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Natalizumab Treatment Report

Category: Prescription Drugs

Most Popular Types: Tysabri, Antegren

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98 patient evaluations for Natalizumab

  • araceliaz18
    Sex: F
    Data Quality: 0 stars
    MS: 7 yrs
    Type: Progressive Relapsing
    Sensation: Severe
    Overall: Severe
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: severe
    Walking: severe
  • 25401-thumb
  • by araceliaz18
  • See araceliaz18's full Natalizumab history
Purpose: MS (Multiple Sclerosis) (Started Aug 07, 2009)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Aug 07, 2009 300 mg/15 mL Monthly Led_efficacy_2Led_efficacy_2Led_defaultLed_defaultSlight ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
Date
Aug 07, 2009
Advice & Tips
Don't expect this treatment to work quickly. Since I've been on it I still had 3 relapses. Now that I take it regulary every month I feel ok. I mean, I take it every 1st friday of every month and by the end of the month I'm dragging again. I still get weak, sleep alot, and start slurring or stutter when I talk.
Cost
< $25 monthly
  • Icon_thumb_off 0 helpful marks
  • B JOHNSON
    Sex: M
    Data Quality: 0 stars
    MS: 8 yrs
    Type: Relapsing-Remitting
    Sensation: Moderate
    Overall: None
    Cognition: mild
    Vision: mild
    Speech: mild
    Swallowing: mild
    Upper limb: none
    Walking: none
  • 7169-thumb
  • by B JOHNSON
  • See B JOHNSON's full Natalizumab history
Purpose: MS (Multiple Sclerosis) (Started Dec 10, 2007)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Jun 18, 2009 300 mg/15 mL Monthly Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
Date
Jun 18, 2009
Advice & Tips
the best choice i made for MS
Cost
$100-199 monthly
  • Icon_thumb_off 0 helpful marks
  • Jersey
    Sex: F
    Data Quality: 0 stars
    MS: 20 yrs
    Type: Relapsing-Remitting
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: mild
    Speech: mild
    Swallowing: mild
    Upper limb: moderate
    Walking: severe
  • 9471-thumb
  • by Jersey
  • See Jersey's full Natalizumab history
Purpose: MS (Multiple Sclerosis) (Started Apr 01, 1997)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Feb 12, 2009 300 mg/15 mL Monthly Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major MildMildMildMildMild AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
Side effects:
Headaches, Generalized weakness (asthenia)
  • Icon_thumb_off 0 helpful marks
  • Oilyn
    Sex: F
    Data Quality: 1 star
    MS: 40 yrs
    Type: Progressive Relapsing
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: severe
  • 8230-thumb
  • by Oilyn
  • See Oilyn's full Natalizumab history
Purpose: MS (Multiple Sclerosis) (Started Jan 05, 2009)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Jan 26, 2009 300 mg/15 mL Monthly ?Can't tell SevereSevereSevereSevereSevere AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
Date
Jan 26, 2009
Advice & Tips
be aware of any unusual infections
Cost
< $25 monthly
  • Icon_thumb_off 0 helpful marks
  • Dippy-Degu
    Sex: F
    Data Quality: 0 stars
    MS: 8 yrs
    Type: Relapsing-Remitting
    Sensation: Moderate
    Overall: Mild
    Cognition: moderate
    Vision: mild
    Speech: mild
    Swallowing: moderate
    Upper limb: mild
    Walking: moderate
  • 29250-thumb
  • by Dippy-Degu
  • See Dippy-Degu's full Natalizumab history
Purpose: MS (Multiple Sclerosis) (Started Mar 18, 2009)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Oct 27, 2010 300 mg/15 mL Monthly Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major MildMildMildMildMild AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
Date
Oct 27, 2010
Advice & Tips
After having my monthly infusion I have to sleep for several hours. If I don't I feel ill for a few days, tired, worn out, not fully with it. Tysabri has helped me have as much a normal life as I can, plus I haven't had a major relapse since starting it.
