| Date | Dosage | Perceived effectiveness | Side Effects | Adherence | Burden |
|---|---|---|---|---|---|
| Nov 20, 2011 | 300 mg/15 mL Every 6 Weeks |
  Moderate
|
 None
|
 Always
|
 Not at all
|
| Jun 11, 2010 | 300 mg/15 mL Every 6 Weeks |
Moderate
|
None
|
Always
|
Not at all
|
| Jun 10, 2010 | 300 mg/15 mL Every 6 Weeks |
Moderate
|
None
|
Always
|
Not at all
|
- Side effects:
- Breast Cancer recurrence on Tysabri
- Date
- Nov 20, 2011
- Advice & Tips
- heLps with SPMS
- Cost
- < $25 monthly
- Date
- Jun 11, 2010
- Advice & Tips
- I started Tysabri to stop the progression of MS, Secondary Progressive, and becoming inexhorably worse over time. I was effectively diagnosed with MS in 1982. Starting Tysabri in 2008, 26 years into MS, was a last-ditch effort. Even though Tysabri is targeted at RR, one might as well throw anything one can at it (all of my neuros use this approach.) I was going down hill. I started Tysabri using 4 week intervals between infusions. After two months, an old cellulitis infection returned, and I just did not feel "well" - like I was always coming down with something. I changed to Tysabri every 4 weeks, and had no further problems. Cipro for about 5-6 weeks cured the cellulitis infection. Although I started Tysabri to stop the progression of MS, I was surprised to find that some neurological function, gone for some 10 to 20 years, returned. Oh, it was minor and subtle, but ientifyable. For example, my "bad" left hand got a little stronger and I could move my fingers better. In my right hand, my stronger, normal hand, the ability to feel vibrations, long gone, returned a little. I can now feel vibrations in that hand, not as strongly as in the left hnd, but discernable. My QOL has improved 100% on Tysabri. Tysabri slowed, but did not stop the MS progression. earlier this year, I did get a little worse - bad left leg is weaker and clonus is much more of a problem. However, Tysabri has helped, overall. I have a personal neuro (a woman) who prescribed Tysabri, and a Tysabri neuro (insurance hoops). My Tysabri neuro, who tightened up his department's Tysabri protocol insisted that he take over issuing my prescription. I saw him for the first time in April 2010. He started to make noises about Tysabri being for RR, etc. He concluded that I was SP. He then saw the data on how well I had done on Tysabri and he kept quiet. He was also mollified when he saw that I took Tysabri every 6 weeks, not every 4. However, if he will not continue to prescribe my Tysabri, I will go somewhere else!!!!!!!
- Cost
- < $25 monthly
- Date
- Jun 10, 2010
- Advice & Tips
- MORE EFFECTIVE FOR AFRICAN AMERICANS THAN THE BETA INTERFERONS
-
3 helpful marks