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Welcome to the PatientsLikeMe Public ALS Registry

This is a registry for Amyotrophic Lateral Sclerosis (Lou Gehrig's Disease, or ALS) intended to help Persons with ALS (PALS) reach out to each other and stand up and be counted. It was originally started it as a mailing list by Bobby Brannigan, PALS and PatientsLikeMe community member, and it is now being maintained by PatientsLikeMe. If you are a PALS, you can add your name by signing up for a PatientsLikeMe account and filling out your profile. If you have any questions about privacy or terms of service, email PatientsLikeMe at support@patientslikeme.com.

You can help by passing this info on to other PALS.

 There are 11 PALS in the registry starting with the letter Y.

Patient Status Patient Name Profile Location Diagnosis Info
prabath
Data Quality: 0 stars
ALS: ? yrs
Mouth/throat: unreported
Arms: unreported
Chest: unreported
Legs: unreported
 Prabath Yapa
Type: ALS/Motor Neuron Disease
Anonymous
Data Quality: 0 stars
ALS: ? yrs
Mouth/throat: unreported
Arms: unreported
Chest: unreported
Legs: unreported
 Susan Yoakum
member since Apr 2007
Anonymous
Data Quality: 0 stars
ALS: 3 yrs
Mouth/throat: none
Arms: moderate
Chest: none
Legs: moderate
 Ami Yoder
arms onset: 01/06
Dx: 09/07
Type: ALS/Motor Neuron Disease
Anonymous
Sex: M
Data Quality: 1 star
ALS: 11 yrs
Feeding tube
Mouth/throat: moderate
Arms: moderate
Chest: mild
Legs: moderate
 Jason Yoder Male, 38 years
United StatesNYBuffalo
Buffalo, NY		 bulbar onset: 11/97
Dx: 06/07
Type: ALS/Motor Neuron Disease
Anonymous
Sex:
Data Quality: 0 stars
ALS: 5 yrs
Bi-Pap
Mouth/throat: severe
Arms: moderate
Chest: moderate
Legs: mild
 Dawn Youdan
bulbar onset: 06/00
Dx: 10/01
Type: ALS/Motor Neuron Disease
Anonymous
Sex:
Data Quality: 0 stars
ALS: ? yrs
Mouth/throat: unreported
Arms: unreported
Chest: unreported
Legs: unreported
 John Young
member since Nov 2006
Anonymous
Sex: M
Data Quality: 1 star
ALS: 4 yrs
Mouth/throat: none
Arms: mild
Chest: none
Legs: mild
 Sean Younger Male, 32 years
United StatesKSChanute
Chanute, KS		 legs onset: 10/05
Dx: 03/06
Type: ALS/Motor Neuron Disease
cheekymonkey
Sex: F
Data Quality: 1 star
ALS: 5 yrs
Mouth/throat: moderate
Arms: severe
Chest: mild
Legs: moderate
 Melissa Youngren-Newton Female, 32 years
United StatesMNMontgomery
Montgomery, MN		 bulbar onset: 06/04
Dx: 05/07
Type: ALS/Motor Neuron Disease
yrnssrinivas
Sex: M
Data Quality: 1 star
ALS: 4 yrs
Wheelchair
Mouth/throat: none
Arms: mild
Chest: none
Legs: severe
 Srinivas Yrns Male, 43 years
IndiaAndhra PradeshVisakhapatnam
Visakhapatnam, Andhra Pradesh		 legs onset: 08/05
Dx: 10/05
Type: ALS/Motor Neuron Disease
Anonymous
Sex: M
Data Quality: 1 star
ALS: 11 yrs
Ventilator Wheelchair
Mouth/throat: none
Arms: severe
Chest: moderate
Legs: severe
 John Yuhas Male, 57 years
United StatesNYSyracuse
Syracuse, NY		 legs onset: 02/98
Dx: 02/99
Type: ALS/Motor Neuron Disease
Anonymous
Sex: M
Data Quality: 1 star
ALS: 5 yrs
Mouth/throat: none
Arms: moderate
Chest: none
Legs: moderate
 Alex Yung Male, 65 years
ChileSantigo
Santigo, Chile		 arms onset: 03/04
Dx: 12/04
Type: ALS/Motor Neuron Disease