ALS Public Registry

Patient Status	Patient Name	Profile	Location	Diagnosis Info
michaeldw Sex: M Data Quality: 3 stars ALS: 4 yrs Bulbar: none Arms: mild Chest: none Legs: mild	Michael Westwell	Male, 69 years	Reading, United Kingdom	First Symptom: 03/09 Dx: 09/10
Islandblue Sex: F Data Quality: 2 stars ALS: 2 yrs Bi-Pap Feeding tube Bulbar: severe Arms: moderate Chest: mild Legs: moderate	Michelle Honeycutt-Bishop	Female, 40 years	VA, United States	First Symptom: 02/10 Dx: 08/10
jaws-als Sex: M Data Quality: 2 stars ALS: 2 yrs Bi-Pap Feeding tube Bulbar: moderate Arms: severe Chest: moderate Legs: moderate	Aaron Winborn	Male, 45 years	Harrisburg, PA	First Symptom: 08/10 Dx: 03/11
Trader Jimm Sex: M Data Quality: 2 stars ALS: 2 yrs Bi-Pap Bulbar: moderate Arms: moderate Chest: moderate Legs: moderate	Jim Lellman	Male, 62 years	Buffalo Grove, IL	First Symptom: 12/10 Dx: 03/11
Mike011 Sex: M Data Quality: 3 stars ALS: 4 yrs Wheelchair Bulbar: none Arms: severe Chest: none Legs: severe	Michel Gauthier	Male, 49 years	Sainte-Julie, QC	First Symptom: 11/07 Dx: 08/10
pmotion Sex: M Data Quality: 2 stars ALS: 3 yrs Bi-Pap Wheelchair Bulbar: mild Arms: moderate Chest: mild Legs: moderate	Pim Mensen	Male, 53 years	Monnickendam, Netherlands	First Symptom: 12/09 Dx: 08/10
9eddie9 Sex: M Data Quality: 0 stars ALS: 2 yrs Bulbar: none Arms: none Chest: none Legs: moderate	Francisco Lopez	Male	Houston, United States	First Symptom: 10/10
williedog Sex: M Data Quality: 1 star ALS: 4 yrs Bulbar: none Arms: severe Chest: none Legs: moderate	Tim Watson	Male, 55 years	Newton, NC	First Symptom: 11/08 Dx: 12/09
Captain Cabinets Sex: M Data Quality: 2 stars ALS: 3 yrs Wheelchair Bulbar: none Arms: moderate Chest: none Legs: severe	Glyn Goodship	Male, 57 years	Banbury, Oxfordshire	First Symptom: 11/09 Dx: 01/11
mtst Data Quality: 0 stars ALS: ? yrs Bulbar: unreported Arms: unreported Chest: unreported Legs: unreported	Pham The Anh			member since Feb 2011
Barb274 Data Quality: 0 stars ALS: 3 yrs Bi-Pap Bulbar: moderate Arms: none Chest: mild Legs: none	Barbara Bishop	72 years		First Symptom: 01/10 Dx: 08/10
FunMCF Sex: F Data Quality: 1 star ALS: 3 yrs Bulbar: none Arms: moderate Chest: none Legs: none	Michele Franklin	Female, 41 years	Stockton, CA	First Symptom: 11/09 Dx: 11/10
Jacks Sex: M Data Quality: 0 stars ALS: 2 yrs Bulbar: unreported Arms: unreported Chest: unreported Legs: unreported	David Goss	Male, 58 years	Roy, UT	First Symptom: 01/10 Dx: 07/10
slim18 Sex: M Data Quality: 2 stars ALS: 4 yrs Bi-Pap Wheelchair Bulbar: moderate Arms: moderate Chest: moderate Legs: moderate	Wayne Robertson	Male, 68 years	Blenheim, Marlborough	First Symptom: 01/09 Dx: 06/10
DaisyGurrgles Sex: F Data Quality: 1 star ALS: 16 yrs Wheelchair Bulbar: mild Arms: severe Chest: mild Legs: severe	Mandy Gurr-Snyman	Female, 49 years	Port Elizabeth, Eastern Province	First Symptom: 01/97 Dx: 09/98
Chama Chameleon Sex: F Data Quality: 2 stars ALS: 4 yrs Bi-Pap Wheelchair Feeding tube Bulbar: moderate Arms: moderate Chest: moderate Legs: severe	Heidi Peterson	Female, 56 years	Campbell River, BC	First Symptom: 09/08 Dx: 04/10
HappyPhysicist Sex: M Data Quality: 2 stars ALS: 2 yrs Bulbar: moderate Arms: mild Chest: mild Legs: moderate	Ben Harris	Male, 46 years	Bloomington, IN	First Symptom: 06/10 Dx: 01/11
dta612 Sex: M Data Quality: 1 star ALS: 3 yrs Bulbar: moderate Arms: moderate Chest: mild Legs: moderate	David Anderson	Male, 47 years	Minneapolis, MN	First Symptom: 11/09 Dx: 10/10
beach babe Sex: F Data Quality: 1 star ALS: 3 yrs Bulbar: mild Arms: mild Chest: none Legs: mild	Karen McMillen	Female, 49 years	Chandler, AZ	First Symptom: 03/10 Dx: 11/10
shapleigh2 Sex: M Data Quality: 1 star ALS: 4 yrs Bi-Pap Bulbar: severe Arms: none Chest: mild Legs: mild	Scott Shapleigh	Male, 41 years	MD, United States	First Symptom: 02/09 Dx: 05/09

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