PatientsLikeMe : ALS Public Registry

Patient Status	Patient Name	Profile	Location	Diagnosis Info
tazzman Sex: M Data Quality: 2 stars ALS: < 1 yr Mouth/throat: mild Arms: none Chest: none Legs: none	Ralph Fourquet	Male, 62 years	United StatesNYlake grove lake grove, NY	bulbar onset: 02/09 Dx: 08/09 Type: ALS/Motor Neuron Disease
PALS Sex: M Data Quality: 1 star ALS: 1 yr Mouth/throat: none Arms: mild Chest: none Legs: mild	James Keeffe	Male, 55 years	United StatesALandalusia andalusia, AL	arms onset: 04/08 Dx: 08/09 Type: ALS/Motor Neuron Disease
Anonymous Sex: M Data Quality: 2 stars ALS: 1 yr Mouth/throat: none Arms: mild Chest: none Legs: mild	Stefan Poehl	Male, 44 years	GermanyNiedersachsenBraunschweig Braunschweig, Niedersachsen	arms onset: 03/08 Dx: 10/08 Type: ALS/Motor Neuron Disease
BeachPower Sex: M Data Quality: 3 stars ALS: 4 yrs Wheelchair Mouth/throat: none Arms: moderate Chest: none Legs: moderate	Gerald Nasello	Male, 65 years	United StatesALGulf Shores Gulf Shores, AL	arms onset: 01/05 Dx: 06/05 Type: ALS/Motor Neuron Disease
Anonymous Sex: M Data Quality: 0 stars ALS: < 1 yr Mouth/throat: none Arms: none Chest: none Legs: none	Terry Radke	Male, 61 years	United StatesINBloomington Bloomington, IN	onset: 05/09 Dx: 08/09 Type: ALS/Motor Neuron Disease
doepie Sex: F Data Quality: 3 stars ALS: 2 yrs Mouth/throat: severe Arms: severe Chest: none Legs: moderate	Ronelle Cloete	Female, 44 years	South AfricaFree State Free State, South Africa	bulbar onset: 06/07 Dx: 07/08 Type: ALS/Motor Neuron Disease
gypsyrose Sex: F Data Quality: 2 stars PLS: 4 yrs Mouth/throat: none Arms: mild Chest: none Legs: mild Type: Upper Motor Neuron	Karen Ortlieb	Female, 42 years	United StatesVTbrattleboro brattleboro, VT	legs onset: 02/05 Dx: 09/09 Type: PLS/Primary Lateral Sclerosis
vardemale Sex: M Data Quality: 2 stars ALS: 14 yrs Bi-Pap Mouth/throat: none Arms: mild Chest: mild Legs: mild	Kai Jorgensen	Male, 57 years	Denmark Denmark	arms onset: 01/95 Dx: 08/01 Type: ALS/Motor Neuron Disease
Anonymous Data Quality: 0 stars ALS: < 1 yr Mouth/throat: unreported Arms: unreported Chest: unreported Legs: unreported	Brian Board			legs onset: 03/09 Dx: 06/09 Type: ALS/Motor Neuron Disease
Anonymous Data Quality: 0 stars ALS: 1 yr Mouth/throat: mild Arms: none Chest: none Legs: none	David Diodato			arms onset: 12/07 Dx: 01/09 Type: ALS/Motor Neuron Disease
Anonymous Sex: F Data Quality: 2 stars ALS: 2 yrs Mouth/throat: mild Arms: moderate Chest: none Legs: moderate	Hanne Stenmose	Female, 50 years	DenmarkHolbæk Holbæk, Denmark	arms onset: 09/07 Dx: 10/08 Type: ALS/Motor Neuron Disease
Anonymous Sex: M Data Quality: 2 stars ALS: 7 yrs Wheelchair Feeding tube Mouth/throat: moderate Arms: severe Chest: none Legs: moderate	Allan Knudsen	Male, 43 years	DenmarkMiddelfart Middelfart, Denmark	arms onset: 01/02 Dx: 04/05 Type: ALS/Motor Neuron Disease
Anonymous Sex: F Data Quality: 2 stars ALS: 1 yr Mouth/throat: mild Arms: none Chest: mild Legs: mild	Betty Diane Semple	Female, 62 years	United StatesCOHighlands Ranch Highlands Ranch, CO	respiratory onset: 11/08 Dx: 05/09 Type: ALS/Motor Neuron Disease
Anonymous Sex: F Data Quality: 3 stars ALS: 2 yrs Mouth/throat: none Arms: none Chest: none Legs: mild	Marianna Nolsøe	Female, 60 years	Faroe IslandsThorshavn Thorshavn, Faroe Islands	legs onset: 07/07 Dx: 08/09 Type: ALS/Motor Neuron Disease
Anonymous Data Quality: 0 stars PMA: 3 yrs Wheelchair Mouth/throat: none Arms: mild Chest: none Legs: severe Type: Lower Motor Neuron	Jean-Claude Cote			onset: 04/06 Dx: 03/07 Type: PMA/Progressive Muscular Atrophy
Anonymous Data Quality: 0 stars ALS: ? yrs Mouth/throat: none Arms: none Chest: none Legs: none	Maximo De Leon			Type: ALS/Motor Neuron Disease
Anonymous Sex: F Data Quality: 1 star ALS: 7 yrs Bi-Pap Wheelchair Mouth/throat: mild Arms: moderate Chest: mild Legs: severe	Violet Jones-Medusky	Female, 57 years	United StatesHIhonolulu honolulu, HI	legs onset: 09/02 Dx: 10/06 Type: ALS/Motor Neuron Disease
anunturi Sex: M Data Quality: 0 stars ALS: ? yrs Mouth/throat: unreported Arms: unreported Chest: unreported Legs: unreported	Anunturi Gratutie	Male, 32 years	Romaniabucharestbucharest bucharest, bucharest	Type: ALS/Motor Neuron Disease
Daydreamer Sex: F Data Quality: 3 stars ALS: 1 yr Mouth/throat: none Arms: mild Chest: none Legs: moderate	Jan Elser	Female, 67 years	United StatesAKSterling Sterling, AK	legs onset: 12/07 Dx: 06/09 Type: ALS/Motor Neuron Disease
lynnalspt Sex: F Data Quality: 3 stars ALS: 1 yr Mouth/throat: none Arms: moderate Chest: none Legs: moderate	Lynn Foglio	Female, 39 years	United StatesNJWilliamstown Williamstown, NJ	arms onset: 10/08 Dx: 05/09 Type: ALS/Motor Neuron Disease

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