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Welcome to the PatientsLikeMe Public ALS Registry

This is a registry for Amyotrophic Lateral Sclerosis (Lou Gehrig’s Disease, or ALS) intended to help Persons with ALS (PALS) reach out to each other and stand up and be counted. It was originally started it as a mailing list by Bobby Brannigan, PALS and PatientsLikeMe community member, and it is now being maintained by PatientsLikeMe. If you have any questions about privacy or terms of service, contact PatientsLikeMe.

You can help by passing this info on to other PALS.

There are PALS in the registry starting with the letter M.

Jump to last name:

A | B | C | D | E | F | G | H | I | J | K | L | M | N | O | P | Q | R | S | T | U | V | W | X | Y | Z

Newest Registry Members

Patient Status Patient Name Profile Location Diagnosis Info
Swiggy
Sex: F
Data Quality: 0 stars
ALS: 13 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: severe
Arms: severe
Chest: moderate
Legs: severe
MARIE MACDONAGH Female, 60 years Wakefield , West Yorkshire First Symptom: 09/01
Dx: 01/03
Chellaston
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
James Mace 74 years Denton, TX member since
humberto-from-brazil
Sex: M
Data Quality: 2 stars
ALS: 2 yrs
Wheelchair Feeding tube
Bulbar: moderate
Arms: severe
Chest: none
Legs: severe
humberto macedo Male, 42 years Brasília, Distrito Federal First Symptom: 09/06
Dx: 03/07
rac33jac
Data Quality: 0 stars
ALS: 10 yrs
Bulbar: none
Arms: moderate
Chest: none
Legs: mild
Jim Mackinnon First Symptom: 01/04
Dx: 08/04
lmacknik
Sex: M
Data Quality: 0 stars
ALS: 13 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: mild
Arms: mild
Chest: moderate
Legs: moderate
Lou Macknik Male, 72 years Canton, GA First Symptom: 04/01
Dx: 11/05
madgord
Sex: M
Data Quality: 0 stars
ALS: 30 yrs
Bulbar: mild
Arms: none
Chest: none
Legs: moderate
Gord Madsen Male, 77 years Saskatoon, Canada First Symptom: 04/84
Dx: 02/88
ALSFNMEUP
Sex: M
Data Quality: 0 stars
ALS: 10 yrs
Bulbar: moderate
Arms: mild
Chest: none
Legs: moderate
Greg Magie Male, 51 years San Marcos, CA First Symptom: 10/04
Dx: 08/05
Tommy Maker
Sex: M
Data Quality: 3 stars
ALS: 6 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: mild
Arms: severe
Chest: moderate
Legs: severe
Roch Maher Male, 52 years London, Middlesex First Symptom: 12/07
Dx: 06/09
Mypromis
Sex: F
Data Quality: 0 stars
ALS: 3 yrs
Bi-Pap Wheelchair
Bulbar: none
Arms: moderate
Chest: mild
Legs: severe
Lori Mai Female, 32 years berlin, berlin First Symptom: 09/06
Dx: 10/07
Pete-Air
Sex: M
Data Quality: 0 stars
ALS: 9 yrs
Wheelchair
Bulbar: mild
Arms: severe
Chest: none
Legs: moderate
Peter Maijstré Male, 49 years Schiedam, Netherlands First Symptom: 05/05
Dx: 01/07
MARINE
Sex: M
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
David Maire Male, 48 years McHenry, IL Dx: 06/04
coachmait
Sex: M
Data Quality: 0 stars
ALS: 18 yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Richard Maitland Male, 73 years Beverly , MA First Symptom: 10/96
Dx: 02/97
havingfaith
Sex: F
Data Quality: 0 stars
ALS: 8 yrs
Wheelchair Feeding tube
Bulbar: severe
Arms: moderate
Chest: mild
Legs: moderate
joy makinson Female, 72 years springfield, OR First Symptom: 11/06
Dx: 12/07
SOFOKLIS
Sex: M
Data Quality: 0 stars
ALS: 7 yrs
Ventilator Wheelchair
Bulbar: severe
Arms: severe
Chest: severe
Legs: severe
Sofoklis Makrides Male, 67 years NICOSIA, Cyprus First Symptom: 08/07
Dx: 03/08
marie*1
Sex: F
Data Quality: 1 star
ALS: 5 yrs
Wheelchair
Bulbar: mild
Arms: moderate
Chest: none
Legs: severe
Deanna Malcolm Female, 52 years Calgary, AB First Symptom: 06/09
Dx: 01/10
tonguetied
Sex: F
Data Quality: 0 stars
ALS: 3 yrs
Bi-Pap Feeding tube
Bulbar: moderate
Arms: mild
Chest: mild
Legs: moderate
Rea Malcolm Female, 71 years Medicine Hat, AB First Symptom: 08/06
Dx: 01/08
Ms. Smiley
Sex: F
Data Quality: 1 star
ALS: 4 yrs
Bulbar: none
Arms: moderate
Chest: none
Legs: moderate
Evelyn Maldonado Female, 55 years San Juan, Puerto Rico First Symptom: 03/10
Dx: 10/10
chez55
Sex: M
Data Quality: 1 star
ALS: 10 yrs
Bulbar: none
Arms: mild
Chest: none
Legs: moderate
Gilbert Maldonado Male, 59 years MI, United States First Symptom: 07/04
Dx: 08/06
sailorpeter
Sex: M
Data Quality: 0 stars
ALS: 12 yrs
Bulbar: none
Arms: moderate
Chest: none
Legs: moderate
Peter Malmgren Male, 67 years Arild, Sweden First Symptom: 08/02
Dx: 02/03
Mark M
Sex: M
Data Quality: 0 stars
ALS: 4 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: severe
Arms: moderate
Chest: moderate
Legs: moderate
Mark Mandeville Male, 52 years Tulsa, OK First Symptom: 09/06
Dx: 08/07