses. Due to the unknown risk of developing PML after 2 years on the drug , 2 neurologists suggestd I change treatments for safety reasons. No 100% effective treatment for PML. So risk vs benefit became too high.
Cost: < $25 monthly

  • 0 helpful marks
jules2u
Portrait default thumb
jules2u
Data Quality: 0 stars
Sensation: Moderate
Overall: None
Cognition: moderate
Vision: moderate
Speech: none
Swallowing: none
Upper limb: none
Walking: none
I have:
MS

See jules2u's full Natalizumab history

Dec 29, 2009 (Started May 14, 2008)

  • Perceived effectiveness for Multiple Sclerosis: Slight
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 300 mg/15 mL every 4 weeks
Advice & Tips: Much better than the other MS treatments. Not having the issues with the side effects.
Cost: $100-199 monthly

  • 0 helpful marks
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