Evaluations from Patients who take Rebif

JoeC

Sex: M

Data Quality: 0 stars

MS: 14 yrs

Type: Relapsing-Remitting

Sensation: None

Overall: Mild

Cognition: moderate

Vision: mild

Speech: moderate

Swallowing: none

Upper limb: mild

Walking: mild
by JoeC
See JoeC's full Rebif history

**Purposes:** MS (Multiple Sclerosis) and General health *(Started Feb 14, 2008)*
Date	Dosage	MS (Multiple Sclerosis) Perceived effectiveness	General health Perceived effectiveness	Side Effects	Adherence	Burden
Jan 09, 2013	44 mcg 3 times a week	Moderate	Slight	Moderate	Always	Somewhat
Jul 27, 2009	44 mcg 3 times a week		Slight	Mild	Always	Not at all
Apr 07, 2009	44 mcg 3 times a week		Major	Moderate	Always	Not at all

Side effects:: Dizziness, Injection site itching, Generalized muscle aches, Injection site redness, Injection site burning, Headaches, Injection site pain, Optic nerve inflammation (Optic neuritis)

Date: Jan 09, 2013
Advice & Tips: I'm so over these shots but Don't think I can get into anything else any time soon. My goal is to be off Rebif in 2013... I hope.
Cost: $50-99 monthly

Date: Apr 07, 2009
Advice & Tips: Looking back over the last year I have had some ups and downs but over all I feel very lucky to have started treatment so quickly. I feel better everyday and if I have to deal with minor dizzy spells from time to time, so be it. I hope next year when I update my profile and can report even more progress.
Cost: < $25 monthly

0 helpful marks

mandace87

Sex: F

Data Quality: 3 stars

MS: 7 yrs

Type: Relapsing-Remitting

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: moderate

Swallowing: none

Upper limb: none

Walking: none
by mandace87
See mandace87's full Rebif history

**Purpose:** MS (Multiple Sclerosis) *(Started Nov 01, 2009)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Sep 15, 2012	44 mcg/0.5 mL 3 times a week	Moderate	Moderate	Never	Not at all

0 helpful marks

suzzie

Sex: F

Data Quality: 2 stars

MS: 40 yrs

Type: Secondary Progressive

Sensation: Severe

Overall: Severe

Cognition: severe

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: severe
by suzzie
See suzzie's full Rebif history

**Purpose:** MS (Multiple Sclerosis) *(Started Jun 21, 2009)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Jul 19, 2012	44 mcg/0.5 mL 3 times a week	Major	None	Always	Not at all

Date: Jul 19, 2012
Advice & Tips: You don't kmow how muh the medacation is working untill they just pull it away from you real fast. Now that I am not on it I noticed I am real tired but can't sleep that is no fun to live with, my mood is not good I want to cry or treat people nasty for no reason,and I never had a hard time taking the medication if you set reminder's and you do it at night do you don't notice the flu feeling.

0 helpful marks

IlliniMS

Sex: F

Data Quality: 3 stars

MS: 11 yrs

Type: Relapsing-Remitting

Relapse: Moderate

Sensation: Mild

Overall: Mild

Cognition: mild

Vision: mild

Speech: mild

Swallowing: mild

Upper limb: mild

Walking: mild
by IlliniMS
See IlliniMS's full Rebif history

**Purpose:** MS (Multiple Sclerosis) *(Started Dec 26, 2006)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Jun 02, 2012	44 mg 3 times a week	None	Moderate	Always	Not at all
May 31, 2010	44 mg 3 times a week	Major	Mild	Always	Not at all
Jan 01, 2010	44 mg 3 times a week	Major	Moderate	Always	Not at all
Oct 15, 2009	44 mg 3 times a week	Major	Moderate	Always	Not at all

Side effects:: Chills/fever, Injection site redness, Generalized muscle aches, Injection site reaction, Fatigue

Date: Jun 02, 2012
Advice & Tips: I took REBIF for 4.5 years. I found that a T, Th, and S regimen worked best, allowing a day yo regroup for the work week. I have found that my fatigue and depression increased on the medication. After more MRI changes, me neuro is now switching me to Tysabri.
Cost: $25-49 monthly

Date: Oct 15, 2009
Advice & Tips: My initial use of Rebif was a T-TH-S regimen. I found that I had extreme fatigue each Monday morning while adhering to that schedule. I switched to M-W-F shots, early in the evening, and found that using the week-end to "recover" from the injections allowed me to feel much better on Monday mornings. I added Amantadine (200 mg) daily, and with the combination of the two, feel that the overall changes have helped significantly. Tylenol-Extra Strength in the evenings seems to help battle the side effects from the shots.

0 helpful marks

thjuland

Sex: M

Data Quality: 3 stars

MS: 50 yrs

Type: Relapsing-Remitting

Sensation: Mild

Overall: Mild

Cognition: moderate

Vision: mild

Speech: mild

Swallowing: moderate

Upper limb: moderate

Walking: moderate
by thjuland
See thjuland's full Rebif history

**Purpose:** MS (Multiple Sclerosis) *(Started Dec 02, 2005)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
May 27, 2012	3 x 44 mcg/0.5 mL Weekly	Major	Mild	Always	Not at all
Jan 27, 2012	3 x 44 mcg/0.5 mL Weekly	Major	Mild	Always	Not at all
Sep 21, 2008	3 x 44 mcg/0.5 mL Weekly	Major	Mild	Always	A little

