99 patient evaluations for Natalizumab taken for the purpose of 'Multiple Sclerosis'

ylem
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ylem
Sex: F
Data Quality: 1 star
Sensation: Severe
Overall: Mild
Cognition: mild
Vision: mild
Speech: none
Swallowing: none
Upper limb: mild
Walking: moderate
I am: n
I have:
MS

See ylem's full Natalizumab history

Oct 20, 2010 (Started Jul 23, 2008)

  • Perceived effectiveness for Multiple Sclerosis: Slight
  • Side Effects: None
  • Adherence: Always
  • Burden: Very
Dosage: Monthly

Sep 28, 2008 (Started Jul 23, 2008)

  • Perceived effectiveness for Multiple Sclerosis: Slight
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: Monthly

  • 0 helpful marks
KwazyKelli
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KwazyKelli
Sex: F
Data Quality: 0 stars
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: mild
Speech: mild
Swallowing: moderate
Upper limb: moderate
Walking: severe
I am: b
I have:
MS

See KwazyKelli's full Natalizumab history

Sep 21, 2010 (Started Aug 19, 2009)

  • Perceived effectiveness for Multiple Sclerosis: Moderate
  • Side Effects: Severe
  • Adherence: Always
  • Burden: Not at all
Dosage: 300 mg/15 mL every 4 weeks
Advice & Tips: became much more disabled while on it. Tested for PML, antibodies,new lesions,active lesions. All tests came back "normal". Was getting much better from a relapse before starting tysabri. once tysabri was in system,worsening disability started and progressed throughout the year of being on it.
Cost: < $25 monthly
Side effects: Weakness in hip, Weakness in left leg, Weakness in legs, Weakness in legs

  • 0 helpful marks
colgjs
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colgjs
Sex: M
Data Quality: 0 stars
Sensation: Moderate
Overall: Mild
Cognition: moderate
Vision: mild
Speech: none
Swallowing: none
Upper limb: mild
Walking: moderate
I have:
MS

See colgjs's full Natalizumab history

Sep 14, 2010 (Started Jul 08, 2010)

  • Perceived effectiveness for Multiple Sclerosis: Can’t tell
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: A little
Dosage: 300 mg/15 mL Monthly
Cost: < $25 monthly

  • 0 helpful marks
hank2555
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hank2555
Sex: M
Data Quality: 2 stars
Sensation: Moderate
Overall: None
Cognition: none
Vision: moderate
Speech: none
Swallowing: none
Upper limb: none
Walking: mild
I am: vg
I have:
MS

See hank2555's full Natalizumab history

Aug 20, 2010 (Started Oct 15, 2008)

  • Perceived effectiveness for Multiple Sclerosis: None
  • Side Effects: Severe
  • Adherence: Always
  • Burden: Not at all
Advice & Tips: Make sure that you have taken the new test to see if you have a chance of getting pml. I have been sick since October of 2009 with severe side effects if Tysabri. I had twenty four monthly treatments and shoul have had no more than 20 without a 6 month "vacation". From October through june of 2010 I spend most of every day in bed. I virtually have no memory of the eight months and was offered no assisatnce from Biogen or their partners it was as if I did not exist. every morning I awoke I felt blessed by GOD. I know that God healed me from the severe effects of Tysabri.
Cost: $200+ monthly
Side effects: Difficulty sleeping through night, Addiction, Vision problem due to fatigue heat and stress, Excessive daytime sleepiness (somnolence), Brain fog, Lose train of thought, Generalized weakness (asthenia), Loss of short term memory

Jan 11, 2010 (Started Oct 15, 2008)

  • Perceived effectiveness for Multiple Sclerosis: Major
  • Side Effects: Severe
  • Adherence: Always
  • Burden: A little
Advice & Tips: The treatment was effective for the first 23 monthly treatments. However the treatments have lost their effectiveness. I now have every side effect attributed to PML. I would not recommend this treatment side effects to dangerous to consider and fatal.I am still alive but been extremely sick since October of 3009, I understand a tet will soon be available that will tell if you can take Tysabri by testine for the antigens. positive test dont take negative test ok.
Cost: $200+ monthly
Side effects: Difficulty sleeping through night, Addiction, Vision problem due to fatigue heat and stress, Excessive daytime sleepiness (somnolence), Brain fog, Lose train of thought, Generalized weakness (asthenia), Loss of short term memory

  • 3 helpful marks
lala2500
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lala2500
Sex: F
Data Quality: 0 stars
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: mild
Swallowing: mild
Upper limb: moderate
Walking: moderate
I am: n
I have:
MS

See lala2500's full Natalizumab history

Aug 13, 2010 (Started Oct 02, 2009)

  • Perceived effectiveness for Multiple Sclerosis: Moderate
  • Side Effects: Mild
  • Adherence: Usually
  • Burden: A little
Dosage: 300 mg/15 mL every 4 weeks
Advice & Tips: I have been taking Tysabri for almost a year at first I did not see any real benefits to this treatment. I have now been lapse free for almost a year now. It has not helped with my current symptoms which remain the same.
Cost: < $25 monthly
Side effects: Weakness in legs, Headaches

  • 1 helpful mark
teejaygrl
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teejaygrl
Sex: F
Data Quality: 1 star
Sensation: Mild
Overall: None
Cognition: none
Vision: mild
Speech: none
Swallowing: none
Upper limb: mild
Walking: mild
I am: g
I have:
MS

See teejaygrl's full Natalizumab history

Jul 20, 2010 (Started Nov 02, 2009)

