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Welcome to the PatientsLikeMe Public ALS Registry

This is a registry for Amyotrophic Lateral Sclerosis (Lou Gehrig’s Disease, or ALS) intended to help Persons with ALS (PALS) reach out to each other and stand up and be counted. It was originally started it as a mailing list by Bobby Brannigan, PALS and PatientsLikeMe community member, and it is now being maintained by PatientsLikeMe. If you have any questions about privacy or terms of service, contact PatientsLikeMe.

You can help by passing this info on to other PALS.

There are PALS in the registry starting with the letter J.

Jump to last name:

A | B | C | D | E | F | G | H | I | J | K | L | M | N | O | P | Q | R | S | T | U | V | W | X | Y | Z

Newest Registry Members

Patient Status Patient Name Profile Location Diagnosis Info
numberonenana
Sex: F
Data Quality: 0 stars
ALS: 9 yrs
Bulbar: mild
Arms: none
Chest: none
Legs: none
Jeannie Jensen Female, 65 years Junction City, OR First Symptom: 08/05
Dx: 09/06
GrannyR
Sex: F
Data Quality: 1 star
ALS: 9 yrs
Wheelchair Feeding tube
Bulbar: severe
Arms: moderate
Chest: mild
Legs: moderate
Rosemary Jessop Female, 83 years Tunbridge Wells, United Kingdom First Symptom: 11/04
Dx: 09/05
LindaPfeil
Sex: F
Data Quality: 0 stars
ALS: 10 yrs
Wheelchair
Bulbar: mild
Arms: mild
Chest: none
Legs: moderate
Linda JMKP Female, 59 years Woodbury, MN First Symptom: 01/04
Dx: 01/06
carguy
Sex: M
Data Quality: 0 stars
ALS: 6 yrs
Bulbar: none
Arms: none
Chest: none
Legs: none
Christopher Jobst Male, 52 years tucson, AZ First Symptom: 05/08
Dx: 07/08
Ziz
Sex: M
Data Quality: 2 stars
ALS: 7 yrs
Ventilator Wheelchair Feeding tube
Bulbar: severe
Arms: severe
Chest: severe
Legs: severe
Rob Johnson Male, 49 years Mt St Michel, Normandy First Symptom: 01/07
Dx: 10/08
kay johnson
Sex: F
Data Quality: 0 stars
ALS: 10 yrs
Bi-Pap Feeding tube
Bulbar: severe
Arms: moderate
Chest: mild
Legs: moderate
kay johnson Female, 53 years Kyle, TX First Symptom: 10/04
Dx: 08/05
sinatra
Sex: M
Data Quality: 0 stars
ALS: 7 yrs
Bi-Pap Feeding tube
Bulbar: severe
Arms: none
Chest: moderate
Legs: none
Harold Johnson Male, 72 years Greensboro, United States First Symptom: 05/07
Dx: 11/07
r120v
Sex: M
Data Quality: 0 stars
ALS: 7 yrs
Bulbar: none
Arms: mild
Chest: none
Legs: none
Rob Johnson Male, 57 years Indianapolis, IN First Symptom: 06/07
Dx: 01/08
Ross Schick
Sex: M
Data Quality: 0 stars
ALS: 7 yrs
Bi-Pap
Bulbar: moderate
Arms: mild
Chest: moderate
Legs: mild
Kyle Johnson Male, 65 years Dixon, CA First Symptom: 10/07
Dx: 09/08
LANIE
Sex: F
Data Quality: 0 stars
ALS: 10 yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
ELAINE JOLLIFF Female, 55 years OH, United States First Symptom: 07/97
Dx: 07/99
ridge
Data Quality: 0 stars
ALS: 7 yrs
Bulbar: none
Arms: none
Chest: none
Legs: none
chen jonas First Symptom: 01/07
Dx: 01/07
bigal
Data Quality: 0 stars
ALS: 7 yrs
Feeding tube
Bulbar: moderate
Arms: none
Chest: none
Legs: none
al jones First Symptom: 07/07
Dx: 02/08
Lorene
Data Quality: 2 stars
  • Sex: Female
  • Age: 49y
Condition: Charcot Marie Tooth 1 additional condition(s)
Quality of Life:
  • Mental: Moderate
  • Physical: Moderate
I am: Neutral
Lori Jones Female, 49 years Jennings, FL First Symptom: 06/69
Dx: 07/05
brookejones
Sex: F
Data Quality: 0 stars
ALS: 6 yrs
Bi-Pap Wheelchair
Bulbar: moderate
Arms: severe
Chest: mild
Legs: severe
brooke jones Female, 51 years OK, United States First Symptom: 01/08
Dx: 05/08
Gamblinonacure
Sex: M
Data Quality: 2 stars
ALS: 8 yrs
Wheelchair
Bulbar: severe
Arms: severe
Chest: moderate
Legs: severe
Ron Jones Male, 59 years Vinemont, AL First Symptom: 09/00
Dx: 01/04
Jughead
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Jughead Jones member since
lizzie11957
Sex: F
Data Quality: 1 star
ALS: 4 yrs
Feeding tube
Bulbar: severe
Arms: none
Chest: mild
Legs: none
Liz Jones Female, 56 years Centerville, GA First Symptom: 05/10
Dx: 10/10
SIONZ
Sex: F
Data Quality: 0 stars
ALS: 10 yrs
Bulbar: none
Arms: none
Chest: none
Legs: mild
SIONED JONES Female, 42 years CAERNARFON, Gwynedd First Symptom: 12/03
Dx: 10/07
tera
Sex: F
Data Quality: 0 stars
ALS: 14 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: mild
Arms: severe
Chest: mild
Legs: severe
Duana Jones Female, 62 years Lake Havasu City, AZ First Symptom: 04/00
Dx: 06/02
punkrockmom
Sex: F
Data Quality: 0 stars
ALS: 14 yrs
Ventilator Wheelchair Feeding tube
Bulbar: severe
Arms: severe
Chest: severe
Legs: severe
Cathy Jones Female, 63 years Chester, CT First Symptom: 11/99
Dx: 05/03