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Welcome to the PatientsLikeMe Public ALS Registry

This is a registry for Amyotrophic Lateral Sclerosis (Lou Gehrig's Disease, or ALS) intended to help Persons with ALS (PALS) reach out to each other and stand up and be counted. It was originally started it as a mailing list by Bobby Brannigan, PALS and PatientsLikeMe community member, and it is now being maintained by PatientsLikeMe. If you have any questions about privacy or terms of service, contact PatientsLikeMe.

You can help by passing this info on to other PALS.


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 There are 26 PALS in the registry starting with the letter V.

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A | B | C | D | E | F | G | H | I | J | K | L | M | N | O | P | Q | R | S | T | U | V | W | X | Y | Z

Newest Registry Members

Patient Status Patient Name Profile Location Diagnosis Info
helpfull
Sex: M
Data Quality: 0 stars
ALS: 8 yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
claude valentine Male, 71 years columbia, NJ First Symptom: 01/05
Dx: 10/08
JAVALE30
Sex: M
Data Quality: 0 stars
ALS: 7 yrs
Wheelchair
Bulbar: mild
Arms: severe
Chest: mild
Legs: moderate
Joe Valenzuela Male, 39 years FRESNO, CA First Symptom: 04/06
Dx: 11/06
Nadine Barbara
Sex: F
Data Quality: 0 stars
ALS: 6 yrs
Bulbar: none
Arms: none
Chest: none
Legs: none
Nadine Vallon Auderset Female, 41 years Yverdon-les-Bains, Switzerland First Symptom: 05/07
Dx: 02/08
ENV
Sex: M
Data Quality: 0 stars
PMA: 9 yrs
Ventilator Wheelchair Feeding tube
Bulbar: mild
Arms: severe
Chest: moderate
Legs: severe
Eric Valor Male, 44 years United States First Symptom: 05/04
Dx: 04/05
JanNL
Sex: M
Data Quality: 0 stars
ALS: 12 yrs
Bulbar: moderate
Arms: none
Chest: none
Legs: moderate
Jan van Atten Male, 75 years Rotterdam, Netherlands First Symptom: 08/95
Dx: 01/98
daddy
Sex: M
Data Quality: 0 stars
ALS: 7 yrs
Wheelchair
Bulbar: mild
Arms: severe
Chest: mild
Legs: severe
clyde Vance Male, 51 years holden, WV First Symptom: 12/05
Dx: 01/08
Paulv5
Sex: M
Data Quality: 0 stars
ALS: 4 yrs
Wheelchair
Bulbar: none
Arms: mild
Chest: none
Legs: severe
Paul Van Dellen Male, 84 years glendale, CA First Symptom: 09/08
Dx: 07/09
gert van den berg
Sex: M
Data Quality: 0 stars
ALS: 7 yrs
Bulbar: none
Arms: mild
Chest: mild
Legs: mild
gert van den berg Male, 47 years Netherlands First Symptom: 09/05
Dx: 02/06
helsja
Sex: M
Data Quality: 0 stars
ALS: 5 yrs
Bi-Pap Wheelchair
Bulbar: none
Arms: moderate
Chest: mild
Legs: moderate
Helmut van der Sanden Male, 68 years Sarasota, FL First Symptom: 09/07
Dx: 07/08
hemst
Sex: M
Data Quality: 1 star
ALS: 6 yrs
Wheelchair
Bulbar: none
Arms: mild
Chest: none
Legs: moderate
Henk van Emst Male, 51 years Valthe, Drenthe First Symptom: 06/07
Dx: 09/08
Henk
Sex: M
Data Quality: 0 stars
ALS: 6 yrs
Bi-Pap Feeding tube
Bulbar: severe
Arms: moderate
Chest: moderate
Legs: mild
Henk van Oijen Male, 58 years Losser, The Netherlands First Symptom: 11/06
Dx: 06/08
spider
Sex: M
Data Quality: 1 star
ALS: 12 yrs
Wheelchair
Bulbar: mild
Arms: severe
Chest: none
Legs: moderate
Rennie Van Rensburg Male, 57 years Potchefstroom, North-West First Symptom: 08/00
Dx: 08/01
Ton
Sex: M
Data Quality: 0 stars
ALS: 7 yrs
Bulbar: mild
Arms: moderate
Chest: none
Legs: none
Ton van Vliet Male, 49 years IJsselstein, Utrecht First Symptom: 01/06
Dx: 11/06
Laravago
Sex: M
Data Quality: 0 stars
ALS: 3 yrs
Bulbar: none
Arms: none
Chest: none
Legs: mild
Erik van Voorhees Male, 60 years Audubon, PA First Symptom: 06/10
Dx: 09/10
IriaVargas
Sex: F
Data Quality: 0 stars
ALS: 6 yrs
Bulbar: none
Arms: moderate
Chest: none
Legs: none
Iria Vargas Female, 57 years Pawtucket, RI First Symptom: 07/06
Dx: 02/07
chwid
Sex: M
Data Quality: 1 star
ALS: 1 yr
Bi-Pap Wheelchair
Bulbar: moderate
Arms: moderate
Chest: mild
Legs: severe
Carlton Varner Male, 61 years Pasadena, CA First Symptom: 09/07
Dx: 03/08
carmenf
Sex: M
Data Quality: 0 stars
ALS: 10 yrs
Bulbar: mild
Arms: mild
Chest: mild
Legs: mild
carmen varona Male, 53 years Spain First Symptom: 09/02
Dx: 08/03
BELLAITALIA
Sex: F
Data Quality: 0 stars
ALS: <1 yr
Bi-Pap
Bulbar: none
Arms: mild
Chest: none
Legs: moderate
Jennifer Vattuone Female, 30 years San Diego, CA First Symptom: 02/06
Dx: 07/06
Lee
Sex: M
Data Quality: 0 stars
ALS: 2 yrs
Feeding tube
Bulbar: severe
Arms: mild
Chest: mild
Legs: mild
Lee Vaughn Male, 75 years Renton, WA First Symptom: 06/04
Dx: 05/05
casey01
Sex: F
Data Quality: 0 stars
ALS: 7 yrs
Wheelchair
Bulbar: none
Arms: mild
Chest: none
Legs: moderate
deannie vernon Female, 67 years victoria, BC First Symptom: 06/06
Dx: 06/07

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