ALS Public Registry

Patient Status	Patient Name	Profile	Location	Diagnosis Info
Navy Nurse Sex: F Data Quality: 2 stars ALS: 12 yrs Bi-Pap Feeding tube Bulbar: moderate Arms: moderate Chest: none Legs: moderate	Ellen Kaatz	Female, 37 years	Marlborough , NH	First Symptom: 02/01 Dx: 02/02
papachuck Sex: M Data Quality: 0 stars ALS: 8 yrs Bulbar: unreported Arms: unreported Chest: unreported Legs: unreported	charles kachulis	Male, 67 years	cedar falls, IA	First Symptom: 01/05 Dx: 01/08
Coolpete Sex: M Data Quality: 0 stars ALS: 3 yrs Bi-Pap Wheelchair Bulbar: none Arms: severe Chest: mild Legs: severe	Peter Kalivati	Male, 50 years	Upper Hutt, Wellington	First Symptom: 04/06 Dx: 12/06
kaloger Sex: M Data Quality: 1 star ALS: 11 yrs Bi-Pap Wheelchair Bulbar: moderate Arms: moderate Chest: mild Legs: severe	bill kaloger	Male, 60 years	lake stevens, WA	First Symptom: 08/01 Dx: 06/02
snappykappy Data Quality: 0 stars ALS: ? yrs Bulbar: unreported Arms: unreported Chest: unreported Legs: unreported	thomas michael kappler	62 years	balboa island, CA	member since May 2008
Narges Karimi Sex: F Data Quality: 3 stars ALS: 4 yrs Ventilator Wheelchair Feeding tube Bulbar: severe Arms: severe Chest: severe Legs: severe	Narges Karimi Tehrani	Female, 65 years	Tehran, Tehran	First Symptom: 01/08 Dx: 09/09
mikel4golf Sex: M Data Quality: 0 stars ALS: 4 yrs Bi-Pap Bulbar: none Arms: mild Chest: none Legs: mild	Michael Karjala	Male	Belleville, MI	First Symptom: 03/09 Dx: 08/09
Anna65 Sex: F Data Quality: 0 stars ALS: 21 yrs Bi-Pap Bulbar: none Arms: mild Chest: moderate Legs: moderate	Anna-Karin Karlsson	Female, 47 years	Malmberget, Lapland	First Symptom: 01/92 Dx: 08/98
robert karp Data Quality: 0 stars PLS: 4 yrs Bi-Pap Bulbar: mild Arms: mild Chest: none Legs: moderate	robert Karp			First Symptom: 07/08 Dx: 11/09
dpkatch Sex: F Data Quality: 0 stars ALS: 8 yrs Bulbar: none Arms: none Chest: none Legs: mild	Donna Katcher	Female, 54 years	PA, United States	First Symptom: 09/04 Dx: 06/05
actualized Sex: M Data Quality: 1 star ALS: 2 yrs Ventilator Wheelchair Bulbar: severe Arms: severe Chest: severe Legs: severe	Jerry Kaufman	Male, 59 years	Surry, ME	First Symptom: 11/05 Dx: 11/06
alperstein Sex: M Data Quality: 2 stars ALS: 24 yrs Ventilator Wheelchair Bulbar: none Arms: severe Chest: moderate Legs: severe	Alper Kaya	Male, 51 years	Izmir, Turkey	First Symptom: 01/89 Dx: 08/90
mark susan Sex: M Data Quality: 0 stars ALS: 9 yrs Bulbar: unreported Arms: unreported Chest: unreported Legs: unreported	mark kealy	Male, 49 years	manchester, United Kingdom	First Symptom: 05/04 Dx: 08/04
skeetz Sex: M Data Quality: 0 stars ALS: ? yrs Bulbar: none Arms: severe Chest: none Legs: moderate	sean Keating	Male, 56 years	Milford, CT	member since Apr 2008
katha Sex: F Data Quality: 2 stars ALS: 8 yrs Wheelchair Bulbar: mild Arms: moderate Chest: mild Legs: moderate	Katharina Kebsch	Female, 33 years	Grimma, Saxony	First Symptom: 11/04 Dx: 06/05
jkchevy Sex: M Data Quality: 0 stars ALS: 5 yrs Ventilator Wheelchair Feeding tube Bulbar: moderate Arms: moderate Chest: moderate Legs: moderate	james keeffe	Male, 58 years	andalusia, AL	First Symptom: 04/08 Dx: 08/09
sailorj Sex: M Data Quality: 0 stars ALS: 2 yrs Bulbar: mild Arms: mild Chest: mild Legs: moderate	James Keeping	Male, 61 years	Canada	First Symptom: 11/05 Dx: 10/06
michaelkelly818 Sex: M Data Quality: 0 stars ALS: 6 yrs Bi-Pap Bulbar: moderate Arms: moderate Chest: moderate Legs: moderate	Michael Kelly	Male, 69 years	Lancaster, PA	First Symptom: 04/07 Dx: 08/08
HUMMINGBIRD19 Sex: F Data Quality: 1 star ALS: 3 yrs Wheelchair Feeding tube Bulbar: mild Arms: moderate Chest: none Legs: moderate	Karen KELLY	Female, 43 years	Greensboro, NC	First Symptom: 11/09 Dx: 08/10
Diane k Sex: F Data Quality: 0 stars ALS: 12 yrs Ventilator Wheelchair Bulbar: none Arms: severe Chest: moderate Legs: severe	Diane kendall	Female, 60 years	bradford , yorkshire	First Symptom: 09/00 Dx: 09/00

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