Oct 12, 2014 (Started Feb 28, 2002)

  • Effectiveness
    Major (for amyotrophic lateral sclerosis)
  • Side effects
    Mild (for Overall) (diarrhea)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 5000 mg Daily
Advice & Tips: I have ALS with both upper and lower neurone damage yet my progression has been slow having survived 14 years from first symptoms and still have quality of life. The only side effect was occasional diahoria which I think was natures way of saying you have taken a bit too much. I would recommend people to take it as soon as possible after diagnosis. It needs to be natural vitamin-E. Look at Dr Carsten Hager and vitamin E on the internet to find out why I take it.
Cost: < $25 monthly

Jan 21, 2010 (Started Feb 28, 2002)

  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    None (for Overall)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 5000 mg Daily
Advice & Tips: Build up to the full dose over 2-3 weeks. The only side effect I have had is occasional diahorea which seems to be the body's way of telling you you have taken too much. I would advise plwMND to take it as early as possible (two thirds dose mid am and remaining 1/3 mid p.m)
Cost: < $25 monthly

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