  • Perceived effectiveness for Multiple Sclerosis: Major
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: 300 mg/15 mL Monthly
Advice & Tips: THIS DRUG HAS HELPED ME GET MY LIFE BACK. I DON'T FEEL SO DOWN AND USELESS. SO MANY PEOPLE HAS SEEN SUCH A DIFFERENCE IN ME AND SO HAVE I. I REALLY DO FEEL ALIVE AGAIN AND NOT AS NERVOUS TO TAKE CHANCES TO DO THINGS. I KNOW I AM NOT "CURED" BUT EVEN FEEL SOME WHAT BETTER IS AND HAS BEEN SO WORTH THE WAY I FEEL.
Side effects: Tiredness, Fear of PML, Mood changes

Nov 2, 2009 (Started Nov 02, 2009)

  • Perceived effectiveness for Multiple Sclerosis: Can’t tell
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Not at all
Dosage: 300 mg/15 mL Monthly
Advice & Tips: We don't know unless we try things. There are side effects to even taking an asprin so it all comes down to choice of the person.
Side effects: Tiredness, Fear of PML, Mood changes

  • 3 helpful marks
fermat
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fermat
Sex: M
Data Quality: 1 star
Sensation: Mild
Overall: None
Cognition: mild
Vision: none
Speech: none
Swallowing: none
Upper limb: none
Walking: none
I have:
MS

See fermat's full Natalizumab history

Jun 29, 2010 (Started Aug 01, 2006)

  • Perceived effectiveness for Multiple Sclerosis: Moderate
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Not at all
Dosage: 300 mg/15 mL Monthly
Advice & Tips: First four years uneventful. Last year developed gum ulcerations, initially diagnosed by my dentist as ANUG (acute necrotizing ulcerative gingivitis), with disseminated ulcers on my inner cheeks and gums. Referred to periodontist after failing to respond to conventional first-round treatment. Further treatment and biopsies inconclusive. In late 2009, developed rash on scalp, ears, scrotum. Treated for eczema and other bacterial and fungal infections without effect by dermatologist. In March 2010, rash developed on forehead and torso. Returned to dermatologist, diagnosed as allergic reaction to previous medications. In late March, 2010, developed blistering rash on thighs, toes, forearms, shins, axillae. Tentatively diagnosed as Stephens-Johnson, with biopsy to confirm. Biopsy instead confirmed Bullous Pemphigoid.
Cost: < $25 monthly
Side effects: Bullous pemphigoid

  • 1 helpful mark
longtimesufferer
16627 thumb
longtimesufferer
Sex: M
Data Quality: 1 star
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: moderate
Swallowing: moderate
Upper limb: moderate
Walking: moderate
I have:
MS

See longtimesufferer's full Natalizumab history

Jun 10, 2010 (Started Aug 10, 2008)

  • Perceived effectiveness for Multiple Sclerosis: Moderate
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: 300 mg/15 mL every 4 weeks
Advice & Tips: This worked very well.My timeline on the treatment was up and we decided to try something else for a while.
Cost: < $25 monthly
Side effects: Itching (pruritus)

Jan 20, 2010 (Started Aug 10, 2008)

  • Perceived effectiveness for Multiple Sclerosis: Slight
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Somewhat
Dosage: 300 mg/15 mL every 4 weeks
Advice & Tips: I have not had any major relaspses since I started tysabri .There was some side effects when I first started taking it ,but not as much now.I am getting around a little better now.It seems there are more good days then bad.
Cost: < $25 monthly
Side effects: Itching (pruritus)

  • 1 helpful mark
jhartless
23444 thumb
jhartless
Sex: F
Data Quality: 1 star
Sensation: Moderate
Overall: Mild
Cognition: mild
Vision: mild
Speech: mild
Swallowing: mild
Upper limb: mild
Walking: moderate
I have:
MS

See jhartless's full Natalizumab history

Jun 1, 2010 (Started Jun 04, 2009)

  • Perceived effectiveness for Multiple Sclerosis: Moderate
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: 300 mg/15 mL Monthly
Advice & Tips: My experience has been not nearly as much mind-numbing fatigue or fuzzy-headedness. The only side effect has been minor vaginitis (a known possible side effect) which has been very easily managed. It only seems to occur for a week or so after my monthly infusion.
Side effects: Vaginal inflammation (vaginitis)

  • 2 helpful marks
Mom-o-Four
8412 thumb
Mom-o-Four
Sex: F
Data Quality: 0 stars
Sensation: Mild
Overall: Mild
Cognition: moderate
Vision: moderate
Speech: none
Swallowing: none
Upper limb: none
Walking: moderate
I have:
MS

See Mom-o-Four's full Natalizumab history

Jun 1, 2010 (Started Mar 05, 2009)

  • Perceived effectiveness for Multiple Sclerosis: None
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Somewhat
Dosage: 300 mg/15 mL every 4 weeks
Advice & Tips: I had no new lesions while on the medication, but I developed some frightening new symptoms during the last months...similar to PML. An MRI scan apparantly looks fine, and my docs want me to resume Tysabri, but I am resistant. They cannot answer why my vision is blurring at night, the numbness on my left side or the on-and-off feeling that the ground is tilting.
Cost: < $25 monthly
Side effects: Headaches, Generalized muscle aches, Nausea, Blurry vision, Acid reflux, Cognitive impairment, Heartburn, Fatigue, Fatigue

  • 1 helpful mark
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