ALS Public Registry

Patient Status	Patient Name	Profile	Location	Diagnosis Info
LANIE Sex: F Data Quality: 0 stars ALS: 10 yrs Bulbar: unreported Arms: unreported Chest: unreported Legs: unreported	ELAINE JOLLIFF	Female, 55 years	OH, United States	First Symptom: 07/97 Dx: 07/99
Sherryk Sex: F Data Quality: 0 stars ALS: 7 yrs Bi-Pap Wheelchair Feeding tube Bulbar: severe Arms: moderate Chest: moderate Legs: severe	Sherry Ketzbeau	Female, 56 years	Linden, MI	First Symptom: 10/99 Dx: 07/02
CathyGM Sex: F Data Quality: 0 stars ALS: 9 yrs Bulbar: none Arms: none Chest: none Legs: moderate	Cathy Meyer	Female, 58 years	Pittsburgh, PA	First Symptom: 04/04 Dx: 12/04
Howard McCarthy Sex: M Data Quality: 0 stars ALS: 12 yrs Bi-Pap Wheelchair Bulbar: none Arms: moderate Chest: moderate Legs: moderate	Howard McCarthy	Male, 75 years	Titusville , FL	First Symptom: 10/00 Dx: 10/01
david Sex: M Data Quality: 0 stars ALS: 2 yrs Bi-Pap Bulbar: none Arms: mild Chest: moderate Legs: mild	C. David Robinson	Male, 71 years	Sausalito, CA	First Symptom: 05/05 Dx: 12/05
gurichri Sex: F Data Quality: 1 star ALS: 8 yrs Bi-Pap Wheelchair Feeding tube Bulbar: severe Arms: severe Chest: moderate Legs: severe	Guri Christiansen	Female, 65 years	Toroed, Norway	First Symptom: 06/00 Dx: 12/04
jamiegirl Sex: F Data Quality: 0 stars ALS: 11 yrs Ventilator Wheelchair Bulbar: none Arms: moderate Chest: moderate Legs: severe	jamie stephenson	Female, 55 years	Atkinson, NH	First Symptom: 04/02 Dx: 10/04
MarkNH Sex: M Data Quality: 0 stars ALS: 6 yrs Wheelchair Bulbar: mild Arms: mild Chest: none Legs: moderate	Mark Chamberlin	Male, 51 years	Salisbury, NH	First Symptom: 11/01 Dx: 01/02
mkrier Sex: Data Quality: 0 stars ALS: 15 yrs Ventilator Wheelchair Bulbar: moderate Arms: moderate Chest: severe Legs: severe	MARY KRIER			First Symptom: 07/97 Dx: 12/98
DTA Sex: Data Quality: 0 stars ALS: ? yrs Bulbar: unreported Arms: unreported Chest: unreported Legs: unreported	David Aagard			Dx: 10/92
evansmom Sex: F Data Quality: 2 stars ALS: 9 yrs Bi-Pap Wheelchair Feeding tube Bulbar: moderate Arms: moderate Chest: mild Legs: moderate	l w	Female, 48 years	NC, United States	First Symptom: 07/03 Dx: 11/04
LindaPfeil Sex: F Data Quality: 0 stars ALS: 9 yrs Wheelchair Bulbar: mild Arms: mild Chest: none Legs: moderate	Linda JMKP	Female, 57 years	Woodbury, MN	First Symptom: 01/04 Dx: 01/06
greenspans Sex: M Data Quality: 0 stars ALS: 6 yrs Bi-Pap Wheelchair Bulbar: mild Arms: moderate Chest: mild Legs: moderate	STEPHEN GREENSPAN	Male, 67 years	Cupertino, CA	First Symptom: 08/02 Dx: 10/05
Kathy Sex: F Data Quality: 0 stars ALS: 2 yrs Bi-Pap Wheelchair Bulbar: mild Arms: moderate Chest: mild Legs: moderate	Kathy Swanson	Female, 53 years	St. Paul, MN	First Symptom: 06/05 Dx: 02/06
magaro Sex: M Data Quality: 0 stars ALS: 10 yrs Ventilator Wheelchair Feeding tube Bulbar: severe Arms: severe Chest: moderate Legs: severe	Manuel Gancedo	Male, 46 years	Santander, Cantabria	First Symptom: 05/03 Dx: 08/03
pabbey13053 Sex: F Data Quality: 0 stars ALS: 17 yrs Bulbar: mild Arms: mild Chest: none Legs: mild	Patricia Abbey	Female, 72 years	Dryden, NY	First Symptom: 11/95 Dx: 09/00
swhite.geo Sex: M Data Quality: 2 stars ALS: 11 yrs Ventilator Wheelchair Feeding tube Bulbar: moderate Arms: moderate Chest: moderate Legs: moderate	Stephen White	Male, 50 years	Fayetteville, NC	First Symptom: 01/02 Dx: 07/02
claudiamedic Sex: F Data Quality: 2 stars ALS: 8 yrs Bi-Pap Wheelchair Bulbar: moderate Arms: moderate Chest: moderate Legs: moderate	Claudia Burrows	Female, 51 years	IN, United States	First Symptom: 10/04 Dx: 08/06
biffles Sex: F Data Quality: 0 stars PMA: 9 yrs Ventilator Wheelchair Feeding tube Bulbar: moderate Arms: severe Chest: moderate Legs: severe	Brenda Stewart	Female, 56 years	laurinburg, NC	First Symptom: 04/99 Dx: 06/01
Charlotte Sex: F Data Quality: 0 stars ALS: 3 yrs Bi-Pap Feeding tube Bulbar: moderate Arms: moderate Chest: mild Legs: moderate	Charlotte Pfeiffer	Female, 64 years	Kansas City, MO	First Symptom: 12/03 Dx: 04/05

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