ALS Public Registry

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Welcome to the PatientsLikeMe Public ALS Registry

This is a registry for Amyotrophic Lateral Sclerosis (Lou Gehrig's Disease, or ALS) intended to help Persons with ALS (PALS) reach out to each other and stand up and be counted. It was originally started it as a mailing list by Bobby Brannigan, PALS and PatientsLikeMe community member, and it is now being maintained by PatientsLikeMe. If you have any questions about privacy or terms of service, contact PatientsLikeMe.

You can help by passing this info on to other PALS.

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There are 88 PALS in the registry starting with the letter D.

Patient Status	Patient Name	Profile	Location	Diagnosis Info
SCOOBYDOO39 Sex: F Data Quality: 0 stars PMA: 6 yrs Wheelchair Bulbar: none Arms: mild Chest: none Legs: moderate	ANGIE DUVAL	Female, 45 years	BLAKPOOL, United Kingdom	First Symptom: 09/06 Dx: 12/08
busy bee Sex: F Data Quality: 0 stars ALS: 6 yrs Wheelchair Bulbar: moderate Arms: severe Chest: none Legs: severe	Marlene Duvenage	Female, 56 years	Johannesburg, Gauteng	First Symptom: 10/06 Dx: 02/08
Shano Sex: M Data Quality: 0 stars ALS: 1 yr Feeding tube Bulbar: severe Arms: moderate Chest: none Legs: moderate	Shane Dwyer	Male, 51 years	Maroochydore, QLD	First Symptom: 02/07 Dx: 08/07
pdwyer1986 Sex: M Data Quality: 2 stars ALS: 10 yrs Bi-Pap Wheelchair Bulbar: none Arms: severe Chest: moderate Legs: severe	Patrick Dwyer	Male, 52 years	Kenmore, WA	First Symptom: 10/02 Dx: 06/05
Yudutu Sex: M Data Quality: 0 stars ALS: 10 yrs Bulbar: unreported Arms: unreported Chest: unreported Legs: unreported	Joe Dyer	Male, 66 years	Lenoir, NC	First Symptom: 01/03 Dx: 01/05
Red F150 Sex: M Data Quality: 0 stars ALS: 9 yrs Bi-Pap Bulbar: mild Arms: mild Chest: none Legs: moderate	Charles Dyer	Male, 70 years	Jonesboro, GA	First Symptom: 06/03 Dx: 10/03
Toni Sex: F Data Quality: 0 stars ALS: ? yrs Bulbar: none Arms: none Chest: none Legs: moderate	Toni Dyer	Female, 76 years	Darby, PA	Dx: 07/06
buckaroo Sex: M Data Quality: 2 stars ALS: 8 yrs Bi-Pap Wheelchair Feeding tube Bulbar: moderate Arms: severe Chest: moderate Legs: severe	Billy Dyle	Male, 54 years	Picayune, MS	First Symptom: 02/05 Dx: 12/05

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