Dec 1, 2012 (Started Jan 05, 2012)
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EffectivenessSlight (for amyotrophic lateral sclerosis)
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Side effectsNone (for Overall)
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AdherenceUsually
-
BurdenSomewhat hard to take
Dosage:
200 mg
Weekly
Advice & Tips:
Performed self injection of sodium chlorite after end of NP001 trial but no longer seemed to be working.
Cost:
< $25 monthly
Jun 19, 2012 (Started Jan 05, 2012)
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EffectivenessSlight (for amyotrophic lateral sclerosis)
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Side effectsNone (for Overall)
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AdherenceUsually
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BurdenA little hard to take
Dosage:
200 mg
Weekly
Advice & Tips:
On Monday June 18 I self administered my weekly infusion of 4 ml = 200 mg of sodium chlorite. About one hour later I went for my daily 1/2 hour swim. For the first time since starting this swimming program about 3 weeks ago I didn't feel like I was on the verge of drowning, i.e., just barely able to keep my head above water. Also, my breathing felt more 'productive'. Previously I would swim one lap and rest at the end breathing very hard, but it felt as if I couldn't get enough air into my lungs and I would breath hard for along time. This time it felt normal where I would breath hard for only a short time.
Cost:
< $25 monthly
May 1, 2012 (Started Jan 05, 2012)
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EffectivenessNone (for amyotrophic lateral sclerosis)
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Side effectsNone (for Overall)
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AdherenceAlways
-
BurdenA little hard to take
Dosage:
200 mg
Daily
Advice & Tips:
May 30 infusion. No improvements.
Cost:
< $25 monthly
Apr 20, 2012 (Started Jan 05, 2012)
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EffectivenessCan't tell (for amyotrophic lateral sclerosis)
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Side effectsNone (for Overall)
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AdherenceUsually
-
BurdenSomewhat hard to take
Dosage:
Daily
Advice & Tips:
Performed an infusion Friday April 20. Unlike the previous infusion I did not experience an improvement in swallowing.
Cost:
< $25 monthly
Apr 14, 2012 (Started Jan 05, 2012)
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EffectivenessMajor (for amyotrophic lateral sclerosis)
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Side effectsNone (for Overall)
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AdherenceUsually
-
BurdenSomewhat hard to take
Dosage:
Daily
Advice & Tips:
I have now given myself two rounds of IV infusions of off the shelf sodium chlorite. I was ready to give up on sodium chlorite because its effect has been diminishing since the tail end of the NP001 study. However, was pleasantly surprised this time.
Lately I have been drinking seltzer water rather than tap water because I find it much easier to swallow. In fact, I have not been able to swallow plain water for over a month now. Last night I grabbed my glass of water and was drinking it while watching my son on the swing. While I usually focus like a laser on the task of drinking I wasn't paying attention, rather I was focused on my son. After a few sips of water I realized that the water had gone flat and I was still able to drink it. Also I could drink it without doing the chin tuck, which has also been necessary for the last couple of months. The difference is small but unquestionably real.
I am approaching my one year 'chlorite' anniversary. I had my first infusion in June of 2011. This is very encouraging and tells me that chlorite is still having some effect.
Cost:
< $25 monthly
- 2 helpful marks