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Welcome to the PatientsLikeMe Public ALS Registry

This is a registry for Amyotrophic Lateral Sclerosis (Lou Gehrig’s Disease, or ALS) intended to help Persons with ALS (PALS) reach out to each other and stand up and be counted. It was originally started it as a mailing list by Bobby Brannigan, PALS and PatientsLikeMe community member, and it is now being maintained by PatientsLikeMe. If you have any questions about privacy or terms of service, contact PatientsLikeMe.

You can help by passing this info on to other PALS.

There are PALS in the registry starting with the letter H.

Jump to last name:

A | B | C | D | E | F | G | H | I | J | K | L | M | N | O | P | Q | R | S | T | U | V | W | X | Y | Z

Newest Registry Members

Patient Status Patient Name Profile Location Diagnosis Info
ruh00
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
ROBERT U. HATCHETTE member since
havo
Sex:
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
shaun haverkamp member since
Wy HavocSolomon T.
Sex: F
Data Quality: 0 stars
ALS: 10 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: severe
Arms: severe
Chest: moderate
Legs: severe
Wyvondia HavocSolomon Thompson Female, 40 years GrandRapids, MI First Symptom: 02/04
Dx: 09/04
donduck63
Sex: F
Data Quality: 0 stars
ALS: 11 yrs
Bi-Pap
Bulbar: mild
Arms: moderate
Chest: moderate
Legs: moderate
Donna Hawks Female, 51 years Surry, NC First Symptom: 07/03
Dx: 05/07
cath m.
Sex: F
Data Quality: 0 stars
ALS: 7 yrs
Bi-Pap
Bulbar: severe
Arms: none
Chest: mild
Legs: moderate
Catherine Hazell Female, 62 years England First Symptom: 12/06
Dx: 08/07
hazbro25
Sex: M
Data Quality: 0 stars
ALS: 6 yrs
Bulbar: moderate
Arms: mild
Chest: none
Legs: none
Mark Hazzard Male, 57 years Hallowell, ME First Symptom: 12/07
Dx: 06/08
gary1
Data Quality: 0 stars
ALS: 7 yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Gary Head First Symptom: 01/07
Dx: 03/08
Frank
Sex: M
Data Quality: 0 stars
ALS: 19 yrs
Bi-Pap Wheelchair
Bulbar: mild
Arms: severe
Chest: moderate
Legs: moderate
Frank Healy Male, 59 years Bloomington, IN First Symptom: 04/95
Dx: 08/96
NicoleH
Sex: F
Data Quality: 0 stars
PLS: 20 yrs
Bulbar: mild
Arms: mild
Chest: none
Legs: moderate
Nicole Hedgpeth Female, 44 years Lincoln, NE First Symptom: 04/94
Dx: 03/08
smokyrod
Sex: M
Data Quality: 0 stars
ALS: 5 yrs
Bulbar: mild
Arms: moderate
Chest: none
Legs: moderate
RODNEY HELFRICH Male, 51 years MEDICINE HAT, Canada First Symptom: 10/01
Dx: 03/03
brainhell
Sex: M
Data Quality: 0 stars
ALS: 4 yrs
Wheelchair Feeding tube
Bulbar: severe
Arms: moderate
Chest: none
Legs: moderate
brain hell Male, 43 years CA, United States First Symptom: 12/03
Dx: 01/04
Erica
Sex: F
Data Quality: 0 stars
ALS: 12 yrs
Bulbar: moderate
Arms: moderate
Chest: none
Legs: moderate
Heather Hemp Female, 65 years United Kingdom First Symptom: 09/02
Dx: 04/05
Kats
Sex: F
Data Quality: 0 stars
ALS: 2 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: moderate
Arms: severe
Chest: mild
Legs: severe
Kathy Hemphill Female, 60 years Renton, WA First Symptom: 04/07
Dx: 07/07
sarajosh
Sex:
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Sara Hemsley member since
r0bman
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
rob heno member since
Suzie Girl
Data Quality: 0 stars
ALS: 8 yrs
Bi-Pap
Bulbar: mild
Arms: mild
Chest: mild
Legs: moderate
Patty Hensley Hobbs First Symptom: 11/05
Dx: 06/07
Harley man
Sex: M
Data Quality: 0 stars
ALS: 7 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: none
Arms: moderate
Chest: none
Legs: severe
Alan Herman Male, 62 years Laurel, MD First Symptom: 05/07
Dx: 03/08
DennisHermans
Sex: M
Data Quality: 0 stars
ALS: 11 yrs
Feeding tube
Bulbar: moderate
Arms: severe
Chest: none
Legs: moderate
Dennis Hermans Male, 45 years Doesburg, Gld First Symptom: 10/03
Dx: 09/06
Spicer Bill
Sex: M
Data Quality: 1 star
ALS: 3 yrs
Wheelchair
Bulbar: moderate
Arms: moderate
Chest: mild
Legs: moderate
Bill Hern Male, 53 years Spicer, MN First Symptom: 10/05
Dx: 11/06
sheronemus
Sex: M
Data Quality: 2 stars
ALS: 10 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: moderate
Arms: severe
Chest: moderate
Legs: moderate
Steven Heronemus Male, 54 years Batavia, IL First Symptom: 11/03
Dx: 07/05