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Welcome to the PatientsLikeMe Public ALS Registry

This is a registry for Amyotrophic Lateral Sclerosis (Lou Gehrig's Disease, or ALS) intended to help Persons with ALS (PALS) reach out to each other and stand up and be counted. It was originally started it as a mailing list by Bobby Brannigan, PALS and PatientsLikeMe community member, and it is now being maintained by PatientsLikeMe. If you have any questions about privacy or terms of service, contact PatientsLikeMe.

You can help by passing this info on to other PALS.


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 There are 1829 PALS in the registry who recently joined us.

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Newest Registry Members

Patient Status Patient Name Profile Location Diagnosis Info
MStone
Sex: M
Data Quality: 3 stars
ALS: 2 yrs
Bulbar: none
Arms: none
Chest: none
Legs: moderate
Mark Stone Male, 52 years Oxford, Oxon First Symptom: 07/10
Dx: 01/12
alsadler
Sex: F
Data Quality: 0 stars
ALS: 2 yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Lorraine Sadler Female, 61 years United States First Symptom: 03/11
Dx: 10/11
marywhite727
Sex: F
Data Quality: 0 stars
ALS: 12 yrs
Bi-Pap Wheelchair
Bulbar: moderate
Arms: moderate
Chest: moderate
Legs: severe
Mary White Female United States First Symptom: 07/00
Dx: 01/10
dewafe
Sex: M
Data Quality: 0 stars
ALS: 2 yrs
Bulbar: none
Arms: mild
Chest: none
Legs: mild
Doug H Male, 52 years United States First Symptom: 08/10
Dx: 02/12
martinez
Sex: F
Data Quality: 0 stars
ALS: 1 yr
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Ramon Antonio Martinez Female, 75 years Puerto Rico First Symptom: 07/11
Dx: 02/11
jamiem
Sex: F
Data Quality: 3 stars
ALS: 1 yr
Bi-Pap Feeding tube
Bulbar: severe
Arms: none
Chest: mild
Legs: none
Jamie Moorhead Female, 55 years Dallas, TX First Symptom: 11/11
Dx: 08/12
Magacopa
Sex: F
Data Quality: 1 star
ALS: 3 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: mild
Arms: moderate
Chest: mild
Legs: severe
Marilyn Palmer Female, 70 years Portland , OR First Symptom: 02/10
Dx: 08/12
tansule
Sex: M
Data Quality: 0 stars
ALS: 1 yr
Bulbar: moderate
Arms: none
Chest: none
Legs: none
Nuri Tosun Male, 54 years Turkey First Symptom: 07/11
Dx: 11/11
yar1982mmer
Sex: M
Data Quality: 2 stars
ALS: 5 yrs
Bi-Pap Wheelchair
Bulbar: moderate
Arms: moderate
Chest: moderate
Legs: moderate
Raymond Wimmer Male, 64 years Pleasant Grove, UT First Symptom: 07/07
Dx: 02/10
Nnorraap
Sex: F
Data Quality: 0 stars
ALS: 7 yrs
Bulbar: none
Arms: moderate
Chest: none
Legs: moderate
Nora Perez Female, 50 years United States First Symptom: 06/05
Dx: 11/11
allturnatives
Sex: F
Data Quality: 1 star
ALS: 4 yrs
Bulbar: moderate
Arms: none
Chest: none
Legs: mild
Teresa Marston Female, 67 years France First Symptom: 07/08
Dx: 11/11
Nautica1959
Sex: M
Data Quality: 1 star
ALS: 1 yr
Bulbar: none
Arms: none
Chest: none
Legs: none
Aernout Koole Male, 54 years Limmen, Netherlands First Symptom: 07/11
Dx: 10/12
Mikie1950
Sex: F
Data Quality: 1 star
ALS: 4 yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Michelene Campise Female, 63 years Friendswood, TX First Symptom: 02/09
Dx: 07/09
azbabs
Sex: F
Data Quality: 3 stars
ALS: 1 yr
Bi-Pap
Bulbar: mild
Arms: none
Chest: mild
Legs: mild
Barbara Robertson Female, 47 years Glendale, AZ First Symptom: 09/11
Dx: 08/12
wrgguts
Sex: M
Data Quality: 3 stars
ALS: 3 yrs
Bi-Pap
Bulbar: mild
Arms: mild
Chest: moderate
Legs: none
William Gauthier Male, 61 years Canton, MI First Symptom: 09/09
Dx: 08/11
ndc38135
Sex: F
Data Quality: 1 star
ALS: 10 yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Nancy Cothern Female, 73 years Memphis, TN First Symptom: 07/02
Dx: 05/03
Bebe28
Sex: F
Data Quality: 3 stars
ALS: 2 yrs
Bi-Pap Feeding tube
Bulbar: moderate
Arms: none
Chest: moderate
Legs: none
Beth Thrift Female, 48 years GA, United States First Symptom: 10/10
Dx: 03/12
eagle60373
Sex: M
Data Quality: 0 stars
ALS: 1 yr
Bi-Pap
Bulbar: mild
Arms: none
Chest: mild
Legs: mild
Jim Morgan Male, 63 years United States First Symptom: 08/11
Dx: 06/12
liltne2
Sex: M
Data Quality: 1 star
ALS: 1 yr
Bulbar: none
Arms: severe
Chest: none
Legs: moderate
Robert Bowers Male, 64 years Croswell, MI First Symptom: 11/11
Dx: 03/12
itstheblues
Sex: F
Data Quality: 2 stars
ALS: 1 yr
Bulbar: moderate
Arms: mild
Chest: mild
Legs: moderate
Susan Mitchell Female, 57 years Homosassa, FL First Symptom: 01/12
Dx: 06/12

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