Side effects:: Elevated blood pressure

Date: May 27, 2012
Advice & Tips: I'm still pleased with how well Rebif has and continues to work for me (zero new lesions - for 7 years now)!! I'm also reporting the true cost of this medication instead of my out of pocket cost, since I only have copays for the month of January each year, after which I pay zero copays for the rest of the year (because my Medicare extra- help is the full not partial low-income-subsidy). If your state allows it, you can deduct the cost of your health insurance (excluding your drug coverage cost) from your income. This is called the Medicare Savings Program aka Medicaid-Buy-In. You must be able to lower your income to 135% of the federal poverty level, in order to use this program. Then your state pays your Medicare Part B monthly premium and CMS deems you a dual eligible for Medicare Part D benefits for the rest of that year. You must apply for this (Extra-Help) through your county's Medicaid office, but you cannot be receiving Medicaid.
Cost: $200+ monthly

Date: Jan 27, 2012
Advice & Tips: The slight increase in my blood pressure is a very tiny cost, compared too finally having a clear MRI (my 7th imaging session). This was my first MRI that showed NO MS progression, no new enhancing lesions and no increased cortical atrophy. The cervical scan was also clear of new activity and most of my recently acquired new spinal symptoms also cleared up.
Cost: $200+ monthly

Date: Sep 21, 2008
Advice & Tips: I started Rebif during a severe MS attack, to date that was my quickest resolving attack, the L'hermitte's sign totally disappeared, and it has not returned--almost three years now.
Cost: $200+ monthly

0 helpful marks

Les1952

Sex: M

Data Quality: 2 stars

MS: 48 yrs

Type: Relapsing-Remitting

Sensation: None

Overall: Mild

Cognition: mild

Vision: moderate

Speech: moderate

Swallowing: none

Upper limb: moderate

Walking: moderate
by Les1952
See Les1952's full Rebif history

**Purpose:** MS (Multiple Sclerosis) *(Started Feb 07, 2004)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
May 22, 2012	44 mcg/0.5 mL 3 times a week	Major	None	Usually	A little

0 helpful marks

CaineMan

Sex: M

Data Quality: 3 stars

MS: 8 yrs

Type: Relapsing-Remitting

Sensation: Moderate

Overall: Moderate

Cognition: moderate

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate
by CaineMan
See CaineMan's full Rebif history

**Purpose:** MS (Multiple Sclerosis) *(Started Feb 10, 2009)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Apr 29, 2012	44 mcg/0.5 mL Weekly	Slight	Moderate	Always	Somewhat
Sep 14, 2010	44 mcg/0.5 mL Weekly	?Can't tell	Mild	Always	A little
Aug 25, 2009	44 mcg/0.5 mL Weekly	?Can't tell	Mild	Always	A little

Side effects:: Injection site pain, Headaches in morning, Generalized muscle aches, Injection site redness, Headaches

Date: Sep 14, 2010
Advice & Tips: The cost I listed is amortized over 12 months as I meet my deductible of $3000.00 in the first 40 days and after that all my prescriptions are paid by my insurer.
Cost: $200+ monthly

0 helpful marks

shayla034

Sex: F

Data Quality: 1 star

MS: 2 yrs

Type: Relapsing-Remitting

Sensation: Severe

Overall: Moderate

Cognition: moderate

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate
by shayla034
See shayla034's full Rebif history

**Purpose:** MS (Multiple Sclerosis) *(Started Sep 15, 2011)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Mar 04, 2012	44 mcg/0.5 mL 3 times a week	None	Severe	Sometimes	Very

0 helpful marks

Johnese

Sex: F

Data Quality: 0 stars

MS: 11 yrs

Type: Relapsing-Remitting

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: mild

Speech: mild

Swallowing: mild

Upper limb: moderate

Walking: moderate
by Johnese
See Johnese's full Rebif history

**Purpose:** MS (Multiple Sclerosis) *(Started Aug 10, 2004)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Jan 27, 2012	30 mcg/0.5 mL Monthly	?Can't tell	None	Never	Somewhat
Jul 06, 2009	30 mcg/0.5 mL Monthly	Slight	Moderate	Usually	A little

Side effects:: Injection site redness, Injection site itching

Date: Jan 27, 2012
Advice & Tips: Not taking at present. Have more energy able to participate in daily activities. I am alive.
Cost: < $25 monthly

0 helpful marks

heidibug77

Sex: F

Data Quality: 0 stars

MS: 6 yrs

Type: Relapsing-Remitting

Sensation: Mild

Overall: None

Cognition: mild

Vision: none

Speech: mild

Swallowing: none

Upper limb: mild

Walking: mild
by heidibug77
See heidibug77's full Rebif history

**Purpose:** MS (Multiple Sclerosis) *(Started Jan 15, 2008)*
Date	Dosage	Perceived effectiveness	Side Effects	Adherence	Burden
Jan 26, 2012		Major	Moderate	Always	A little
Oct 18, 2011	3 x 44 mcg/0.5 mL Weekly	Major	Moderate	Always	A little
Feb 13, 2009	3 x 44 mcg/0.5 mL Weekly	Major	Mild	Always	Somewhat

Date: Jan 26, 2012
Advice & Tips: The medicine does what it's supposed to. Prevent new lesions from forming. I have small children and I had to stop in order to feel well enough to take care of them and have fun with them.
Cost: $50-99 monthly

Date: Oct 18, 2011
Advice & Tips: Needed to take care of and have fun with my kids, instead of lying on the couch.
Cost: $50-99 monthly

Date: Feb 13, 2009
Advice & Tips: Don't give up on it right away
Cost: $50-99 monthly

0 helpful marks