ALS Public Registry

Patient Status	Patient Name	Profile	Location	Diagnosis Info
dkowalsky Sex: F Data Quality: 1 star ALS: 2 yrs Wheelchair Bulbar: moderate Arms: moderate Chest: moderate Legs: severe	DOLORES KOWALSKY	Female, 80 years		First Symptom: 07/09 Dx: 03/11
Peggles57 Sex: F Data Quality: 1 star ALS: 2 yrs Bi-Pap Wheelchair Bulbar: moderate Arms: moderate Chest: moderate Legs: moderate	Margaret Mary Lovett	Female, 55 years	North Smithfield, RI	First Symptom: 07/10 Dx: 05/11
sbaasman Sex: F Data Quality: 1 star ALS: 2 yrs Bulbar: mild Arms: none Chest: none Legs: mild	Susan Aasman	Female, 67 years	Mitchell, ON	First Symptom: 09/10 Dx: 04/11
Plight7777 Sex: M Data Quality: 1 star ALS: 2 yrs Bulbar: none Arms: moderate Chest: none Legs: moderate	Paul Light	Male, 69 years	Lexington, KY	First Symptom: 03/11 Dx: 05/11
Ludmila Sex: F Data Quality: 1 star ALS: 3 yrs Wheelchair Bulbar: none Arms: none Chest: none Legs: moderate	Ludmila Chirkova	Female, 67 years	St-Petersburg, Russian Federation	First Symptom: 05/10 Dx: 11/10
melapeno Sex: F Data Quality: 3 stars ALS: 2 yrs Bi-Pap Feeding tube Bulbar: severe Arms: mild Chest: mild Legs: mild	Barbara Howell	Female, 59 years	Salty Lake City, UT	First Symptom: 05/10 Dx: 01/11
nikonuser1 Sex: F Data Quality: 3 stars ALS: 7 yrs Bi-Pap Feeding tube Bulbar: mild Arms: moderate Chest: mild Legs: moderate	Linda Tarbox	Female, 63 years	Sandown, NH	First Symptom: 07/05 Dx: 11/10
writeon Sex: F Data Quality: 3 stars ALS: 3 yrs Feeding tube Bulbar: severe Arms: none Chest: mild Legs: none	Mary Murray	Female, 67 years	Braintree, MA	First Symptom: 07/09 Dx: 01/10
dennyauto Sex: M Data Quality: 0 stars ALS: 2 yrs Wheelchair Bulbar: severe Arms: severe Chest: moderate Legs: severe	Jon S	Male, 55 years		First Symptom: 06/10 Dx: 10/10
Spodfather Sex: M Data Quality: 2 stars ALS: 3 yrs Wheelchair Bulbar: mild Arms: severe Chest: mild Legs: moderate	Chris Boon	Male, 38 years	St Helens, Merseyside	First Symptom: 11/09 Dx: 07/10
Cammy100 Sex: F Data Quality: 2 stars ALS: 2 yrs Bi-Pap Wheelchair Feeding tube Bulbar: mild Arms: moderate Chest: moderate Legs: severe	Carol Megivern	Female, 57 years	Cocoa, FL	First Symptom: 10/10 Dx: 05/11
voiceforlinda Sex: F Data Quality: 0 stars ALS: 4 yrs Bi-Pap Feeding tube Bulbar: severe Arms: none Chest: mild Legs: mild	Linda Ratliff	Female, 52 years		First Symptom: 07/08 Dx: 11/10
Ronc75 Sex: M Data Quality: 2 stars ALS: 2 yrs Bi-Pap Wheelchair Bulbar: severe Arms: mild Chest: moderate Legs: moderate	Ron Chambers	Male, 77 years	Calgary, AB	First Symptom: 06/10 Dx: 05/11
jeanmck Sex: M Data Quality: 2 stars ALS: 2 yrs Ventilator Wheelchair Bulbar: severe Arms: severe Chest: severe Legs: severe	Ed McKnight	Male, 50 years	Taylors, SC	First Symptom: 10/10 Dx: 04/11
JUSTJPL2 Sex: M Data Quality: 1 star ALS: 3 yrs Bulbar: none Arms: mild Chest: none Legs: mild	JAY LALIBERTE	Male, 57 years	SOUTHBRIDGE, MA	First Symptom: 12/09 Dx: 04/10
solati Sex: F Data Quality: 0 stars ALS: ? yrs Bulbar: unreported Arms: unreported Chest: unreported Legs: unreported	solange tinoco	Female, 55 years		member since May 2011
Bobalu Sex: M Data Quality: 1 star ALS: 2 yrs Wheelchair Bulbar: none Arms: mild Chest: none Legs: mild	Joseph Moran	Male, 68 years	Naples, FL	First Symptom: 10/10 Dx: 05/11
Alexp Sex: M Data Quality: 2 stars ALS: 2 yrs Wheelchair Bulbar: none Arms: mild Chest: none Legs: moderate	Mike Pohorylo	Male, 61 years	Suffield, CT	First Symptom: 07/10 Dx: 06/11
pals nz Sex: M Data Quality: 3 stars ALS: 4 yrs Bulbar: none Arms: none Chest: none Legs: moderate	Terry Dagnin	Male, 57 years	Auckland, New Zealand	First Symptom: 03/09 Dx: 02/11
bryalexander Sex: M Data Quality: 1 star ALS: 3 yrs Bi-Pap Wheelchair Feeding tube Bulbar: moderate Arms: severe Chest: moderate Legs: severe	Bryan Alexander	Male, 50 years	OR, United States	First Symptom: 10/09 Dx: 05/10

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