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Mitoxantrone Treatment Report

Category: Prescription Drugs

Most Popular Types: Novantrone

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17 patient evaluations for Mitoxantrone taken for the purpose of 'MS (Multiple Sclerosis)'

  • kmjns2
    Sex: F
    Data Quality: 2 stars
    MS: 10 yrs
    Type: Primary Progressive
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: none
    Swallowing: none
    Upper limb: moderate
    Walking: moderate
  • Portrait_default_thumb
  • by kmjns2
  • See kmjns2's full Mitoxantrone history
Purpose: MS (Multiple Sclerosis) (Started Jan 01, 2009)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Mar 01, 2009 As needed Led_efficacy_1Led_defaultLed_defaultLed_defaultNone MildMildMildMildMild UsuallyUsuallyUsuallyUsuallyUsually A littleA littleA littleA littleA little
Side effects:
Sick to my stomach, Tiredness, Left ventrical performance reduction, Hair loss
Date
Mar 01, 2009
Advice & Tips
It works wonders for some people but not me. I had to stop not only because it wasnt working for me but it damaged my heart some.
  • Icon_thumb_off 0 helpful marks
Purpose: MS (Multiple Sclerosis) (Started Jul 06, 2008)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Jan 06, 2009 As needed Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Side effects:
Headaches, Sick to my stomach, Tiredness, Pain, Hair loss
Date
Jan 06, 2009
Advice & Tips
You are only able to take 12 treatments in your lifetime. Every 3 months. I have had good results on this medication. Your doctor has to check your heart prior to starting and before ever treatment.
Cost
< $25 monthly
  • Icon_thumb_off 0 helpful marks
  • mislissa1029
    Sex: F
    Data Quality: 2 stars
    MS: 10 yrs
    Type: Relapsing-Remitting
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: mild
    Swallowing: mild
    Upper limb: moderate
    Walking: moderate
  • 14556-thumb
  • by mislissa1029
  • See mislissa1029's full Mitoxantrone history
Purpose: MS (Multiple Sclerosis) (Started May 11, 2006)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Oct 16, 2008 As needed Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Side effects:
Hair loss, Nausea and vomiting, Insomnia, Insomnia, Headaches
  • Icon_thumb_off 0 helpful marks
  • joaniekay47
    Sex: F
    Data Quality: 1 star
    MS: 3 yrs
    Type: Primary Progressive
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: severe
  • Portrait_default_thumb
  • by joaniekay47
  • See joaniekay47's full Mitoxantrone history
Purpose: MS (Multiple Sclerosis) (Started Apr 23, 2008)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Aug 30, 2008 As needed Led_efficacy_2Led_efficacy_2Led_defaultLed_defaultSlight MildMildMildMildMild AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Side effects:
Tiredness
Date
Aug 30, 2008
Advice & Tips
Just make sure to be able to lie down and not do anything for the rest of the day. I take it very easy the day after, I have been tired for a full day afterwards. It could be from the anti nausea medications I take before the infusion.
  • Icon_thumb_on 1 helpful mark
  • jenj
    Sex: F
    Data Quality: 2 stars
    MS: 14 yrs
    Mentor
    Type: Relapsing-Remitting
    Sensation: None
    Overall: Mild
    Cognition: none
    Vision: none
    Speech: none
    Swallowing: none
    Upper limb: moderate
    Walking: severe
  • 738-thumb
  • by jenj
  • See jenj's full Mitoxantrone history
Purpose: MS (Multiple Sclerosis) (Started Feb 14, 2007)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Aug 15, 2007 2 mg Daily ?Can't tell ModerateModerateModerateModerateModerate AlwaysAlwaysAlwaysAlwaysAlways SomewhatSomewhatSomewhatSomewhatSomewhat
Side effects:
Hair loss, Headaches, Pain, Tiredness
  • Icon_thumb_on 1 helpful mark
  • NIM
    Sex: M
    Data Quality: 2 stars
    MS: 8 yrs
    Type: Primary Progressive
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: mild
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
  • 1109-thumb
  • by NIM
  • See NIM's full Mitoxantrone history
Purpose: MS (Multiple Sclerosis) (Started May 01, 2005)
Date Dosage Perceived effectiveness Side Effects Adherence Burden
Aug 03, 2006 1 mg Monthly ?Can't tell NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Date
Aug 03, 2006
Advice & Tips
A emotional decision as this drug was ment for people with Hogkins nonlimfoma and the side effect could have bin getting Hogkins nonlimfoma and the only cure for Hogkins is Mitoxantrone so to say yes was very hard but with no alternatives and the Only path available, a shot in the dark. ? I cant answer is do you think it helped as dont know what I would have bin like with out it so ?? .
Cost
< $25 monthly
  • Icon_thumb_off 0 helpful marks
  • mrsnurse
    Sex: F
    Data Quality: 3 stars
    MS: 33 yrs
    Mentor
    Type: Secondary Progressive
    Sensation: Moderate
    Overall: None
    Cognition: moderate
    Vision: none
    Speech: none
    Swallowing: none
    Upper limb: none
    Walking: none
  • 53908-thumb
  • by mrsnurse
  • See mrsnurse's full Mitoxantrone history
Purposes: MS (Multiple Sclerosis) and secondary progresssive M.S. (Started Mar 05, 2001)
Date Dosage MS (Multiple Sclerosis) Perceived effectiveness secondary progresssive M.S. Perceived effectiveness Side Effects Adherence Burden
Mar 05, 2002   Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Sep 15, 2001 2 mg Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major NoneNoneNoneNoneNone AlwaysAlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at allNot at all
Date
Mar 05, 2002
Advice & Tips
While I was taking Novantrone, I had very very little side effects, maybe slight nausea once, but the benefits for outweigh any problems!! It was definately worth it!!
Date
Sep 15, 2001
Advice & Tips
I took IV Novantrone every 3 months for two years. Since that time, I have not had another exacerbation of the MS. I think if is wonderful and very thankful that I was able to take it! Now I do have a pretty normal life!! Although I had already lost my job due to cognitive difficulties caused by the MS, I wish I could have taken it at the very beginning!!
  • Icon_thumb_off 0 helpful marks
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