Cost
< $25 monthly
  • Icon_thumb_off 0 helpful marks
  • Sloopercat
    Sex: M
    Data Quality: 1 star
    MS: 17 yrs
    Type: Relapsing-Remitting
    Sensation: Mild
    Overall: Mild
    Cognition: mild
    Vision: none
    Speech: mild
    Swallowing: none
    Upper limb: moderate
    Walking: moderate
  • 8648-thumb
  • by Sloopercat
  • See Sloopercat's full Natalizumab history
Purpose: MS (Multiple Sclerosis) (Started Dec 19, 2006)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Dec 15, 2009 300 mg/15 mL Daily Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways SomewhatSomewhatSomewhatSomewhatSomewhat
Date
Dec 15, 2009
Advice & Tips
Was on it for 3 years, and in consultation with doc, decided to take a drug holiday.
  • Icon_thumb_off 0 helpful marks
  • jenj
    Sex: F
    Data Quality: 2 stars
    MS: 14 yrs
    Mentor
    Type: Relapsing-Remitting
    Sensation: None
    Overall: Mild
    Cognition: none
    Vision: none
    Speech: none
    Swallowing: none
    Upper limb: moderate
    Walking: severe
  • 738-thumb
  • by jenj
  • See jenj's full Natalizumab history
Purpose: MS (Multiple Sclerosis) (Started Jun 12, 2008)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Aug 21, 2008 300 mg/15 mL Monthly Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate MildMildMildMildMild AlwaysAlwaysAlwaysAlwaysAlways SomewhatSomewhatSomewhatSomewhatSomewhat
Side effects:
Tiredness
  • Icon_thumb_off 0 helpful marks
Purpose: MS (Multiple Sclerosis) (Started Dec 22, 2008)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Feb 04, 2011 300 mg/15 mL Monthly Led_efficacy_2Led_efficacy_2Led_defaultLed_defaultSlight MildMildMildMildMild AlwaysAlwaysAlwaysAlwaysAlways SomewhatSomewhatSomewhatSomewhatSomewhat
May 19, 2009 300 mg/15 mL Monthly ?Can't tell MildMildMildMildMild AlwaysAlwaysAlwaysAlwaysAlways A littleA littleA littleA littleA little
Side effects:
Tiredness
Date
May 19, 2009
Advice & Tips
have high hopes, but realistic expectations
Cost
$200+ monthly
  • Icon_thumb_off 0 helpful marks
  • Martin
    Sex: M
    Data Quality: 0 stars
    MS: 7 yrs
    Type: Relapsing-Remitting
    Sensation: None
    Overall: None
    Cognition: mild
    Vision: mild
    Speech: none
    Swallowing: none
    Upper limb: none
    Walking: moderate
  • 1392-thumb
  • by Martin
  • See Martin's full Natalizumab history
Purpose: Don't know (Started Jan 14, 2009)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
May 01, 2009 300 mg/15 mL Monthly Led_efficacy_1Led_defaultLed_defaultLed_defaultNone ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways SomewhatSomewhatSomewhatSomewhatSomewhat
Side effects:
Bladder problems
Date
May 01, 2009
Advice & Tips
It does not work for everyone. It made my desease progress to type 2 progressive.
  • Icon_thumb_off 0 helpful marks
Purpose: MS (Multiple Sclerosis) (Started Jun 01, 2007)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Jan 21, 2011 300 mg/15 mL Monthly Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate MildMildMildMildMild AlwaysAlwaysAlwaysAlwaysAlways SomewhatSomewhatSomewhatSomewhatSomewhat
Side effects:
Pain in hands
Date
Jan 21, 2011
Advice & Tips
After I started taking this drug, I actually regained some function. I have been able to work myself back upto running 10k's. It has been a blessing. For more than a year, the day after the infussion was a great MS day. It was when I would feel my best. By the end of the cycle, I felt the withdrawl. Years later, the energy no longer really noticably spikes or dips. For the last few months, I have had increasing pains in my lower arms to my fingers with most recent pains in my fingers. Odd. Looking at list of possible side effects, I see joint pain listed. I can't say with any certainty the Tysabri causes the joint pain. It is but a guess...still, it is a concern I have that years of use may have a cumulative effect.
Cost
$50-99 monthly
  • Icon_thumb_off 0 helpful marks
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