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Welcome to the PatientsLikeMe Public ALS Registry

This is a registry for Amyotrophic Lateral Sclerosis (Lou Gehrig’s Disease, or ALS) intended to help Persons with ALS (PALS) reach out to each other and stand up and be counted. It was originally started it as a mailing list by Bobby Brannigan, PALS and PatientsLikeMe community member, and it is now being maintained by PatientsLikeMe. If you have any questions about privacy or terms of service, contact PatientsLikeMe.

You can help by passing this info on to other PALS.

There are PALS in the registry starting with the letter S.

Jump to last name:

A | B | C | D | E | F | G | H | I | J | K | L | M | N | O | P | Q | R | S | T | U | V | W | X | Y | Z

Newest Registry Members

Patient Status Patient Name Profile Location Diagnosis Info
Ernie
Sex: M
Data Quality: 0 stars
ALS: 19 yrs
Bi-Pap
Bulbar: none
Arms: mild
Chest: mild
Legs: moderate
Ernie Smith Male, 76 years Salinas, CA First Symptom: 10/95
Dx: 02/98
Funnywriter
Data Quality: 0 stars
ALS: 9 yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Bob Smith First Symptom: 07/05
Dx: 04/07
griefel
Data Quality: 0 stars
ALS: ? yrs
Bi-Pap
Bulbar: mild
Arms: mild
Chest: mild
Legs: none
Mike Smith member since
Gardenlady
Data Quality: 0 stars
ALS: ? yrs
Bulbar: moderate
Arms: mild
Chest: none
Legs: none
Virginia Smith member since
Cary Smith
Sex: M
Data Quality: 0 stars
ALS: 12 yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Cary Smith Male, 45 years Atlanta, GA First Symptom: 01/02
Dx: 09/02
Dsmith
Sex: M
Data Quality: 1 star
ALS: 11 yrs
Ventilator Wheelchair Feeding tube
Bulbar: severe
Arms: severe
Chest: severe
Legs: moderate
Darren Smith Male, 54 years Fayetteville, GA First Symptom: 04/03
Dx: 06/04
Steve Smith
Sex: M
Data Quality: 0 stars
ALS: 13 yrs
Ventilator Feeding tube
Bulbar: severe
Arms: severe
Chest: severe
Legs: moderate
Steve Smith Male, 61 years Winterville, NC First Symptom: 12/99
Dx: 06/01
jessluke
Data Quality: 0 stars
ALS: 9 yrs
Bi-Pap
Bulbar: mild
Arms: mild
Chest: moderate
Legs: mild
ralph SNIDOW First Symptom: 09/05
Dx: 11/08
jwsnow
Sex: F
Data Quality: 0 stars
ALS: 9 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: moderate
Arms: severe
Chest: moderate
Legs: severe
Judy Snow Female, 66 years Conyers, GA First Symptom: 12/05
Dx: 06/06
Sarna
Sex:
Data Quality: 0 stars
ALS: 16 yrs
Bi-Pap Wheelchair
Bulbar: moderate
Arms: severe
Chest: moderate
Legs: severe
Sarna Sober First Symptom: 01/98
Dx: 06/99
meilono
Sex: M
Data Quality: 0 stars
ALS: 10 yrs
Wheelchair
Bulbar: moderate
Arms: severe
Chest: mild
Legs: moderate
meilono soewondo Male, 60 years jakarta, Indonesia First Symptom: 10/04
Dx: 02/05
Adita
Sex: F
Data Quality: 0 stars
ALS: 2 yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Ada Sojo Female, 70 years Caracas, Aragua First Symptom: 02/06
Dx: 08/07
onward
Sex: M
Data Quality: 0 stars
ALS: 9 yrs
Bulbar: mild
Arms: moderate
Chest: none
Legs: moderate
greg soltys Male, 61 years williamsburg, VA First Symptom: 10/05
Dx: 05/07
Lil'Soaphead
Sex: M
Data Quality: 0 stars
ALS: 8 yrs
Wheelchair
Bulbar: none
Arms: moderate
Chest: none
Legs: moderate
Anthony Soper Male, 43 years Brunswick, ME First Symptom: 03/06
Dx: 12/06
joejoe
Sex: M
Data Quality: 0 stars
ALS: 10 yrs
Bulbar: none
Arms: moderate
Chest: none
Legs: mild
joe sottosanti Male, 49 years toronto, Canada First Symptom: 10/04
Dx: 01/07
fishin' dreams
Sex: M
Data Quality: 2 stars
ALS: 1 yr
Bi-Pap Feeding tube
Bulbar: severe
Arms: moderate
Chest: moderate
Legs: moderate
D South Male, 50 years AL, United States First Symptom: 12/08
Dx: 03/09
JodyLeigh
Sex: F
Data Quality: 0 stars
ALS: 6 yrs
Feeding tube
Bulbar: mild
Arms: moderate
Chest: none
Legs: moderate
Eva Sova Female, 84 years Sauk Rapids, MN First Symptom: 01/08
Dx: 10/08
Rolling Stone
Sex: M
Data Quality: 2 stars
ALS: 8 yrs
Ventilator Wheelchair Feeding tube
Bulbar: moderate
Arms: severe
Chest: severe
Legs: severe
Christoph Spahl Male, 43 years Bonn, Germany First Symptom: 09/03
Dx: 03/06
Kerry
Sex: M
Data Quality: 0 stars
PMA: 6 yrs
Bi-Pap
Bulbar: moderate
Arms: none
Chest: mild
Legs: none
Timothy Spann Male, 55 years Chicago, IL First Symptom: 02/08
Dx: 10/08
mickey
Sex: M
Data Quality: 0 stars
ALS: 10 yrs
Bi-Pap
Bulbar: severe
Arms: mild
Chest: moderate
Legs: moderate
theodore sparks Male, 65 years saint joseph, MO First Symptom: 04/04
Dx: 04/05