ALS Public Registry

Patient Status	Patient Name	Profile	Location	Diagnosis Info
Hvlight Sex: M Data Quality: 0 stars ALS: ? yrs Bulbar: unreported Arms: unreported Chest: unreported Legs: unreported	Alfred Jensen	Male, 78 years	Copenhagen, Denmark	member since Sep 2009
numberonenana Sex: F Data Quality: 0 stars ALS: 7 yrs Bulbar: mild Arms: none Chest: none Legs: none	Jeannie Jensen	Female, 64 years	Junction City, OR	First Symptom: 08/05 Dx: 09/06
GrannyR Sex: F Data Quality: 1 star ALS: 8 yrs Wheelchair Feeding tube Bulbar: moderate Arms: moderate Chest: mild Legs: moderate	Rosemary Jessop	Female, 82 years	Tunbridge Wells, United Kingdom	First Symptom: 11/04 Dx: 09/05
LindaPfeil Sex: F Data Quality: 0 stars ALS: 9 yrs Wheelchair Bulbar: mild Arms: mild Chest: none Legs: moderate	Linda JMKP	Female, 57 years	Woodbury, MN	First Symptom: 01/04 Dx: 01/06
carguy Sex: M Data Quality: 0 stars ALS: 5 yrs Bulbar: none Arms: none Chest: none Legs: none	Christopher Jobst	Male, 50 years	tucson, AZ	First Symptom: 05/08 Dx: 07/08
Ross Schick Sex: M Data Quality: 0 stars ALS: 5 yrs Bi-Pap Bulbar: moderate Arms: mild Chest: moderate Legs: mild	Kyle Johnson	Male, 64 years	Dixon, CA	First Symptom: 10/07 Dx: 09/08
kay johnson Sex: F Data Quality: 0 stars ALS: 8 yrs Bi-Pap Feeding tube Bulbar: severe Arms: moderate Chest: mild Legs: moderate	kay johnson	Female, 52 years	Kyle, TX	First Symptom: 10/04 Dx: 08/05
Ziz Sex: M Data Quality: 3 stars ALS: 6 yrs Ventilator Wheelchair Feeding tube Bulbar: severe Arms: severe Chest: severe Legs: severe	Rob Johnson	Male, 48 years	Mt St Michel, Normandy	First Symptom: 01/07 Dx: 10/08
r120v Sex: M Data Quality: 0 stars ALS: 5 yrs Bulbar: none Arms: mild Chest: none Legs: none	Rob Johnson	Male, 56 years	Indianapolis, IN	First Symptom: 06/07 Dx: 01/08
sinatra Sex: M Data Quality: 0 stars ALS: 6 yrs Bi-Pap Feeding tube Bulbar: severe Arms: none Chest: moderate Legs: none	Harold Johnson	Male, 71 years	Greensboro, United States	First Symptom: 05/07 Dx: 11/07
LANIE Sex: F Data Quality: 0 stars ALS: 10 yrs Bulbar: unreported Arms: unreported Chest: unreported Legs: unreported	ELAINE JOLLIFF	Female, 55 years	OH, United States	First Symptom: 07/97 Dx: 07/99
ridge Data Quality: 0 stars ALS: 6 yrs Bulbar: none Arms: none Chest: none Legs: none	chen jonas			First Symptom: 01/07 Dx: 01/07
lizzie11957 Sex: F Data Quality: 1 star ALS: 3 yrs Feeding tube Bulbar: severe Arms: none Chest: mild Legs: none	Liz Jones	Female, 55 years	Centerville, GA	First Symptom: 05/10 Dx: 10/10
wineworks Data Quality: 0 stars ALS: 6 yrs Bi-Pap Bulbar: moderate Arms: moderate Chest: moderate Legs: moderate	David Jones	61 years	San Francisco, CA	First Symptom: 12/06 Dx: 06/07
tera Sex: F Data Quality: 0 stars ALS: 13 yrs Bi-Pap Wheelchair Feeding tube Bulbar: mild Arms: severe Chest: mild Legs: severe	Duana Jones	Female, 60 years	Lake Havasu City, AZ	First Symptom: 04/00 Dx: 06/02
daj182 Sex: F Data Quality: 0 stars ALS: 1 yr Feeding tube Bulbar: severe Arms: none Chest: mild Legs: none	Deborah Jones	Female, 49 years	wrentham, MA	First Symptom: 07/07 Dx: 02/08
SIONZ Sex: F Data Quality: 0 stars ALS: 9 yrs Bulbar: none Arms: none Chest: none Legs: mild	SIONED JONES	Female, 40 years	CAERNARFON, Gwynedd	First Symptom: 12/03 Dx: 10/07
Lorene Sex: F Data Quality: 2 stars ALS: 7 yrs Bulbar: none Arms: mild Chest: none Legs: mild	Lori Jones	Female, 47 years	Jennings, FL	First Symptom: 11/05
punkrockmom Sex: F Data Quality: 0 stars ALS: 13 yrs Ventilator Wheelchair Feeding tube Bulbar: severe Arms: severe Chest: severe Legs: severe	Cathy Jones	Female, 62 years	Chester, CT	First Symptom: 11/99 Dx: 05/03
Jughead Data Quality: 0 stars ALS: ? yrs Bulbar: unreported Arms: unreported Chest: unreported Legs: unreported	Jughead Jones			member since Aug 2007

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