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Welcome to the PatientsLikeMe Public ALS Registry

This is a registry for Amyotrophic Lateral Sclerosis (Lou Gehrig's Disease, or ALS) intended to help Persons with ALS (PALS) reach out to each other and stand up and be counted. It was originally started it as a mailing list by Bobby Brannigan, PALS and PatientsLikeMe community member, and it is now being maintained by PatientsLikeMe. If you have any questions about privacy or terms of service, contact PatientsLikeMe.

You can help by passing this info on to other PALS.


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 There are 1832 PALS in the registry who recently joined us.

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Newest Registry Members

Patient Status Patient Name Profile Location Diagnosis Info
eagle60373
Sex: M
Data Quality: 0 stars
ALS: 1 yr
Bi-Pap
Bulbar: mild
Arms: none
Chest: mild
Legs: mild
Jim Morgan Male, 63 years United States First Symptom: 08/11
Dx: 06/12
liltne2
Sex: M
Data Quality: 1 star
ALS: 1 yr
Bulbar: none
Arms: severe
Chest: none
Legs: moderate
Robert Bowers Male, 65 years Croswell, MI First Symptom: 11/11
Dx: 03/12
itstheblues
Sex: F
Data Quality: 1 star
ALS: 1 yr
Bulbar: moderate
Arms: mild
Chest: mild
Legs: moderate
Susan Mitchell Female, 57 years Homosassa, FL First Symptom: 01/12
Dx: 06/12
Beesters
Sex: F
Data Quality: 1 star
ALS: 2 yrs
Bulbar: mild
Arms: mild
Chest: none
Legs: mild
Belinda Redington Female, 59 years Redwood City, CA First Symptom: 07/10
Dx: 07/10
lfriff
Sex: F
Data Quality: 1 star
ALS: 5 yrs
Bi-Pap Wheelchair
Bulbar: mild
Arms: mild
Chest: mild
Legs: moderate
Lynda Riffle Female, 65 years Avondale, AZ First Symptom: 07/07
Dx: 02/12
notlimah47
Sex: M
Data Quality: 0 stars
ALS: ? yrs
Bi-Pap Wheelchair
Bulbar: moderate
Arms: severe
Chest: moderate
Legs: severe
JAMES FENTON Male, 65 years ankeny, IA Dx: 06/10
Rick Berger
Sex: M
Data Quality: 2 stars
ALS: 23 yrs
Wheelchair
Bulbar: none
Arms: moderate
Chest: mild
Legs: moderate
Rick Berger Male, 51 years Melbourne, FL First Symptom: 03/90
Dx: 12/11
Kellygirl04
Sex: F
Data Quality: 2 stars
ALS: 4 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: severe
Arms: moderate
Chest: moderate
Legs: moderate
Debbie Post Female, 57 years byram, NJ First Symptom: 07/08
Dx: 07/10
ChristianO'Shea
Sex: M
Data Quality: 1 star
ALS: 16 yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Christian O'Shea Male, 46 years Millville, NJ First Symptom: 07/96
Dx: 07/96
canesgirl
Sex: F
Data Quality: 1 star
ALS: 3 yrs
Bulbar: none
Arms: mild
Chest: none
Legs: moderate
Cathy Boyce Female, 57 years FL, United States First Symptom: 08/09
Dx: 08/11
mrk123
Sex: F
Data Quality: 3 stars
ALS: 1 yr
Bulbar: none
Arms: none
Chest: none
Legs: moderate
Madeline Kennedy Female, 60 years Capital District, NY First Symptom: 09/11
Dx: 05/12
ALSSUX
Sex: F
Data Quality: 2 stars
ALS: 3 yrs
Bulbar: mild
Arms: moderate
Chest: none
Legs: moderate
Kathleen Hume Female, 51 years Carmel, IN First Symptom: 07/09
Dx: 03/12
SimonG
Data Quality: 1 star
  • Sex: Male
  • Age: 58y
Condition: Lung Cancer 3 additional condition(s)
Quality of Life:
  • Social: Mild
  • Mental: Mild
  • Physical: Moderate
I am: Very good
Simon Greenway Male, 58 years United Kingdom Dx: 08/12
andersobob
Sex: M
Data Quality: 3 stars
ALS: 2 yrs
Bulbar: moderate
Arms: none
Chest: none
Legs: none
Robert Anderson Male, 60 years Zebulon, NC First Symptom: 02/11
Dx: 06/11
cjl326
Sex: F
Data Quality: 2 stars
ALS: 5 yrs
Wheelchair
Bulbar: mild
Arms: severe
Chest: mild
Legs: moderate
Carla Shearon Female, 59 years Bloomfield , NE First Symptom: 08/07
Dx: 01/09
juliabauer
Sex: F
Data Quality: 2 stars
ALS: 3 yrs
Bi-Pap Feeding tube
Bulbar: moderate
Arms: none
Chest: mild
Legs: none
Julia Bauer Female, 64 years Grand Rapids, MI First Symptom: 03/10
Dx: 09/10
baddley
Sex: F
Data Quality: 3 stars
ALS: 2 yrs
Bi-Pap Wheelchair
Bulbar: moderate
Arms: moderate
Chest: moderate
Legs: moderate
rose pierce Female, 59 years salt lake city, UT First Symptom: 12/09
Dx: 07/10
ilford
Sex: M
Data Quality: 2 stars
ALS: 16 yrs
Wheelchair
Bulbar: moderate
Arms: mild
Chest: none
Legs: moderate
Herman Jacobs Male, 62 years Montreal, QC First Symptom: 12/96
Dx: 07/97
kokinho
Sex: M
Data Quality: 0 stars
ALS: 3 yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
GEORGE SANTS Male, 69 years Spain First Symptom: 05/10
Dx: 08/11
batboy4111
Sex: F
Data Quality: 1 star
ALS: 11 yrs
Bi-Pap
Bulbar: none
Arms: moderate
Chest: none
Legs: moderate
Joely Swenson Female, 42 years CA, United States First Symptom: 06/02
Dx: 10/11

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