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Welcome to the PatientsLikeMe Public ALS Registry

This is a registry for Amyotrophic Lateral Sclerosis (Lou Gehrig's Disease, or ALS) intended to help Persons with ALS (PALS) reach out to each other and stand up and be counted. It was originally started it as a mailing list by Bobby Brannigan, PALS and PatientsLikeMe community member, and it is now being maintained by PatientsLikeMe. If you have any questions about privacy or terms of service, contact PatientsLikeMe.

You can help by passing this info on to other PALS.


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 There are 1829 PALS in the registry who recently joined us.

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Newest Registry Members

Patient Status Patient Name Profile Location Diagnosis Info
C Stoecker
Data Quality: 0 stars
ALS: 2 yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Carol Stoecker 61 years First Symptom: 08/10
Dx: 10/10
XiaoTian
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
XinHua Dai member since Jan 2011
sharancummins
Sex: F
Data Quality: 1 star
ALS: 3 yrs
Bulbar: mild
Arms: none
Chest: none
Legs: none
sharan cummins Female, 61 years cincinnatii, OH First Symptom: 11/09
Dx: 03/11
mitsubishi man
Sex: M
Data Quality: 1 star
ALS: 4 yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Patrick Lynch Male, 42 years Burnfoot, Donegal First Symptom: 06/08
Dx: 10/09
Patriloco
Sex: M
Data Quality: 1 star
ALS: 3 yrs
Wheelchair
Bulbar: none
Arms: severe
Chest: none
Legs: moderate
Patrick Martin Male, 39 years Val Morin, QC First Symptom: 10/09
Dx: 02/10
fatemeh
Sex: F
Data Quality: 1 star
ALS: 7 yrs
Wheelchair
Bulbar: none
Arms: moderate
Chest: mild
Legs: severe
fatemeh chek Female, 55 years tehran, tehran First Symptom: 04/06
KC2U2
Sex: M
Data Quality: 1 star
ALS: 3 yrs
Ventilator Wheelchair
Bulbar: moderate
Arms: moderate
Chest: moderate
Legs: moderate
Kevin Connell Male, 53 years LA, United States First Symptom: 12/09
Dx: 09/10
akbar
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
akbar jaydan 62 years Dx: 09/05
ifaredfisher
Sex: M
Data Quality: 1 star
ALS: 2 yrs
Ventilator Wheelchair Feeding tube
Bulbar: severe
Arms: severe
Chest: moderate
Legs: severe
Eric Powell Male, 37 years NC, United States First Symptom: 06/10
Dx: 12/10
eduardofuc
Sex: M
Data Quality: 1 star
ALS: 3 yrs
Bulbar: mild
Arms: mild
Chest: none
Legs: mild
Eduardo Unda Male, 37 years Aberdeen, Aberdeenshire First Symptom: 02/10
Dx: 12/10
phd.joy
Sex: M
Data Quality: 1 star
ALS: 5 yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Peter Devin Male, 55 years CA, United States First Symptom: 01/08
Dx: 09/09
griefel
Data Quality: 0 stars
ALS: ? yrs
Bi-Pap
Bulbar: mild
Arms: mild
Chest: mild
Legs: none
Mike Smith member since Jan 2011
Lady of the desert
Sex: F
Data Quality: 1 star
ALS: 4 yrs
Bulbar: none
Arms: none
Chest: none
Legs: none
Linda Hunter Female, 65 years Apple Valley, CA First Symptom: 03/09
Dx: 11/09
Steve A
Sex: M
Data Quality: 1 star
ALS: 3 yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Steve G. Appeldorn Male, 63 years Pico Rivera, CA First Symptom: 09/09
Dx: 08/10
frankb
Sex: M
Data Quality: 1 star
ALS: 3 yrs
Bulbar: none
Arms: none
Chest: none
Legs: none
Frank Blankenship Male, 76 years Sandy Springs, GA First Symptom: 02/10
Dx: 11/10
ConnieT6
Data Quality: 0 stars
ALS: 3 yrs
Bi-Pap
Bulbar: moderate
Arms: moderate
Chest: moderate
Legs: moderate
Connie Tinsley 46 years First Symptom: 02/10
Dx: 11/10
Revtoots
Sex: M
Data Quality: 1 star
ALS: 3 yrs
Bi-Pap Wheelchair
Bulbar: mild
Arms: moderate
Chest: moderate
Legs: moderate
William Croy Male, 64 years Columbus, OH First Symptom: 06/09
Dx: 08/10
yinzhishen
Sex: M
Data Quality: 1 star
ALS: 3 yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
li kongming Male, 27 years changchun, jilin First Symptom: 05/10
Dx: 02/10
viewsun
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
li wei member since Jan 2011
nikim1806
Sex: F
Data Quality: 2 stars
ALS: 3 yrs
Bi-Pap Wheelchair
Bulbar: moderate
Arms: moderate
Chest: none
Legs: moderate
Nicola Morris Female, 39 years state college, PA First Symptom: 02/10
Dx: 12/10

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